Diabetics Doing Things Podcast

By Diabetics Doing Things

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29th
on Fitness & Nutrition
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Followers
Typical duration
32 min
per episode

Based on Podcast App listening data

Diabetics Doing Things Podcast episodes

December 20, 2023 Episode 261 - Rob & Eritrea, December 2023
On the final episode of The Rob and Eritrea Show of 2023, the gang wraps up
the highs, the lows, and a whole lot more:
* Some of their favorite moments from the forty-three episodes
published in 2023
* Being the #1 podcast on Spotify wrapped for some of our listeners and
some other surprising stats
* Hosting four first-time events, some virtual, some in person, some
local, some not
* Our expanding collaboration and relationship with the North Texas
Food Bank
* Making it to the Top 20 of the DCB Innovation Challenge and what we
learned during that process
* Cementing the mission of DDT in 2023 at the CWD conference as a team
* A bit about our 2024 programming and what more is on the horizon
As we close out the year and reflect on all the work we put in, we are
truly grateful to each and everyone one of you who gets anything out of
these episodes. We couldn’t do it without you! Big shoutout and Thank you
to some of our sponsors this year: Medtronic, Mannkind, Xeris, Insulet,
SkinGrip, Diabetes Link, Swoon, Belay, and more!
Happy Holidays and see you in 2024!
51 min
December 13, 2023 Episode 260 - Emma Klatman, Global Advocacy and Policy Manager, Life of a Child
Emma Klatman, who has T1D herself, and is Global Advocacy and Policy
Manager for Life of a Child, joins the pod.
She and Rob discuss:
* Her work with Life of a Child
* Global advocacy
* The difference between advocacy focuses in the west vs. in other
parts of the world
* There is no single organization doing all of the work
* Type 1 Diabetes is not equal everywhere
* The different rungs on the advocacy ladder
* The cost of diabetes management varies by the country’s
infrastructure
* Technology and the gaps between the haves and the have-nots
* Having diabetes and becoming a policy manager
* Getting more comfortable advocating for yourself and for others
* Being uncomfortable being the “token patient” voice
* The resilience and problem-solving skills that people with diabetes
have
55 min
December 06, 2023 Episode 259 - Matt Tarro, T1D, Artist, Creator, Advocate
Bringing longtime friend, but first time guest, Matt Tarro on to the pod!
There are so many amazing people living with diabetes and we finally got
the Denver-based, incredible videographer, Matt Tarro, on the pod! Rob and
Matt get into:
Content warning: there is some discussion of drug use
* Matt’s incredible help at the Diabetes Legends Basketball Camp
* Matt’s diagnosis story and his younger life as a person who has
always been creative and artistic
* How insurance has played a large role in what kind of work/jobs Matt
has gone after
o Matt’s journey as a creator and the hoops he’s had to jump thru
to get his diabetes supplies at an affordable cost.
o The strict guidelines around income limits that can make access
to medications hard especially if you’re on State Insurance
o Matt’s cost of insulin access going up to $300 at a time
because of income creating an unviable option to insulin for
him
o The importance of signing up for a medical leave option or FMLA
if you are working somewhere that its available
* Diabetes creator burnout and the different inputs that go into taking
care of your diabetes, OUTSIDE of just the basics
* Matt’s cross country moves from his native Rhode Island to California
and now Denver and how his own life experiences have pushed him out
of his original home state
* The grief that comes along with the loss of a parent and the
management of mourning
* Outgrowing and quitting things that no longer serve you
Follow Matt over on IG: @matt.tarro and check out @inkulin
49 min
November 29, 2023 Episode 258 - Cyrine Farhat, Women's Health Series: Diabetes and Pregnancy Loss
This is the final installment of our Women’s Health Series. We welcome back
our returning guest and good friend the pod, Cyrine Farhat! On this
episode, we peel back the layers on Eritrea and Cyrine’s personal
experience with pregnancy loss. (Content warning: this episode will dive
into the details of pregnancy loss).
We dive further into:
* How Eritrea found friendship within Cyrine and the Positive on
Glucose support group
* Eritrea’s loss of her own baby in 2019 and how her pregnancy created
diabetes complications
* The shame and stigma that comes around pregnancy loss and how support
and talking about experiences really can help
* Cyrine’s story of pregnancy loss at 35 weeks with Baby Joya while
living with T1D on New Years Eve 2019
* The emotions that can come after pregnancy loss and the emotional
labor of consoling others while processing your own feelings around
