DSACO: Up for Discussion

Middle school can be a time of major transitions—socially, emotionally, and academically—for any student. For families of children with Down syndrome, this stage may come with new questions, challenges, and opportunities for advocacy.

In this episode, Kathy Trout and Sarah Soell are back to talk all things middle school—from class changes and lockers to growing independence and shifting support needs. They share insights on how to best prepare for the middle school years, what to expect, and how DSACO is here to help every step of the way.

Whether you're a parent, educator, or self-advocate, this conversation offers encouragement, practical advice, and resources to help you navigate this exciting chapter with confidence.

In This Episode, We Cover:

• What to expect during the middle school transition
• Supporting independence and building life skills
• Navigating social dynamics and friendships
• Adjusting IEPs and advocating in a new environment
• DSACO programs and resources for middle school families

In this episode of DSACO: Up for Discussion, we're talking all things Down Syndrome Festival & 5K! Whether you're a long-time supporter or brand new to the event, this episode will get you excited for the best day ever.

We sit down with Leslee Boswell, DSACO's Executive Director, to talk about the heart, history, and impact behind this incredible day. From family teams and custom shirts to the inclusive energy that brings thousands together — it's more than just a run, it's a celebration of community, awareness, and advocacy.

1. Why do we host a 5K?
2. What’s the story behind the matching team shirts?
3. How does this event support individuals with Down syndrome?

All of that and more in today’s episode.

Tune in, get inspired, and get ready to register!

🔗 To learn more about the Down Syndrome Festival & 5K or to register your team, sign up for the race, or get involved, visit: dsfestivaland5k.com

In this episode, we sit down with Eilene Franks, a passionate mother and advocate, to explore the incredible impact of SoonerStart—Oklahoma’s early intervention program for infants and toddlers with developmental delays or disabilities. Eilene shares her personal journey with her son Hudson, who has Down syndrome, and how SoonerStart helped lay the foundation for his growth and success.

We discuss how the program works, who qualifies, and the life-changing benefits it provides for families across the state. Whether you're a new parent, a caregiver, or simply want to learn more about the resources available in Oklahoma, this episode offers both practical information and heartfelt inspiration.

Listen in to discover:

• What SoonerStart is and how it supports families
• Eilene’s personal experience navigating early intervention
• How to get started and what to expect from services
• Why early support can make a lifelong difference

To learn more about SoonerStart, visit https://oklahoma.gov/health/services/children-family-health/sooner-start.html

Tune in now and hear how early intervention can open doors and build brighter futures.

In this episode, hosts Sarah Soell and Kathy Trout take a closer look at medical diagnoses commonly associated with individuals with Down syndrome. This conversation isn’t meant to alarm but to empower families, caregivers, and advocates with knowledge about what to watch for and how to better support their loved ones throughout life.

A special focus of this episode highlights the groundbreaking INCLUDE Project (Investigation of Co-occurring conditions across the Lifespan to Understand Down syndrome) — a national research effort that is transforming how we understand and address medical conditions impacting individuals with Down syndrome.

Launched in 2018 at the direction of Congress, the INCLUDE Project supports vital research into conditions such as:

• Alzheimer's disease and dementia
• Autism
• Cataracts
• Celiac disease
• Congenital heart disease
• Diabetes

The project emphasizes the critical need to include individuals with Down syndrome in clinical trials, ensuring that research and treatments are informed by their unique needs.

Key Takeaways:

• Common medical diagnoses associated with Down syndrome
• How families can be proactive in monitoring health
• The role and importance of the INCLUDE Project
• How clinical trials can drive better outcomes for the Down syndrome community

Whether you're a parent, educator, healthcare provider, or advocate, this episode provides valuable insights into the evolving landscape of medical care and research for individuals with Down syndrome.

Links & Resources Mentioned:

• Learn more about the INCLUDE Project through the NIH INCLUDE Project website
• More DSACO resources: www.dsaco.org
• Have ideas for future podcast topics? Email us at [email protected]!

Episode Summary:

In this episode of Up for Discussion, we're joined by Lucia to break down what it means to "start the clock" when it comes to IEPs (Individualized Education Plans). From initial evaluations to eligibility timelines, Lucia helps parents, caregivers, and educators understand the critical first steps in the special education process. This episode is especially helpful for anyone navigating the Oklahoma public school system and looking to advocate effectively for a student with disabilities.

Key Topics Covered:

• What does “starting the clock” mean in special education?
• How and when schools must respond to a parent’s evaluation request
• Key timelines for evaluations and IEP development
• What parents should know about their rights and responsibilities
• Tips from Lucia on how to stay organized and informed

Resources Mentioned:

• Oklahoma Special Education Evaluation & Eligibility Handbook (2024) https://oklahoma.gov/content/dam/ok/en/osde/documents/services/special-education/Final%20Evaluation%20Eligibility%20Handbook%20v2.pdf → This guide explains how schools determine if a student qualifies for special education services.
• Oklahoma Special Education Policies & Procedures Manual (August 2024) https://oklahoma.gov/content/dam/ok/en/osde/documents/services/special-education/Final%20version%20Policies%20Procedures%20August%202024%20V2.pdf → This manual outlines the legal framework for special education in Oklahoma, including timelines and parental rights.

In this episode of Up for Discussion, we’re joined by Rylee, DSACO’s Program Coordinator, to explore the many ways DSACO supports individuals with Down syndrome and their families across Central Oklahoma. From educational workshops and new parent outreach to adult programs and inclusive community events, Rylee shares how DSACO empowers families through action, advocacy, and connection. Whether you’re new to DSACO or a longtime supporter, this conversation will give you a deeper look into the heart of our mission.

In this episode, Sarah and Kathy break down one of the most asked-about topics in the disability services world — the waiver.

If you’ve ever felt overwhelmed trying to understand what the waiver is, who qualifies, or how to even begin the application process… you’re not alone! We’re here to simplify it and offer helpful insights for families just starting out or those waiting on services.

We’ll cover:

• What the waiver actually is (and what it’s not)
• Who the waiver is designed to support
• What kinds of services and supports it can offer
• How the waiting list works in Oklahoma
• Where to start if you’re new to the process
• Tips for staying organized while waiting

Reminder: This episode is just the beginning — we won’t overload you with too much information at once. Think of it as your intro into a bigger conversation we’ll continue in future episodes.

In this episode of Elementary Adventures, Sarah Soell and Kathy Trout open up about the real-life challenges and heartfelt moments of raising a child with Down syndrome through school. From navigating IEP meetings and social struggles to celebrating small victories, they share personal stories, helpful tips, and encouragement for families walking a similar path.

Welcome to the very first episode of DSACO: Up for Discussion! In this episode, hosts Sarah Soell, Executive Director of DSACO, and Kathy Trout, Office Assistant, take you on a personal journey, sharing their experiences as parents of a child with Down syndrome.

From the moment they received the diagnosis to navigating emotions, challenges, and the incredible joy that followed, this episode is all about real stories, raw emotions, and the power of community. Whether you’re a new parent, a family member, or someone looking to learn more about Down syndrome, this episode is for you.

What You’ll Hear in This Episode:

• Sarah and Kathy’s personal stories of learning their child has Down syndrome

• The emotions that come with a diagnosis—fear, uncertainty, and love

• The biggest lessons they’ve learned on this journey

• Why advocacy, education, and community support matter more than ever

• How DSACO is here to support families every step of the way

Join the Conversation: Have questions or topics you’d love to hear on the podcast? We’d love to hear from you! Send us an email at [email protected] or visit dsaco.org to learn more about our programs and resources.