On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at www.chatathon.uk.

In a way that everyone can understand, this video features Adam talking with:

Dr Christina Toomey, Post-doctoral Research Associate, University College London. Christina's research focuses on the proteomics and lipidomics of neurodegenerative diseases and the link to the pathology present. My PhD was on the role TREM2 Gene plays in neurodegeneration too - @christina_neuro.

Dr Guliz Ozcan, Postdoctoral Research Associate, University College London. Guliz works at the interception of sleep and Alzheimer's disease. Sleep problems are one of the earliest symptoms of AD and often arise years before the cognitive deficits. Using zebrafish, we have recently shown that Aβ acutely and reversibly enhances or suppresses sleep as a function of oligomer length - @guilizozcan.

Dr Gemma Lace, Senior Lecturer in Biomedical Science & Lead of Public Engagement and Outreach, University of Salford. Gemma researchers the role of autophagy impairments in Alzheimer's disease and frontotemporal dementia, the role of obesity in dementia risk and how exosomes may shed light on underlying disease mechanisms and be used as diagnostic biomarkers. A large part her job is to also raise dementia awareness through outreach and public engagement events - @gemmalace

On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at www.chatathon.uk.

In a way that everyone can understand, this video features Adam talking with:

Professor Katie Lunnon,  Professor of Dementia Genomics, University of Exeter. Katie works in the field of epigenetics and gene regulation. Her studies look in the brain to see if we can identify epigenetic differences in individuals with dementia as well as in the blood with the hope of identifying new biomarkers. Initially focusing on Alzheimer's disease but now expanding her studies to look at other dementias as well. Additionally Katie leads a number of functional studies, exploring proteins, iPSCs and gene editing in cell lines - @katielunnon

Dr Leonidas Chouliaras, Clinical Lecturer in Old Age Psychiatry, University of Cambridge. Leo is a clinician and epigeneticist, focused on Lewy Body Dementia. Working both on clinical cohorts, studying DNA methylation in blood samples as well as in autopsy brain tissues, isolating neurons with Lewy Bodies using laser-microdissection and comparing the epigenetic profiles with healthy looking neurons from the same donor or from controls - @chouliarasL

On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at www.chatathon.uk.

In a way that everyone can understand, this video features Adam talking with:

Brendan Commane, PhD student, Royal College of Art, London. Brendan is researching the environment in care homes for people with dementia. He is using technology to support a more engaging and stimulating environment and also researching the power of soft toys or a textile item as a means of comfort, security and conversation. He hopes to bring the soft item and the technology together. His is just getting started, however it will involve family, carers and the residents all working together and inclusively - @BGC210.

Dr Kat Algar-Skaife, Postdoctoral Fellow in Dementia Care and Welfare Technology, Norwegian University of Science and Technology (NTNU). Over the past twelve years, I have led and contributed to research around understanding and improving support; developing and evaluating psychosocial, physical activity, and creative interventions. I collaborate with organisations such as Age Cymru and local authorities to ensure that my research has a real-life impact outside of an academic setting. I currently lead the SENSE-Emotion project which aims to provide a deeper understanding of the experiences and emotional responses of people living with dementia engaging with SENSE-GARDEN, an immersive digital sensory room - @kat_algar.

Professor Marion Lynch, Visiting Professor of Dementia Care, University of West London. Marion works on developing the frameworks informing how we think about designing dementia care and in particular how the arts can help - @drmarionlynch.

On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at www.chatathon.uk.

