Epilepsy Sparks Insights

By Torie Robinson

What's Epilepsy Sparks Insights about?

Led by Torie Robinson, ”Epilepsy Sparks Insights” is an educational podcast to spark interest in and bridge the gap between epilepsy patients, clinicians, scientists, geneticists – and the world.

Follow on Twitter: @TorieRobinson10 & @EpilepsySparks. Visit www.torierobinson.com & www.epilepsysparks.com.

**NOT FOR CLINICAL OR PATIENT DECISION MAKING**

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Epilepsy Sparks Insights episodes:

06.27.2024
Our Need To Manage Stress - Neil Shah
Stress and anxiety levels are incredibly high amongst the population of those with an epilepsy and are commonly seizure triggers. Neil Shah of the Stress Management Society speaks of stress in today's society, the importance of recognising and addressing it,...
06.20.2024
Neurologists Recognising & Addressing Symptoms Other Than Seizures - Claude Steriade
Learn of when an Autoimmune-Associated Epilepsy can onset, potential causes, and the needs of people affected - other than seizure control! All in part 2 of 2 with epileptologist Claude Steriade from⁠ NYU Langone Health Epilepsy Center. ------------------------------------------
06.13.2024
Understanding & Treating Autoimmune-Associated Epilepsy - Claude Steriade, NYU Langone Health, USA
Hear about Autoimmune-Associated Epilepsy and the intersection between epilepsy and immunology - in part 1 of 2 with epileptologist Claude Steriade from NYU Langone Health Epilepsy Center! Claude explains the causes, mechanisms, and impacts of Autoimmune-Associated Epilepsy upon people's lives, plus,...
06.06.2024
Huge Advances In EEG Monitoring & Analysis - Mark Cook
Mark Cook and Torie discuss the significant improvements in epilepsy treatments over the past few decades - thanks to technologies like MRI and genetics. Mark also explores the issue of overreporting and underreporting of seizures by patients and the potential...
05.30.2024
Exploring The Links Between Sleep & Epilepsy: CASTLE - Deb Pal & Paul Gringras
Deb Pal and Paul Gringras discuss their research on the links between sleep and seizures in epilepsy; sharing their work on the CASTLE project, which aims to improve sleep and Quality of Life for children, young people, and families affected....
05.23.2024
Epilepsy: Managing Your Metabolism To Stabilise Your Brain - Graham Phillips
What should someone do if interested in adopting the ketogenic diet or looking further into "metabolic psychiatry"? Hear about sacrifices, benefits, weight loss, constipation, nutrition, and having the right support. All in part 3 of 3 with the “pharmacist who...
05.16.2024
Epilepsy, Mood, Metabolism, And The Ketogenic Diet! - Graham Phillips
Learn of the evolution of the ketogenic diet, metabolic psychiatry, the treatment overlap between different diagnoses (e.g. the epilepsies and mood disorders), recommended reads, and the cognitive dissonance of many regarding the ketogenic diet. This is part 2 of 3...
05.09.2024
The Ketogenic Diet - Graham Phillips
The Pharmacist Who Gave Up Drugs introduces us to the impacts of the western diet on our health, quality of life, life expectancy - and the potential benefits of the ketogenic diet - in part 1 of 3: Graham Phillips. ------------------------------------------
05.02.2024
Pediatric Epilepsy Research Consortium - M. Scott Perry
M. Scott Perry explains how Epilepsy Researchers require intros and support to be the best that they can be and initiate, manage, and see results. It’s possible through the Pediatric Epilepsy Research Consortium (PERC). ------------------------------------------
04.25.2024
Preventing Seizures Using Stem Cells?! - David Spencer
Hear about research into a new way of inhibiting temporal lobe seizure activity through GABAergic interneuron cell therapy! With epileptologist and neuroscientist David Spencer. ------------------------------------------
04.18.2024
Mistaking Epilepsy For Menopause?! - Jacqueline French
