Episodes - The Bloodline with Blood Cancer United Podcast

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school.

In the second episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Maggie Tappana about the experience of caregiving for her young son, Benjamin, through the treatment stage of acute lymphoblastic leukemia (ALL).

Mentioned on this episode: 

• Acute Lymphoblastic Leukemia (ALL)
• Caregiver support 

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Child’s Cancer – Treatment first appeared on The Bloodline with LLS.

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school.

In the first episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Dave Garcia about the experience of caregiving for his young son, Andy, through the diagnosis stage of acute myeloid leukemia (AML).

Mentioned on this episode: 

• Acute Myeloid Leukemia
• Caregiver support 

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Child’s Cancer – Diagnosis first appeared on The Bloodline with LLS.

Join us as we speak to Erin Galyean, a pharmaceutical sales trainer, professional speaker, and published author.  In this episode, Erin tells us how, after losing her father to non-Hodgkin lymphoma and then helping care for her sister, who was diagnosed with the same disease 20 years later, she learned that family and friends who are not the primary caregiver can still become great patient advocates. Erin shares strategies on how to effectively advocate for a patient, the different roles that friends and family can play on the support team and how, even if you live far away from a loved one facing a cancer diagnosis, you can still make a difference.

Mentioned on the episode:

• Non-Hodgkin Lymphoma
• Badass Advocate: Becoming the Champion Your Seriously Ill Loved One Deserves
• Meal Train
• Five stages of grief and how to get through them: CNN Health

Additional LLS Support Resources: 

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Clinical Trial Support Center
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 
• LLS Advocacy
• LLS Myeloma Link

The post How to Become a Great Patient Advocate first appeared on The Bloodline with LLS.

Join us as we speak to Dr. Areej El-Jawahri, a physician researcher at Massachusetts General Hospital and Associate Professor of Medicine at Harvard Medical School. In this episode, Dr. El-Jawahri shares the wonderful benefits of palliative care for both blood cancer patients and their families. Often erroneously associated with hospice or end of life care, palliative care can be started at any point after diagnosis and has shown many benefits with being started early in treatment. In palliative care, the physical, emotional and cognitive challenges after a cancer diagnosis are addressed by a specialized team of providers, leading to a more comfortable experience through treatment and beyond.

Mentioned on the episode:

• Palliative Care

Additional LLS Support Resources: 

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Clinical Trial Support Center
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 
• LLS Advocacy
• LLS Myeloma Link

Support for this episode provided by Bristol Myers Squibb; Genentech, Inc. & Biogen; Pharmacyclics LLC, An AbbVie Company & Janssen Biotech, Inc.

The post How to Address Physical, Emotional and Cognitive Challenges of Cancer with Palliative Care first appeared on The Bloodline with LLS.

Join us as we speak to Dr. Eunice Wang, the Chief of Leukemia Service and Professor of Oncology at Roswell Park Comprehensive Cancer Center in Buffalo, NY. In this episode, Dr. Wang delves into the rare blood cancer, blastic plasmacytoid dendritic cell neoplasm (BPDCN). Usually identified by characteristic deep purple lesions, oncologists continue to raise awareness of this rare diagnosis, as swift referral and treatment usually leads to better outcomes. After being universally identified as BPDCN by World Health Organization (WHO) in 2018, clinical trials and CAR T-cell therapies have brought new hope to BPDCN patients.

Mentioned on this episode: 

• Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN)
• Why Roswell Park for Leukemia & Blood Cancers 
• Stem Cell Transplantation
• CAR T-cell Therapy
• Clinical Trial Support Center

Additional LLS Support Resources: 

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 
• LLS Advocacy
• LLS Myeloma Link

Support for this episode provided by ImmunoGen.

The post Hope for Rare Cancers: Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN) first appeared on The Bloodline with LLS.

Join us in this next installment of our series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a patient and doctor. To celebrate the 100th episode of The Bloodline with LLS, we will be speaking with Mel Mann, a chronic myeloid leukemia (CML) survivor and Dr. Brian Druker, a physician researcher at Oregon Health Sciences University (OHSU). 

Mel shares how Dr. Druker’s research saved his life with the drug, Gleevec®, and we get to hear his inspirational message of how one person can make a difference. Dr. Druker discusses this revolutionary therapy, how it transformed the lives of CML patients like Mel, and how targeted treatments are continuing to transform how we treat cancer. 

Mentioned on this episode:

• Chronic Myeloid Leukemia
• The rise of precision medicine for patients with CML
• TKI Therapy
• Be The Match – Bone Marrow Donor Registry
• LLS Translational Research
• LLS Specialized Centers of Research Program
• Beat AML Master Clinical Trial
• Oral Parity Laws
• LLS Advocacy
• Clinical Trial Support Center
• LLS Myeloma Link

Additional LLS Support Resources:

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by Pfizer.

The post Patient-Doctor Perspectives: Groundbreaking Research in CML first appeared on The Bloodline with LLS.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home. 

In this fourth episode of this series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the survivorship stage of Acute Lymphoblastic Leukemia (ALL).

Mentioned on this episode:

• Acute Lymphoblastic Leukemia (ALL)
• I Will Survive: A Viral Tiktok Star’s Journey Through ALL
• CAR T-cell Therapy
• Young Adult Resources
• Caregiver support 

Additional LLS Support Resources:

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Survivorship first appeared on The Bloodline with LLS.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home. 

In this third episode of this series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the moving home stage of Acute Lymphoblastic Leukemia (ALL).

Mentioned on this episode:

• Acute Lymphoblastic Leukemia (ALL)
• I Will Survive: A Viral Tiktok Star’s Journey Through ALL
• Caregiver support 
• COVID resources

Additional LLS Support Resources:

• Caregiver Workbook
• Young Adults
• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Moving Home first appeared on The Bloodline with LLS.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home. 

In this second episode of the series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the treatment stage of Acute Lymphoblastic Leukemia (ALL).

Mentioned on this episode:

• Acute Lymphoblastic Leukemia (ALL)
• I Will Survive: A Viral Tiktok Star’s Journey Through ALL
• Caregiver support 
• Medical Power of Attorney
• Ulman Foundation

Additional LLS Support Resources:

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Treatment first appeared on The Bloodline with LLS.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home. 

In the first episode of this series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the diagnosis stage of Acute Lymphoblastic Leukemia (ALL).

Mentioned on this episode:

• Acute Lymphoblastic Leukemia (ALL)
• I Will Survive: A Viral Tiktok Star’s Journey Through ALL
• Caregiver support 

Additional LLS Support Resources:

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Diagnosis first appeared on The Bloodline with LLS.