Down to My Last Spoon

Camilla is a 23 year old full time student from Denmark. In this episode we dive into Camilla's diagnosis story and the differences in healthcare from America to Denmark. Camilla has been living with Rheumatoid Arthritis for over 8 years but only received a diagnosis in February. Tune in to hear her story!!!

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In this episode Selina and I joke around and go over bad medical advice. Tune in for a break in the regular content and enjoy something funny.

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Britt was initially diagnosed with chronic fatigue syndrome but after years of symptoms this year she was finally diagnosed with Lyme disease. It was a long journey, Britt was told she was mentally ill and should not attend college, that she should essentially give up on her dreams. Tenaciously, Britt persisted. She moved away, started taking care of herself and when she had done everything doctors told her to she insisted on finding answers. We touch on health anxiety, not being taken seriously, sexism from doctors and the stigma around pain. If you think you may have Lyme disease please research Lyme literate specialists in your area. Tune in to hear Britt's journey with Lyme disease.

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In today's episode Brittany recounts her first symptom of  persistent cold hands and feet and Ashlyn can't remember one of the most common tests that diagnosed her own RA. (Anti CCP, Lol) Would it really be an episode of DTMLS without a little brain fog? After losing 70 lbs her cold hands and feet were attributed to being thin. She lost the weight and developed several food allergies, began to bloat regularly and felt generally uncomfortable. She visited with a GI who tested her for SIBO, this came back positive and then began her journey of gathering diagnoses. We learn about her time as a lawyer as her health began to dwindle she was unable to focus or deliver the quality of work her firm was expecting out of her also, her experience with dismissive and genderizing doctors. Tune in to hear us go through the lows and the highs of Brittany's journey.

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One day in 1999 Shelia had a sudden onset of severe pain in the rectum, by the end of that day she was in surgery to remove a very large abscess that came out of nowhere very quickly. Symptoms persisted, she was dropping weight and was accused by a doctor of causing her own issues by making herself throw up to lose weight. In 2000 she was finally given the diagnosis of Crohn's and ulcerative colitis. She spent 10 years on remicade which she can no longer take. We discuss her battle with this disease that has been going on over a decade, including the dismissal and pure negligence from doctors she endured. Shelia is making the best of her situation today despite almost losing her life on an operating table. Tune in to hear her story!

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Pauline started experiencing numbness in her leg that lasted for two weeks. Her doctor and herself assumed it was a pinched nerve. Years passed and her health began to decline, she felt sick without being sick and had severe fatigue that she had not felt before. It wasn't until she woke up one morning  almost completely paralyzed that she acknowledged something was seriously wrong. We discuss the fact most of us are ignorant about chronic illness until we have one and it is sometimes hard to accept that it is coming on. Especially with societies view still being somewhat taboo on chronic illness as well. Tune in to hear the full story!

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Elisha is a 25 year old who has been battling Lyme disease and other chronic illness. It all started with a concussion when she was kicked in the head while she was playing soccer. She had many concussions growing up after that. She was misdiagnosed many times based on the comorbidities that  were occurring due to lyme disease. Elisha's story shines a light on the serious lack of medical knowledge about the disease and the difficulty in diagnosing lyme. Despite her health declining rapidly Elisha was able to graduate college but then had to move back home because she was very sick. At one point her family and friends thought that they were going to lose her. Tune in to hear Elisha's chronic illness story.

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.Emmely is a 44 year old chronic illness warrior and blogger, she was diagnosed with Rheumatoid Arthritis with an overlap of reynaud's. She also has type 2 diabetes and fibromyalgia. In 2000 Emmely was driving home and forgot where she was going, when she got home she couldnt say anything other than eight eleven. She brushed it off as stress until symptoms started progressing again. Emmely tells us about her long journey and accumulating list of diagnoses, being brushed off by doctors and dealing with the all too common "anxiety" diagnosis for her mystery illness. . Emmely dives into everything leading up to the diagnosis and her feelings throughout the process. She shares about her treatment options and dealing with being allergic to several of them. Her and her boyfriend, who also has a chronic illness, are now traveling and blogging together about their experiences. Go check out Emmely at https://colorfulchaos.blog/

Support the podcast by purchasing MERCH AND SUBSCRIBING! https://teespring.com/stores/down-to-my-last-spoonInstagram: @downtomylastspoon Twitter: @Dwn2MyLastSpoon Facebook: www.facebook.com/downtomylastspoonPatreon:  https://www.patreon.com/DowntoMyLastSpoonContact me: [email protected]