In a way that everyone can understand, this video features Adam talking with:

Dr Fiona Marshall Research Fellow, University of Nottingham (SLIDES) Fiona's research looks at the design and delivery of dementia care services in remote and rural areas of the UK. Proportionally, there are far more older people living with dementia and spousal carers then in urban areas, yet less attention and funding is afforded to these areas. By adopting a more spatial policy approach to the design and delivery of dementia focused services, my work seeks to challenge the dominance of "one size fits all" approach which underpins the most of dementia-friendly services - @fionaj1215

Dr Paul Brownbill Insight Lead-Richmond Fellowship  Paul finished his PhD study, looking at caring for people who have dementia in community hospitals. The study details everyday decision making of people who work in community hospitals, looking it from an ethnometholodogical perspective. He now works for a Mental Health charity as a manager of research & impact - @paully232000

Professor Siobhan Reilly University of Bradford Siobhan researches inequalities of health and social care for people living with dementia and people with severe mental illness. Over the years, the goal of her research programme has been to improve the quality of care and the evidence base for the delivery of health and social care services for these groups. In October 2020 she started a new role as Director of the Centre for Applied Dementia Studies at University of Bradford - @DrSiobhanReilly

On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at www.chatathon.uk.

In a way that everyone can understand, this video features Adam talking with:

Dr Marianne Coleman Clinical Vision Research Fellow, University of Melbourne. Marianne's research looks at how people with dementia see, and how we can help them look after their eyes while living with dementia. Ensuring people living with dementia have the best eyesight possible helps to reduce their risk of falling and makes it more likely they can keep interacting with family, friends, and doing their day to day activities they enjoy. This helps people to stay living at home and doing things independently for longer - @MPOrthoptics

Dr Catherine Quinn Lecturer in Dementia Studies, University of Bradford. Catherine's research focuses on improving the quality of life of those affected by dementia. First, through gaining a better understanding of the experiences of those affected by dementia and the factors that affect their quality of life. Second, by developing interventions to improve the quality of life of those affected by dementia. She is also a co-investigator on the IDEAL programme, which is a large-scale cohort study of living well with dementia - @cquinn196

On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at www.chatathon.uk.

This video / podcast features Adam talking with Wendy Mitchell, Chris Roberts and Jayne Goodrick. Three people who are living with effects of dementia every day. Chatting about why research is important to them, asking what messages they have for researchers, and what they would like to see more of, from their own experience as study participants.

Dr Nathan Davies, Senior Research Fellow, University College London.  Nathan conducts research into exploring ways to support family carers of people living with dementia who are towards the end of life. With Dr Nuriye Kupeli, he have conducted a Covid-19 study developing a decision aid to support family carers having to make rapid decisions about care for a relative who has dementia and has become rapidly unwell with covid-19 (e.g. hospitalisation, visiting etc) - @NathanDavies50.

Dr Nuriye Kupeli, Senior Research Fellow, Marie Curie Palliative Care Research Department, University College London. Nuriye also conducts research into exploring ways to support family carers of people living with dementia who are towards the end of life. Along with Dr Nathan Davies, she conducted a Covid-19 study developing a decision aid to support family carers having to make rapid decisions about care for a relative who has dementia and has become rapidly unwell with Covid-19 (e.g. hospitalisation, visiting etc) - @dmkupeli.

Dr Kellyn Lee Research Fellow, University of Southampton. Kellyn's research looks at the importance of everyday objects and how they can support and maintain identity and independence in dementia care. She is currently collaborating with a care organisation to design, develop and implement a training programme with material citizenship, functional objects for meaningful lives - @kellynleefarrar

On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at www.chatathon.uk.

This video / podcast features Adam talking with Wendy Mitchell, Chris Roberts and Jayne Goodrick. Three people who are living with effects of dementia every day. Chatting about why research is important to them, asking what messages they have for researchers, and what they would like to see more of, from their own experience as study participants.

Wendy Mitchell  - was diagnosed with young onset dementia on the 31st July 2014 at the age of 58 years old.  Wendy retired early from the NHS having worked as a non-clinical team leader for 20 years.  Post-diagnosis, she was shocked by the lack of awareness, both in the community and clinical world, so she now spends all of her time travelling around the country raising awareness and encouraging others to embrace her passion for research. Wendy is an Alzheimer's Society Ambassador, blogger and member of 3 Nations Dementia Working Group she also wrote an amazing bestselling book 'Somebody I Used to Know' a Richard and Judy Book Club Pick 2019 Paperback. With humour, truth and grace, this book her book gives a unique insight into what it's like to live with Alzheimer's disease - @WendyPMitchell.