the loss
* How Cyrine turned her loss into a love for advocacy and helping other
women with diabetes so they wouldn’t have to go through what she did
* The importance of listening to your intuition and your body and how
advocating for yourself can really make the difference.
* The moment that made Cyrine open up about losing Baby Joya
* How she attempted to prepare herself for the journey of being a mom
even after loss
* Cyrine’s Surprise Rainbow baby: Fadel!
* What Health Care Professionals can do, and what Cyrine wished her
doctor would’ve done differently
* How differently she handled the second pregnancy differently after a
hard learning experience
* Advice for partners of a person with diabetes going thru pregnancy
loss
* Normalizing pregnancy loss and giving women their power back in
making their own autonomous reproductive health decisions
* Follow Cyrine for more over on Instagram @cyrinecando and if you’re
looking for support, check out the link in her bio.
49 min
November 15, 2023 Episode 257 - Rob & Eritrea, November 2023
We interrupt this month’s programming of our Women’s Health Episode for
NDAM to bring you a new episode of the Rob and Eritrea show! In this
episode Rob and Eritrea catch up on:
* Eritrea’s fourth NDAM on the DDT team
* Rob’s NDAM thread
* Our ongoing Women’s Health Series, the lack of online
resources/conversations and why we’re digging more into it
* Diabetes technology has come so far: some young people haven’t ever
even pricked their fingers
* Having a victim mindset vs a growth mindset as a person living with
diabetes.
* NDAM and the hyperactivity of the community
* Rob’s continued journey on 780G and letting his system do its thang
* Eritrea’s travel to EASD, Germany, The Netherlands and Greece
* The difficulty of getting yourself additional supplies once you’ve
run through all your extra diabetes gear and the cost of doing so
* The escalation of violence in Palestine
* Eritrea’s growing frustration and personal pain in being a displaced
person watching others continue to be displaced
* Rob and Eritrea discuss being advocates while still trying to be real
people living “normal lives”
* The process of living through grief while still trying to exist in
the day-to-day
56 min
November 08, 2023 Episode 256 - Dr. Sarit Polsky, Women's Health Series: Diabetes, Menstruation, and Pregnancy
On this special episode of Diabetics Doing Things, Rob and Eritrea tackle
episode two of our Women’s Health Series for National Diabetes Awareness
Month. The team interviews Dr. Sarit Polsky, Director of the Women’s Health
Clinic at the Barbara Diabetes Center. This episode explores: -
* How she became a subject matter expert in Women’s Health and Diabetes
* The research and experiences that fueled her passion to Women’s
Health and Endocrinology
* Eritrea’s experience having her period for 18 days
* How menstruation impacts blood sugar levels with Type One diabetes
* The phases of menstruation and how they impact diabetes as well as
temp rates that can be set with CGM/Pump technology
* How your body’s insulin needs can change based of what phase of life
you are currently in (menstruating, pregnancy, menopausal, etc)
* Defining what the goal of your life is while menstruating, whether
its trying to get pregnant or avoiding pregnancy
* The most important thing to do in pregnancy with diabetes can be
planning ahead
* All the important planning and work that is valuable when considering
pregnancy with your healthcare care provider.
* Your diabetes pregnancy team and what it should look like
* The main diabetes headline “ yes you can do anything - but you need
help”
* Pregnancy and Diabetes Stigma; how modern medicine has debunked much
of it
* How to best support your partner if you are someone without diabetes
* Hyperemesis and Diabetes, how difficult that can be
* Dr. Polsky article links -
https://diatribe.org/managing-your-glucose-and-using-continuous-glucose-monitor-during-pregnancy
https://diatribe.org/need-automated-insulin-delivery-systems-during-pregnancy-women-type-1-diabetes
44 min
November 01, 2023 Episode 255 - Dawn Adams, Women's Health Series: Diabetes, Pregnancy and Postnatal Care
It’s another National Diabetes Awareness Month, so you know what that means
- A NEW SERIES. Over the next four episodes, Rob and Eritrea will have
conversations with women's health experts in Diabetics Doing Things’
Women’s Health Series.
For Episode One of this series, we were thrilled to chat with Dawn Adams,
PhD student, midwife, diabetes advocate, and mother of FOUR! The team
talked about
* Dawn’s diagnosis in 1993 with a symptom we hadn’t yet heard of:
bloody palms
* Being told she would never get pregnant because of diabetes
* Getting pregnant unexpectedly and being told that pregnancy with
diabetes would probably not result in a good outcome
o Being warned to only have two children; she had four!
