Episodes - The Bloodline with Blood Cancer United Podcast

Join us as we speak to Dr. Lori Muffly and Dr. Matthew Frank from Stanford Medicine in Stanford, CA, about the recent advancements in testing for Minimal/Measurable Residual Disease (MRD). In this episode, we delve into what MRD is, which blood cancers testing is currently used on, and how we can utilize it to more accurately monitor patients and customize treatment. The doctors also share exciting possibilities on how MRD and other testing can benefit patients in the future.

Mentioned

• Minimal/Measurable Residual Disease
• A Medication Resource for Blood Cancer Patients
• Minimal/Measurable Residual Disease Chart 
• Stanford Medicine Research
• CAPP-Seq test – Ash Alizadeh
• Acute Lymphoblastic Leukemia (ALL)  

Additional LLS Support Resources:

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations

Support for this episode provided by Genentech, Inc. and Biogen.

The post Exploring Minimal/Measurable Residual Disease (MRD) first appeared on The Bloodline with LLS.

Join us as we start a brand new series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a patient and doctor. In this episode, we speak to Ashley Cámara, a Myelodysplastic Syndromes (MDS) survivor and advocate and Dr. Lucy Godley from The University of Chicago Medicine. Ashley shares her story of having two MDS diagnoses in her family – first her brother and then herself. Dr. Godley then delves deeper into inherited myeloid malignancies and how genetic links may lead to preventative treatment options. 

Mentioned

• Myelodysplastic Sydromes (MDS)
• Stem Cell Transplantation
• Hereditary Myeloid Malignancies – University of Chicago Medicine
• Dr. Lucy Godly Contact
• Young Adult Resources

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations

Support for this episode provided by Taiho Oncology.

The post Patient-Doctor Perspectives: Hereditary Myelodysplastic Syndromes (MDS) first appeared on The Bloodline with LLS.

Join us as we report from the 2020 Virtual CancerCon and speak to Kyle Benner, a young adult survivor of Acute Lymphoblastic Leukemia (ALL), and Nikki Yuill, a social worker with the LLS Information Resource Center. In this episode, we discuss young adult cancer (15-39 yrs) and what happens from diagnosis through survivorship. Learn about the unique issues that young adults face and how LLS is here to help them through.

Mentioned on this episode:

• Acute Lymphomblastic Leukemia (ALL)
• Communicating with your Healthcare Team
• CancerCon
• Stupid Cancer
• Young Adult Chat
• More Young Adult Specific Resources
• Bone Marrow Transplant

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations

The post I Am a Young Adult With Cancer…Now What? first appeared on The Bloodline with LLS.

Join us as we speak to Ola Ojewumi, a patient and health advocate with Post-Transplant Lymphoproliferative Disorder (PTLD), a type of Non-Hodgkin Lymphoma. In this episode, Ola tells us about the difficulties she has faced as a Black disabled woman with chronic pain. She shares her experiences with racism and inequities in healthcare and how she has learned to advocate for herself and others.

Mentioned on this episode:

• Post-Transplant Lymphoproliferative Disorder (PTLD)
• LLS Health Manager App
• Racial Bias in Chronic Pain Study
• Ola Speaking to Congress
• Project ASCEND
• #PatientsAreNotFaking

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations

The post Facing Racial Disparities as a Black Disabled Patient first appeared on The Bloodline with LLS.

Join us for Part Two of a special two-part series as we speak to Dr. Christabel Cheung, a two-time Hodgkin Lymphoma Survivor. In this episode, Christabel talks about her extraordinary struggles as a young adult with cancer, such as living alone without family support and having high healthcare costs. She also delves into the health disparities, racism and racial insensitivity that BIPOC (Black, Indigenous, People of Color) patients experience. Be sure to listen to Part One first to hear more about Christabel’s journey with Hodgkin Lymphoma as a Young Adult.

Mentioned on this episode:

• Dr. Brad J. Zebrack
• Elephants and Tea Magazine
• Jade Gangster
• Stupid Cancer
• Hodgkin Lymphoma (HL)

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Seagen, Inc.

The post Hodgkin Lymphoma Part 2: Struggles of a Young Adult with Cancer first appeared on The Bloodline with LLS.

Join us for a special two-part episode as we speak to Dr. Christabel Cheung, a two-time Hodgkin Lymphoma Survivor. In Part One, Christabel tells us about her longtime journey with lymphoma, including a relapse and going through the second diagnosis during a global pandemic. She shares her struggles of not only a diagnosis, where she is in the small percentage that didn’t respond to first-line treatment, but also going through cancer as a racial minority and young adult. Be sure to tune into Part Two as she delves more into health disparities for young adults and BIPOC (Black, Indigenous, People of Color) communities.

