In this episode, host Ken Vinacco sits down with guests Lauren LaMar and Kyle Vasher to discuss the range of resources that the ALS Association offers for people with ALS. Lauren shares her role in the multidisciplinary clinic as well as the range of online, local and one-on-one support services offered for patients and caregivers. Kyle adds his input as a DD SIG liaison and treating therapist. Filled with great advice, perspective and practical resources to share with patients, this is a helpful listen for PTs treating patients with ALS.  

The Degenerative Diseases Special Interest Group is part of the Academy of 
Neurologic Physical Therapy – www.neuroPT.org 

For questions about this podcast, please contact [email protected]. 
 

Resources from the ALS Association 

Medicare information: https://www.als.org/navigating-als/financial-information/medicare-information 

Caregiver education and support groups: https://www.als.org/navigating-als/support-for-caregivers  

Care Matters newsletter: https://www.als.org/care-matters-sign-up  

Multidisciplinary clinic locator: https://www.als.org/support/certified-centers-clinics 

Education for healthcare professionals: https://www.als.org/navigating-als/education-healthcare-professionals 

     – Rehabilitative Care for ALS: Guidance for PTs and OTs: https://app.schoox.com/login.php?courseId=8207995  

Printed materials: https://www.als.org/order-portal  

Transfer technique videos: https://www.youtube.com/watch?v=C6QI9CQO63I&list=PL2RF9Bwbv6Com3nZM-jFh_EGl3Gmn6S43 

Virtual home modification and safety assessment program: https://www.als.org/support/programs/virtual-home-modification-and-safety-assessment-program  

ALS Insurance Navigator https://www.als.org/support/als-insurance-navigator 

ALS Advocacy Team https://www.als.org/advocacy/action-center  

Show notes: https://app.box.com/s/q45h3p0fsgiuzluwxtzajnupp5hyofr2