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On the tenth anniversary of a viral media campaign for access to an unapproved drug that extended a boy’s life, bioethicist Arthur Caplan reflected in an interview with The BioCentury Show on how the experience reshaped public views, corporate policies and legal requirements associated with providing access to unapproved therapies.
The wide-ranging conversation also touched on the need for scientists to receive communications training that could help reduce the impacts of medical disinformation, Caplan’s concerns about the lack of transparency about Neuralink Corp.’s experimental implantable brain chip, and the benefits of teaching biopharma CEOs about ethics.

View full story: https://www.biocentury.com/article/651502

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00:00 - Intro
01:12 - Josh Hardy & Compassionate Use
13:27 - Ethics Training for the C-suite
16:16 - FDA
23:44 - Neuralink & Transparency