It's wild: when clinicians mistake an epilepsy (caused by a brain tumour!) for menopause! Or, when a parent doesn't believe that their daughter could have an epilepsy...! Why aren't organisations and governments promoting epilepsy awareness as well as they do...
04.17.2024
6th Dianalund International Conference on Epilepsy - Overlapping Clinical Phenotypes in Monogenic Epilepsies; Common Molecular Pathways? - Elena Gardella, Rikke Møller, Guido Rubboli
Hear about the one-of-a-kind 6th Dianalund International Conference on Epilepsy in May 2024 - with lead genetic clinicians and researchers Elena Gardella, Rikke Møller, and Guido Rubboli. ------------------------------------------
04.11.2024
Car Accidents Caused By Epilepsy! The Human Epilepsy Project - Jacqueline French
5% of a cohort* had at least 1 car accident (and up to 3) before their epilepsy diagnosis! Hear about the global Human Epilepsy Project by Jacqueline French and learn how seizures can present in so many different ways! *450 people ------------------------------------------
04.04.2024
Do Autism & Intellectual Disability Come With Epilepsy? - Vaishnav Krishnan
Do Autism & Intellectual Disability Come With Epilepsy? Learn of the Epilepsy, Autism and Intellectual Disability “triad” - studied by clinician scientist, epileptologist: Vaishnav Krishnan. ------------------------------------------
03.28.2024
Huge Seizure Reduction Through DBS (in LGS) - Linda Dalic
Learn of the huge reduction in seizures amongst adults with the epilepsy Lennox-Gastaut Syndrome - as the result of DBS! With Linda Dalic. ------------------------------------------
03.26.2024
Purple Day Openness! - Cassidy Megan
Hear about the origins of Purple Day, its purpose, the positivity and how to make a difference! With founder: Cassidy Megan!! We talk about how Purple Day was founded, Cassidy's personal epilepsy diagnosis, school, stigma, the diversities of the epilepsies,...
03.21.2024
Brain, Skull, And Neck Implants For Epilepsy?! - Anna Bochenek
Brain, Skull, And Neck Implants For Epilepsy?! What's the epilepsy treatment called VNS? Or DBS? Or RNS?! Learn about these cool neuromodulation treatments that can help to prevent and/or control epileptic seizures (!) with star epileptologist Anna Bochenek. ------------------------------------------
03.14.2024
Epilepsy Caused by Brain Tumours - Kate Connor
Brain tumours vary greatly and 30% of them cause an epilepsy to develop - hence the name Brain Tumour Related Epilepsy. Hear more for Brain Tumour Awareness Month from cancer neuroscientist: Kate Connor. ------------------------------------------
03.07.2024
Increasing Neuronal Excitement To Treat An Epilepsy?! - Jean-François Perrier
Surprising and exciting rare epilepsy (STXBP1) research discoveries that have led to the enhancement of excitatory synapses as a proposed treatment - by Jean-François Perrier of the University of Copenhagen, Denmark. ------------------------------------------
02.29.2024
Seizure Forecasting Using AI - Daniel Goldenholz
Could we accurately predict epileptic seizures using AI? How accurate do predictions need to be? How cool to use do devices need to be?! Could seizure forecasting reduce injuries, decrease mortality, and improve people’s quality of life? Hear all about...
02.22.2024
AI & Epilepsy: Ethics & Biases - Daniel Goldenholz
How useful is and can AI be in helping people with an epilepsy? How safe it it? What are the biases to be challenged and the ethics to be followed? Hear answers from Daniel Goldenholz of Harvard Beth Israel Deaconess...
02.15.2024
Epilepsy Is A Symptom! - Reetta Kälviäinen
“Epilepsy is not only a disease, epilepsy is a symptom of a brain disease. And brain health is everything, belongs to everybody!” Learn more of from and hear of the exciting, upcoming Kuopio Epilepsy Symposium in March 2024 - with...
02.12.2024
International Epilepsy Day!! - Helen Cross
Hear all about International Epilepsy Day, the needs of those affected by the epilepsies, eradicating stigma, treating and preventing epilepsy, and hope for the future; all with global lead Helen Cross. ------------------------------------------
