"From the moment of diagnosis, I realised quickly that if I didn’t find something to hold on to, I might fall and fall into a place of despair that I might not be able to get out of. I realised over time, that a life without purpose...would be no life at all."

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AU - The 1% Chance: Hope, Wellness and Discovery in the Face of MND

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"I recently heard of something called Silent Prayer. Author, Mindy Caliguire, describes it as, “a wordless way of resting in the presence of God, with an attitude of openness, contrition, and longing. The description hit me right in the heart. Today, - I want to take a moment to reflect on each of the words in that description of Silent Prayer."

Mindy Caliguire - https://www.instagram.com/mindycaliguire/?hl=en

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AU - The 1% Chance: Hope, Wellness and Discovery in the Face of MND

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How I’m learning to use polyvagal theory to manage my mind and better navigate my health journey.

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AU - The 1% Chance: Hope, Wellness and Discovery in the Face of MND

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“It goes without saying - but a diagnosis of MND is life changing. My first reaction was to look for ways to build my health so my body could at least make an attempt to defend against the disease. Here are 10 things I’m prioritising to stay well on my MND journey,”

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"It’s hard to fathom the depths of thought Stephen Hawking must have achieved, and it makes me wonder if it’s a coincidence that one of the most powerful minds of our time also achieved such incredible longevity in his battle with MND.

While the fundamental nature of the universe might be outwith my comprehension, I wanted to explore what lessons his words and life might offer me when it comes to MND. Here are some quotes by Professor Hawking, and the lessons I’ve learned from them…"

I’ve always been happy to deal with the situation privately, knowing that anyone who really needed to know - my family and closest friends - were already in the loop. The book was made for the small number of people who find themselves facing a diagnosis of MND.

So, why go public now?

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"Glutamate is responsible for moving bioelectrical signals across the tiny gaps between one neurone and the next. It’s a pretty neat system, but when it isn’t working properly, we can have problems..."

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"Maybe it was a case of my own unspoken expectations going unmet, but I quickly realised that the kind of support I thought would be on offer, wasn’t going to materialise. If I was going to build my health, support my body and guard my mind against what was to come, I’d have to find out how to do it in my own way..."

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AU - The 1% Chance: Hope, Wellness and Discovery in the Face of MND

CA - The 1% Chance: Hope, Wellness and Discovery in the Face of MND

Living with MND / ALS throws up an overwhelming array of physical challenges but it could be argued that the mental and emotional obstacles are just as great. Polyvagal theory gives me a practical toolkit for managing my emotional wellbeing.

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You’ve probably heard the term gut-brain axis, and understand there’s a connection between the gut and the brain, but the health of our gut microbiome can have a profound effect on our overall health and wellbeing.

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