Welcome to Double Rare, where we delve into the extraordinary journey of a family facing the unimaginable. I'm Katie, and in this inaugural episode, we'll embark on a deeply personal exploration of resilience, hope, and the bonds that unite us in the face of adversity. Join me as I share the remarkable story of my son's battle with not one, but two ultra-rare diseases, intertwined with my own journey navigating a rare condition. Together, we'll unravel the threads of our shared experiences, shedding light on the challenges, triumphs, and the profound lessons learned along the way. This is more than a podcast; it's a testament to the power of love, courage, and the unwavering spirit to defy the odds. This is our story, and I invite you to join us on this extraordinary journey."

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