Mentioned on this episode:

• Dr. Brad J. Zebrack
• The Impact of Cancer on Young Adults Video Clip featuring Dr. Brad Zebrak
• Dr. Ibram X. Kendi
• Brian Goldman
• Jade Gangster
• CancerCon
• Hodgkin Lymphoma (HL)

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Seagen, Inc.

The post Hodgkin Lymphoma Part 1: Struggles of a Young Adult with Cancer first appeared on The Bloodline with LLS.

Join us as we speak with Shelly Rosenfeld, Esq. from the Cancer Legal Resource Center and Dr. Steven Pergam from Seattle Cancer Care Alliance. Ms. Rosenfeld and Dr. Pergam presented at CancerCon during a session called, “Understanding Medical Marijuana: It’s a Joint Effort”. In this episode, our speakers dive into the various forms of marijuana, how they can be used to combat side effects of cancer treatment, and the legal issues surrounding their use throughout the United States.

Mentioned on this episode:

Additional LLS Support Resources:

The information contained in this podcast is for general information purposes only and is subject to change without notice. It is not intended to substitute the medical advice of your healthcare provider, information provided to you by your insurance carrier, or to provide legal advice with respect to the subject matter addressed in the podcast.

The post Medical Marijuana & Cancer: What you Need to Know first appeared on The Bloodline with LLS.

Join us as we report on the latest developments in immunotherapy from the 62nd American Society of Hematology (ASH) Annual Meeting and Exposition that was hosted virtually December 5-8, 2020. In this episode, we will be speaking to Dr. Laurie Sehn, a Clinical Professor and Researcher with the British Columbia Cancer Centre for Lymphoid Cancer and The University of British Columbia. Immunotherapy was a primary topic at this year’s ASH meeting. Dr. Sehn shares exciting news about the advancements in immunotherapy for Non-Hodgkin Lymphoma. Hear why lymphoma is a great candidate for immunotherapy, how it works, and how a collaboration of researchers from around the world is accelerating the number of new and effective treatments available for lymphoma patients.

This podcast episode is NOT an official program of the ASH annual meeting.

Support for this episode provided by Genentech and Pharmacyclics.

Mentioned

• The American Society of Hematology (ASH)
• BC Cancer Agency
• Chimeric Antigen Receptor T-Cell Therapy
• Immunotherapy
• Lymphoma

Additional

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

The post Tackling Lymphoma: Recent Advances in Immunotherapy first appeared on The Bloodline with LLS.

Join us as we speak to Dr. Courtney DiNardo from MD Anderson Cancer Center in Houston, TX. about the recent advancements in AML treatment.  Dr. DiNardo is an academic clinical researcher who has participated in clinical trials resulting in three new AML therapies since 2017. In this episode, we dive into the new treatments that are showing great promise, as well as discuss how AML can be hereditary.  With recent results of the Beat AML Master Clinical Trial, the increasing potential of immunotherapy and other new treatments, this episode is sure to give hope for current and future AML patients and caregivers.  

Mentioned on this episode:

• Acute myeloid leukemia (AML)
• MD Anderson
• Beat AML® Master Clinical Trial
• Personalized Medicine
• Minimal Residual Disease
• Hereditary Hematologic Malignancy Leukemia Clinic

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Astellas and Novartis.

The post Providing Hope for AML Patients first appeared on The Bloodline with LLS.

Join us as we speak to Dr. Meredith Hemphill Ruden, who had an informative session at CancerCon on Parenting with Cancer. Meredith is a licensed clinical social worker, 13-year Melanoma cancer survivor and Executive Director of the Feather Foundation. In this episode, Meredith dives into the challenging topic of being a parent while dealing with a cancer diagnosis and treatment. After becoming a social worker following treatment, she started to notice that there weren’t as many resources to help parents who had cancer. To combat this shortfall, she started The Feather Foundation, a nonprofit organization dedicated to supporting parents throughout their cancer journey. This episode highlights the importance of making self-care a priority and how to find hope as a family while dealing with cancer.

Mentioned on this episode:

• The Feather Foundation
• Caregiver Support
• Support Groups
• Managing Your Cancer

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• LLS Community
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

The post Strap on your Oxygen Mask First: Being a Parent with Cancer first appeared on The Bloodline with LLS.