02.08.2024
The Real Needs of Children With Epilepsy - Kirsten McHale
For Children's Mental Health Week meet Kirsten McHale who shares the complex needs of many children with an epilepsy, how their needs are not being met (in the UK), and how services must be improved. ------------------------------------------
02.01.2024
Why Aren’t More People Having Epilepsy Surgery? - Luke Tomycz
Why are only a small percentage who’d benefit from epilepsy surgery getting it? Hear from neurosurgeon Luke Tomycz of the Epilepsy Institute of New Jersey. ------------------------------------------
01.25.2024
How Do You Measure Epilepsy Surgery Success? Engel Class? - Luke Tomycz
Hear about ways of measuring epilepsy surgery success, risks, and managing expectations. With neurosurgeon Luke Tomycz. -----------------------------------------
01.18.2024
The Safety & Efficacy Of Epilepsy Surgery - Luke Tomycz
Learn about epilepsy surgery and potential benefits and risks - from epilepsy neurosurgeon of the Epilepsy Institute of New Jersey: Luke Tomycz. ------------------------------------------
01.11.2024
Brain Tumour-Related Epilepsy - Mark Cunningham
Brain tumours commonly cause epilepsy. Learn more about research into this and Brain Tumour-Related Epilepsy, today with Mark Cunningham of Trinity College Dublin. ------------------------------------------
01.04.2024
SUDEP Caused By Lack Of Air Hunger? - Brian Dlouhy
Could the amygdala be responsible for lack of air hunger and SUDEP? Learn about the research from neurosurgeon and researcher Brian Dlouhy. ------------------------------------------
12.28.2023
Being An Epilepsy Nurse - Neil Williamson
Epilepsy Specialist Nurses provide a key part of the care package for people with an epilepsy. Hear of the value of flexibility and going above and beyond required, by Neil Williamson. ------------------------------------------
12.21.2023
A Cancer Drug That Prevents Seizures - Pablo Casillas-Espinosa
A compound designed to treat prostate cancer appears to be effective in treating temporal lobe epilepsy in rodents - including the cognitive and psychiatric aspects so commonly accompanying seizures! Hear more from Pablo Casillas-Espinosa! ------------------------------------------
12.14.2023
Seizure Forecasting Using Machine Learning & AI - Ben Brinkmann
Hear about developments in seizure forecasting (using AI & machine learning), the benefits to people with epilepsy, trust, and managing expectations. With Clinical Support Scientist at the Mayo Clinic: Ben Brinkmann. ------------------------------------------
12.07.2023
The Latest Ways To Scan Your Brain! - Ben Brinkmann
Exciting neuroimaging techniques are getting out there to help more and more people become seizure-free. Hear more about the latest from clinical support scientist Ben Brinkmann. ------------------------------------------
11.30.2023
What Are MEG Brain Scans? - Stefan Rampp
Magnetoencephalographies - or MEGs - are brain scans with a very high sensitivity and are a distinct complement to EEG and MRI scans in preparation for epilepsy surgery. Hear all about them now from the expert in biosignal analysis: Stefan...
11.23.2023
Epilepsy Via Somatic Gene Mutations - Karl Martin Klein
Hear how somatic gene mutations can lead to an epilepsy and how this is being researched by lead clinician scientist of the University of Calgary: Karl Martin Klein. -----------------------------------------
11.20.2023
Epilepsy: The Israel-Palestine Crisis - Omar Danoun
Hear how the conflict in Palestine is impacting the thousands people with epilepsy in Palestine - but how support from around the world is making a difference - with our return-guest, epileptologist Omar Danoun د. عمر دنون.. ------------------------------------------
11.16.2023
Epilepsy Specialist Pharmacists: The Value - Trudy Thomas
Epilepsy Specialist Pharmacist Trudy Thomas explains the incredible value of an Epilepsy Specialist Pharmacist, managing “A wonky stool”, and how and why other non-specialist pharmacists should learn more about the epilepsies. -----------------------------------------
