TMI Talk with Dr. Mary

Episode 46: Why Endometriosis Is Still Mismanaged & How We Can Do Better as Clinicians w Heather Guidone


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Heather Guidone joins us to help work through all of the noise surrounding endometrosis. 

She the Program Director of the Center for Endometriosis Care and a Board Certified professional health Advocate. She has focused on 'bench to beltway to bedside' efforts in endometriosis research funding and facilitation, legislation and policy reform, education, advocacy and activism, patient-centric care, and more for over thirty years; importantly, she is also someone who has struggled with the disease. 


What we will discuss: 


-Why the "retrograde menstruation" theory falls short


-Why birth control, pregnancy, and hysterectomy aren't  cures


-The key differences between ablation and excision surgery


-Why diagnosis requires skilled listening, imaging, and sometimes biopsy


-How trauma, chronic stress, and nervous system dysregulation can influence symptoms


-The critical role of patient autonomy, informed consent, and individualized care


-How to find a skilled excision surgeon and what questions to ask


-Non-surgical ways to manage endo symptoms (like PT, stress regulation, and nutrition)


Timeline:


00:00 Introduction to Endometriosis Mismanagement

00:28 Meet Heather Guidon: Advocate and Expert

00:59 Debunking Myths: Retrograde Menstruation and More

03:55 Understanding Endometriosis: Beyond Painful Periods

13:03 The Role of Trauma and Stress in Endometriosis

15:09 Patient-Centric Care and Informed Consent

28:18 Diagnosis and Treatment Options

40:05 Understanding Excision and Ablation

42:31 Challenges in Accessing Quality Care

46:09 Questions to Ask Your Provider

49:16 The Importance of Compassionate Care

54:05 Surgical and Non-Surgical Treatments

59:27 The Role of Hormonal Treatments

01:07:01 Endometriosis: A Multifactorial Approach

01:09:35 How to Reach Out for Help

01:13:40 Conclusion and Final Thoughts


You can learn more about Heather at:

https://www.centerforendo.com/

If you are a health or movement professional and want to stay in touch with future episodes, webinars, courses, events and more. Subscribe to my email list here

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TMI Talk with Dr. MaryBy Dr. Mary Grimberg

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