* A career shift into midwifery after becoming a mom with T1D
* Understanding why women with diabetes have to see their doctor much
more often than women living without diabetes
* How far we’ve come: meters used to take five minutes to give a
reading!
* Diabetes and pregnancy isn’t neccesarily the pretty picture Instagram
and social media paint it to be
* BEATING THE FINAL BOSS: The fourth trimester and the challenges that
come after baby arrives, even when baby and mom are healthy
* What support looks like from the community around you
* Life after baby arrival can be hard: make space for the difficult
moments as much as we cherish the good moments
* Advice for Partners: How can you better care for your spouse who is
living with diabetes after they birthed a child?
* Mentioned: The HAPO Trial -
https://www.2minutemedicine.com/the-hapo-trial-hyperglycemia-and-adverse-pregnancy-outcomes-classics-series/#:~:text=This
landmark study demonstrated that,risk of adverse pregnancy outcomes.
Find Dawn on IG @T1dawnie
54 min
October 25, 2023 Episode 254 - Michael Castagna, CEO of MannKind Corporation
It’s not often that we get to talk to the partners that help us to be able
to create this podcast. On this episode, Rob talks to the CEO of MannKind
Corporation, Michael Castagna. They discuss:
* Being a doctor of pharmacy and then getting an MBA at a top-tier
school
* Working on the HIV drug that became the first once-a-day one pill
regimen
* Becoming a CEO of a pharma company could expand his ability to help
more people
* Having doubts in self-confidence from being a kid who grew up in
poverty
* Being an expert in two fields
* Inhaled insulin still not being widely known
* Becoming a patient himself
* The legacy of Alfred Mann and the continued mission to help patients
* Mission to help patients vs. the money going to middlemen
* What’s coming up for MannKind in 2024
o More tools and options for patients
Like he said in the episode, if you have access issues - you can get help
here to find a doctor or you can email him directly at
[email protected]
42 min
October 20, 2023 Episode 253 - Mohammed Seyam, MD - T1D, Diabetes Advocate & Educator
We are lucky at Diabetics Doing Things to have friends all over the globe.
We are very lucky to have friend of the pod, Mohammed Seyam, on this
episode. Mohammed has previously done an IG takeover for Diabetics Doing
Things, and has written a blog, which you can read here for a perspective
of Gaza in 2020.
With Gaza under siege, we felt it was important time to bring him back.
Rob and Eritrea talk to Mohammed about:
* Diabetes in the Gaza Strip with limited resources and limited support
* The perception of diabetes in the Arab community
o and the pledge to end diabetes stigma and misinformation
* The fear of being a burden that happens to people in all cultures
* The connection of the diabetes community that transcends culture and
background
* His diagnosis story
* Finding the passion for advocacy, changing systems, and not just
being a “normal clinical doctor”
* Growing up in Gaza without access to diabetes technology or supplies
o The challenge of storing insulin with frequent power cuts
o The choice between food and medicine
o Stress and lack of consistency when managing diabetes
* Understanding that anyone of us could be in a moment of crisis, and
compassion is crucial
* The current situation in Palestine and how to help
o http://www.diabeteshumanitarianaidcoalition.org/
Thank you to Mohammed for reminding us that positivity shines in the
darkest of moments.
56 min
October 18, 2023 Episode 252 - Dr. Ananta Addala, D.O. - Pediatric Endocrinology Specialist
While we often feature the stories of people living with diabetes, our
guest for this episode Dr. Ananta Addala makes a big impact on the world of
diabetes. Dr. Ananta Addala is a pediatric endocrinologist and physician
scientist at Stanford University addressing disparities in pediatric type 1
diabetes management and outcomes.
Eritrea and Rob talk to Dr. Addala about:
* Dr. Addala and Eritrea’s first meet
* Her origin story and path to becoming a doctor
* Studying inequities and social barriers
* Choosing endocrinology as a focus
* Working in public health
* The system-level differences in care for black and brown populations
* BEAD Study: Building the Evidence to Address Disparities
* Building resilient systems so people don’t have to be
* Advice for building relationships with your care team
Find out more about the studies @AddalaLab on X and IG.
To participate in BEAD-T1D, fill out the Survey. Para participar en
BEAD-T1D, complete la encuesta.
54 min

About Diabetics Doing Things Podcast

From the publisher's feed

Hosted by T1D Rob Howe, Diabetics Doing Things tells amazing stories of people with diabetes from across the globe, digging deep into everything it takes to Live Well with Diabetes and sharing…