Episodes - The Bloodline with Blood Cancer United Podcast

Join us as we speak to Dr. Brady Stein, a clinical hematologist and researcher at the Northwestern University Feinberg School of Medicine in Chicago, IL. In this episode, Dr. Stein discusses the rare blood cancer, myelofibrosis (MF), which is a type of myeloproliferative neoplasms (MPNs). Hear about the unique characteristics of MF, how it develops, and the current and emerging treatments that give MF patients hope.

Mentioned on this episode: 

• Myelofibrosis
• Myeloproliferative Neoplasms
• ASH (American Society of Hematology)
• Pushing for a Diagnosis: A Polycythemia Vera (PV) Story
• Clinical Trial Support Center

Additional LLS Support Resources: 

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 
• LLS Advocacy
• LLS Myeloma Link

Support for this episode provided by AbbVie.

The post Under the MPN Umbrella: Exploring Myelofibrosis first appeared on The Bloodline with LLS.

Join us for our special series where we focus on adult child caregivers of a parent with cancer.  In this series we will be listening in on a conversation between a social worker and caregiver as they navigate the various stages of a parent’s cancer journey – diagnosis, treatment, the role reversal from child to parent caregiver, and post-treatment survivorship.

In the fourth episode of this series, Jennifer Bires, MSW, LCSW, OSW-C, will talk with caregiver, Rob Coles about the experience of caregiving for his stepfather through the survivorship stage of multiple myeloma.

Register at the link below.

Mentioned on this episode: 

• Myeloma
• Stem Cell Transplant
• Immunotherapy
• Caregiver support 

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Parent’s Cancer – Survivorship first appeared on The Bloodline with LLS.

Join us for our special series where we focus on adult child caregivers of a parent with cancer.  In this series we will be listening in on a conversation between a social worker and caregiver as they navigate the various stages of a parent’s cancer journey – diagnosis, treatment, the role reversal from child to parent caregiver, and post-treatment survivorship.

In the third episode of this series, Jennifer Bires, MSW, LCSW, OSW-C, will talk with caregiver, Rob Coles about the experience of caregiving for his stepfather through the role reversal stage of multiple myeloma.

Register at the link below.

Mentioned on this episode: 

• Myeloma
• Stem Cell Transplant
• Immunotherapy
• Caregiver support 

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Parent’s Cancer – Role Reversal first appeared on The Bloodline with LLS.

Join us as we speak to Dr. Mariam Nawas and Dr. Satyajit Kosuri from University of Chicago Medicine, about graft-vs-host disease (GVHD) and the Transplant Optimization Program (TOP). In this episode, we discuss stem cell transplants, how GVHD occurs and what can be done to manage and treat symptoms. The doctors also share how the TOP program at the University of Chicago Medicine utilizes multiple specialties to improve post-transplant success for patients over 50.   

Mentioned on this episode: 

• Stem Cell Transplant
• Graft-Vs-Host Disease
• Barnes and Loutit Mouse Leukemia Study  
• University of Chicago Medicine Cancer Center
• Transplant Optimization Program (TOP)
• Be The Match

Additional LLS Support Resources: 

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Clinical Trial Support Center
• Online chats 
• Young Adult Resources
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations

Support for this episode is provided by University of Chicago Medicine.

The post Transplant Support and Graft-Versus-Host-Disease (GVHD) first appeared on The Bloodline with LLS.

Join us for our special series where we focus on adult child caregivers of a parent with cancer.  In this series we will be listening in on a conversation between a social worker and caregiver as they navigate the various stages of a parent’s cancer journey – diagnosis, treatment, the role reversal from child to parent caregiver, and post-treatment survivorship.

In the second episode of this series, Jennifer Bires, MSW, LCSW, OSW-C, will talk with caregiver, Rob Coles about the experience of caregiving for his stepfather through the treatment stage of multiple myeloma.

Register at the link below.

Mentioned on this episode: 

• Myeloma
• Stem Cell Transplant
• Immunotherapy
• Caregiver support

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Parent’s Cancer – Treatment first appeared on The Bloodline with LLS.

Join us for our special series where we focus on adult child caregivers of a parent with cancer. In this series we will be listening in on a conversation between a social worker and caregiver as they navigate the various stages of a parent’s cancer journey – diagnosis, treatment, the role reversal from child to parent caregiver, and post-treatment survivorship.

In the first episode of this series, Jennifer Bires, MSW, LCSW, OSW-C, will talk with caregiver, Rob Coles about the experience of caregiving for his stepfather through the diagnosis stage of multiple myeloma.

Register at the link below.

Mentioned on this episode: 

• Myeloma
• Stem Cell Transplant
• Immunotherapy
• Caregiver support 

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Parent’s Cancer – Diagnosis first appeared on The Bloodline with LLS.

Join us in this next installment of our series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a patient and doctor. In this episode, we speak to Bryon Daily, a myeloma survivor and Dr. Scott Solomon from Northside Hospital in Atlanta, GA. Diagnosed in 2018, Bryon shares his experience living with myeloma after an autologous stem cell transplant. Bryon has also started working at LLS in our Myeloma Link Program where he is helping to close the healthcare disparity gap in communities of color. Dr. Solomon then delves deeper into myeloma treatments, and what is new on the horizon for myeloma treatments. He also discusses how clinical trials and having greater treatment options are providing hope to those diagnosed with myeloma. 

Mentioned on this episode: 

• Myeloma
• Bone Marrow Transplant
• Myeloma Link
• CAR T-cell Therapy
• Vaccines for Blood Cancer Patients
• LLS COVID-19 Antibody Research Study: Your Questions Answered

Additional LLS Support Resources: 

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Clinical Trial Support Center
• Online chats 
• Young Adult Resources
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations

Support for this episode provided by GlaxoSmithKline and Janssen Oncology Pharmaceutical Companies of Johnson & Johnson.

The post Patient-Doctor Perspectives: Hope for Myeloma Patients first appeared on The Bloodline with LLS.

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school.

In the fourth episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Dave Garcia about the experience of caregiving for his young son, Andy, through the post-treatment stage of acute myeloid leukemia (AML).

Mentioned on this episode: 

• Acute Myeloid Leukemia
• Caregiver support 

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Child’s Cancer – Survivorship first appeared on The Bloodline with LLS.

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school.

In the third episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Maggie Tappana about the experience of caregiving for her young son, Benjamin, through the schooling stage of acute lymphoblastic leukemia (ALL).

Mentioned on this episode: 

• Acute Lymphoblastic Leukemia (ALL)
• Caregiver support 
• Hopecam

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Child’s Cancer – Schooling first appeared on The Bloodline with LLS.

Join us as we speak to Lyneshia Johnson-Woodland, an internet radio show host, actress and comedian who was diagnosed with non-Hodgkin lymphoma in September 2020.  In this episode, Lyneshia shared how she was diagnosed with lymphoma and the difficult treatments she endured during the COVID-19 global pandemic. She also discussed the emotional impact of cancer and how she is appreciating this second chance at life.

Mentioned on the episode:

• Non-Hodgkin Lymphoma
• Black Women Connexting Communities
• UniverSoul Circus®

Additional LLS Support Resources:

• Information Specialists
• Clinical Trial Support Center
• Free telephone/web patient programs
• Free booklets
• LLS Young Adult Resources
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Pharmacyclics, An AbbVie Company & Janssen Biotech.

The post A New You: You Made It Through (NHL) first appeared on The Bloodline with LLS.