11.09.2023
Epilepsy Awareness Month - Be Involved! - Meriem Bensalem-Owen
Raising awareness of epilepsy amongst everyone for Epilepsy Awareness Month - through events and just chatting! With epileptologist Meriem Bensalem-Owen. ------------------------------------------
11.02.2023
Epilepsy - Fundraising for Care - Romania - Eugenia Roza
Learn how funds are generated for the care of children with an epilepsy, fun times, and how it’s crucial to work with the whole family - with peadiatric neurologist and secretary of ILAE YES, Eugenia Roza, Romania. ------------------------------------------
10.26.2023
Biochemistry In Epilepsy Research - Lafora Disease - Matt Gentry
Biochemist Matt Gentry shares with us his extensive research into the ultra-rare epilepsy Lafora Disease, his motivation from working with families, the brilliant work of the Lafora Disease charity Chelsea’s Hope, and support from both the NIH and the Chan...
10.19.2023
Saving Lives: SUDEP Action Day - Sammy Ashby
Learn about SUDEP (Sudden Unexpected Death in Epilepsy), SUDEP Action Day (18th Oct 2023), minimising risks, and saving lives! With Sammy Ashby of SUDEP Action. ------------------------------------------
10.12.2023
Nature: A “Treatment” For Epilepsy? - Elisabeth Doran
Exposure to nature: plants, water noises, and more, are proven to be of distinct benefit to human health. Epileptologist, Elisabeth Doran from St. James’s Hospital in Ireland explains the benefits of exposure to nature for those with an epilepsy. ------------------------------------------
10.05.2023
Genetic Epilepsy - Lafora Disease - Challenges & Hopes - Berge Minassian
Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected, with Berge Minassian. ------------------------------------------
10.03.2023
Exciting Research Into The Ultra-Rare Epilepsy: Lafora Disease - Jordi Duran
Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the exciting research taking place to try and improve and save the lives of the children affected. With global lead researcher Jordi Duran. ------------------------------------------
10.01.2023
Ultra-Rare Epilepsy: Lafora Disease - José Serratosa
Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected. With lead epileptologist and researcher José Serratosa of the Hospital Universitario Fundación Jiménez Díaz, Madrid,...
09.28.2023
Status Epilepticus: Complexities & Outcomes - Christoph Beier
Hear of research into complex refractory & super refractory status epilepticus; treatments, outcomes, & how to improve each - with Christoph Beier. ------------------------------------------
09.21.2023
Seizure Propagation: Identifying How Seizures Spread - Christina Maher
Learn of studies on the accurate prediction of seizure propagation and how identifying this for each person with an epilepsy can assist in more effective treatment - e.g. in presurgical workup, and more - all with biomedical engineer and neuroscientist...
09.14.2023
Focal Epilepsy Onset Later In Life - With Origins In Childhood - Jacob Pellinen
Signs of focal epilepsy before the seizures start: hear all about it from epileptologist Jacob Pellinen, who shares with us his research and results proving that people can experience things like depression or learning difficulties at school or work before...
09.07.2023
Epilepsy - Part Of An Autoimmune Disorder? - Lucas Gabriel Orellana
Did you know that seizures and epilepsy can be part of an autoimmune disorder? E.g. Lupus, Coeliac disease, or Crohn's disease? Hear all about it from neurologist & epilepsy specialist Lucas Gabriel Orellana. ----------------------------------------
08.31.2023
Epilepsy Stigma - Eradicating It In Latin America - Gabriela Reyes Valenzuela
Stigma is to be challenged through education. Gabriela Reyes Valenzuela, a peadiatric epileptologist from Argentina explains her invaluable training regarding epilepsy provided to influential community leaders. ------------------------------------------

