"I would like genomics to be more spoken about. There's still a concern that genomics is going to be used to get rid of certain types of disorders, but it has an enormous potential to make everyone's lives better. Understanding genomics is a really important thing."

Driven by his infant daughter's rare form of epilepsy, Charlie established an international collaboration to investigate with new technology how genetics might be affecting her and other children with severe epilepsy.

Charlie Steward is a passionate patient advocate thanks to where life has led him and his family - starting as an academic researcher in genomics and then, after his children were born, becoming a Patient Advocacy and Engagement Lead at Congenica, ideally putting him in a position to bridge the gap between research and patients.