Chris Roberts & Jayne Goodrick - are from Wales. Chris was diagnosed with mixed dementia in early 2012 but has not let this diagnosis get in the way of leading a full life.  He and his amazing wife Jayne, spend most of their time promoting and providing education to others about dementia. Chris regularly give talks on what it’s like to live with dementia and how research plays an important role in unlocking new treatments and better care, supported by Jayne who provides unique insights as someone living with the disease in a different way. Together they believe in dementia rights, inclusion, co-production and the promotion of better services for everyone living with dementia.  Chris is an Ambassador for the UK Alzheimer’s Society, Join Dementia Research Champion, Affiliate member of Dementia Action Alliance UK, Honorary Lecturer, Bangor University, Wales and a Member of the NICE Dementia Clinical Guideline Review Committee - @mason4233 / @jaynegoodrick.

Adam Smith closes the 2022 Dementia Research Charity Chatathon.

Thank you to everyone who joined to share their work, everyone who donated and to all of those who came along to watch live or who has caught up on the recordings from the 2022 Dementia Research Charity Chatathon.

For more information and to donate got to http://www.chatathon.uk

Recorded at the Dementia Research Charity #Chatathon 2022 - Adam Smith interviews Dr Lucy Chisman-Russell, Postdoctoral Research Fellow, and Tammaryn Lashley, Professor of Neuroscience both from University College London.

Dr Lucy Chisman-Russell - I am a postdoctoral researcher funded by the Bluefield Project. I am the co-ordinator of the FTD Prevention Initiative, helping to link together the genetic FTD cohort studies from around the world, and liaising with pharmaceutical companies as new drug trials start for people with FTD. My research interests initially focused on social cognitive assessments in FTD using instructionless eye tracking tasks but have expanded in my postdoc role to the development of digital and remote markers in FTD.

Professor Tammaryn Lashley - My research is based around various neurodegenerative disease, including Alzheimer's disease and Frontotemporal Dementia. We use post-mortem human brain tissue to investigate the underlying pathological mechanisms that cause or are involved in the disease pathogenesis.

--

The 2022 Dementia Research Charity Chatathon LIVE was held on Friday 2nd December - A non-stop 12.5 hours livestream hosted by Adam Smith interviewing 68 Dementia Researchers and Special Guests working across all areas of discovery to beat Alzheimer's disease and all forms of dementia.   Raising money for research and providing insights into the latest research taking place across the UK and Worldwide.

This year we are raising money for four amazing charities who all fund research - Alzheimer's Research UK, Alzheimer's Society, Race Against Dementia and The Lewy Body Society.

For more information and to donate visit http://www.chatathon.uk

Recorded at the Dementia Research Charity #Chatathon 2022 - Adam Smith interviews Dr Dia Soilemezi, Senior Research Fellow, University of Portsmouth and Dr Marianne Coleman, Clinical Vision Research Fellow, University of Melbourne.

Dr Dia Soilemezi - My research explores Home care/ oral care: Improving oral care for people who live with dementia and get support from care workers. Family carers and cohabiting: Home environment and how it changes for family carers (need for escape space, use of AT, strategies for safety, dementia-friendly homes).

Dr Marianne Coleman - Developing information about eye tests for people living with dementia and carers, and a training course for optometrists about dementia-friendly eyecare. These are based on qualitative research with people living with dementia, carers and optometrists.

--

The 2022 Dementia Research Charity Chatathon LIVE was held on Friday 2nd December - A non-stop 12.5 hours livestream hosted by Adam Smith interviewing 68 Dementia Researchers and Special Guests working across all areas of discovery to beat Alzheimer's disease and all forms of dementia.   Raising money for research and providing insights into the latest research taking place across the UK and Worldwide.

This year we are raising money for four amazing charities who all fund research - Alzheimer's Research UK, Alzheimer's Society, Race Against Dementia and The Lewy Body Society.

For more information and to donate visit http://www.chatathon.uk