What's Epilepsy Sparks Insights about?

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Epilepsy Sparks Insights episodes:

Our Need To Manage Stress - Neil Shah

Neurologists Recognising & Addressing Symptoms Other Than Seizures - Claude Steriade

Understanding & Treating Autoimmune-Associated Epilepsy - Claude Steriade, NYU Langone Health, USA

Huge Advances In EEG Monitoring & Analysis - Mark Cook

Exploring The Links Between Sleep & Epilepsy: CASTLE - Deb Pal & Paul Gringras

Epilepsy: Managing Your Metabolism To Stabilise Your Brain - Graham Phillips

Epilepsy, Mood, Metabolism, And The Ketogenic Diet! - Graham Phillips

The Ketogenic Diet - Graham Phillips

Pediatric Epilepsy Research Consortium - M. Scott Perry

Preventing Seizures Using Stem Cells?! - David Spencer

Mistaking Epilepsy For Menopause?! - Jacqueline French

6th Dianalund International Conference on Epilepsy - Overlapping Clinical Phenotypes in Monogenic Epilepsies; Common Molecular Pathways? - Elena Gardella, Rikke Møller, Guido Rubboli

Car Accidents Caused By Epilepsy! The Human Epilepsy Project - Jacqueline French

Do Autism & Intellectual Disability Come With Epilepsy? - Vaishnav Krishnan

Huge Seizure Reduction Through DBS (in LGS) - Linda Dalic

Purple Day Openness! - Cassidy Megan

Brain, Skull, And Neck Implants For Epilepsy?! - Anna Bochenek

Epilepsy Caused by Brain Tumours - Kate Connor

Increasing Neuronal Excitement To Treat An Epilepsy?! - Jean-François Perrier

Seizure Forecasting Using AI - Daniel Goldenholz

AI & Epilepsy: Ethics & Biases - Daniel Goldenholz

Epilepsy Is A Symptom! - Reetta Kälviäinen

International Epilepsy Day!! - Helen Cross

The Real Needs of Children With Epilepsy - Kirsten McHale

Why Aren’t More People Having Epilepsy Surgery? - Luke Tomycz

How Do You Measure Epilepsy Surgery Success? Engel Class? - Luke Tomycz

The Safety & Efficacy Of Epilepsy Surgery - Luke Tomycz

Brain Tumour-Related Epilepsy - Mark Cunningham

SUDEP Caused By Lack Of Air Hunger? - Brian Dlouhy

Being An Epilepsy Nurse - Neil Williamson

A Cancer Drug That Prevents Seizures - Pablo Casillas-Espinosa

Seizure Forecasting Using Machine Learning & AI - Ben Brinkmann

The Latest Ways To Scan Your Brain! - Ben Brinkmann

What Are MEG Brain Scans? - Stefan Rampp

Epilepsy Via Somatic Gene Mutations - Karl Martin Klein

Epilepsy: The Israel-Palestine Crisis - Omar Danoun

Epilepsy Specialist Pharmacists: The Value - Trudy Thomas

Epilepsy Awareness Month - Be Involved! - Meriem Bensalem-Owen

Epilepsy - Fundraising for Care - Romania - Eugenia Roza

Biochemistry In Epilepsy Research - Lafora Disease - Matt Gentry

Saving Lives: SUDEP Action Day - Sammy Ashby

Nature: A “Treatment” For Epilepsy? - Elisabeth Doran

Genetic Epilepsy - Lafora Disease - Challenges & Hopes - Berge Minassian

Exciting Research Into The Ultra-Rare Epilepsy: Lafora Disease - Jordi Duran

Ultra-Rare Epilepsy: Lafora Disease - José Serratosa

Status Epilepticus: Complexities & Outcomes - Christoph Beier

Seizure Propagation: Identifying How Seizures Spread - Christina Maher

Focal Epilepsy Onset Later In Life - With Origins In Childhood - Jacob Pellinen

Epilepsy - Part Of An Autoimmune Disorder? - Lucas Gabriel Orellana

Epilepsy Stigma - Eradicating It In Latin America - Gabriela Reyes Valenzuela

Other shows like Epilepsy Sparks Insights: