Episodes - The Bloodline with Blood Cancer United Podcast

Join us as we speak with Dr. Aaron Goldberg from Memorial Sloan Kettering Cancer Center in New York City.  Dr. Goldberg discusses how secondary AML differs from AML and how treatment is determined. Secondary AML is a diagnosis of AML that has occurred after previous exposure to radiation or chemotherapy for another cancer or has evolved from a prior diagnosis of MDS, MPN or Aplastic Anemia.  In this episode, Dr. Goldberg points out the major difference between secondary AML and de novo AML and new, promising treatments.

Mentioned on this Episode:

• Acute myeloid leukemia (AML)
• Integrative Medicine Service
• Stem Cell Transplantation
• Myelodysplastic syndrome (MDS)
• Myeloproliferative neoplasms (MPN)

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations
• Understanding Secondary AML Webcast

Support for this episode provided by Jazz Pharmaceuticals.

The post Complexities of Secondary AML with Dr. Goldberg first appeared on The Bloodline with LLS.

Join us as we speak to Kristin Furhrmann-Simmons, a caregiver and an LLS volunteer. Kristin talks to us about caring for her father who is a CLL survivor, and how she decided to join LLS’s advocacy efforts through our Office of Public Policy.  For Kristin, it was a great way to connect with people in her community and share her family’s story.  And she knew that for her dad, being as sick as he was, it was helpful to have her as his voice to bring forward some of the issues that her family was facing as a result of his treatment.  This episode highlights how advocates carry the ability to uphold a voice that may have been silenced by a diagnosis.

Mentioned on this Episode:

• Advocacy
• Caregiver
• Team in Training
• Medicare Part D
• Mobile Action Network

Additional LLS Support Resources:

• Information Specialists
• Information & Support Services
• Clinical Trial Support Center
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations
• Oral Parity
• Prescription Out-of-Pocket Costs
• Share your Story
• Sign up to be an Advocate at LLS

The post I’m a Caregiver & Advocate: Kristin’s Story first appeared on The Bloodline with LLS.

Dr. Hoffman from the Sylvester Comprehensive Cancer Center, University of Miami Health System in Miami, Florida speaks to us about Hodgkin lymphoma and its interesting history.  Thankfully, Hodgkin lymphoma is now highly treatable and for the majority of people curable, but not for all.  Dr. Hoffman talks to us about what makes Hodgkin lymphoma unique, as well as discusses emerging therapies and long term and late effects for both young adult and older patients diagnosed with Hodgkin lymphoma.

Mentioned on this Episode:

• Lymphoma
• Hodgkin Lymphoma
• Clinical Trials
• Radiation therapy
• Chemotherapy

Additional LLS Support Resources:

• Information Specialists
• Information & Support Services
• Clinical Trial Support Center
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations
• Young Adults

Support for this episode provided by Seattle Genetics.

The post Your Questions Answered About Hodgkin Lymphoma first appeared on The Bloodline with LLS.

Join us as Ellin Berman, MD a leukemia expert from Memorial Sloan Kettering Cancer Center discusses the advancements in treatment for Chronic Lymphocytic Leukemia (CLL). Dr. Berman explains how not all CLL is the same, as it is a heterogeneous disease which explains why one person’s CLL can act differently from another person’s CLL.  Dr. Berman speaks about how some patients do not start treatment right away and why some patients may be good candidates for clinical trials.  Every patient is different, and since there are newer treatments now available for CLL, Dr. Berman provides patients with different treatment options, and encourages patients to ask questions and to be a partner with their treatment team when making treatment decisions.

Mentioned on this episode:

• Chronic Lymphocytic Leukemia (CLL)
• Printable Question to ask your Doctor
• Memorial Sloan Kettering
• Clinical Trial Support Center (CTSC)
• Ibrutinib

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Pharmacyclics/Janssen.

The post CLL: Transformation in Treatment first appeared on The Bloodline with LLS.

We will be speaking with WWE Superstar, actor, and former professional football player, Joseph Anoai, who many may know as Roman Reigns. Apart from fighting opponents in the ring, Roman found himself fighting his biggest opponent yet after receiving his leukemia diagnosis back in 2007. Listen as Roman Reigns explains his cancer journey to our very own President & CEO, Dr. Louis DeGennaro.   

Mentioned on this episode:

• Roman Reigns
• Chronic myeloid leukemia (CML)
• Leukemia
• Make-A-Wish
• Types of treatment for CML
• Roman Reigns and LLS join forces

Additional LLS Support Resources:

• Information Specialists
• Information & Support Services
• Clinical Trial Support Center
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

The post Together in the Fight Against Chronic Myeloid Leukemia (CML): Roman Reigns’ Story first appeared on The Bloodline with LLS.

Dr. Mary Ninan speaks to Alicia, Lizette, and Edith about the most common subtype of non-Hodgkin lymphoma (NHL), known as Diffuse Large B-cell lymphoma (DLBCL). With over 70 subtypes of NHL, the priority when Dr. Ninan sees a patient with lymphoma is to confirm which subtype the patient has been diagnosed with in order to determine the best treatment plan. Dr. Ninan explains how lymphoma is staged, and various treatment options are discussed. The doctor also mentions how she always encourages patients and caregivers to ask questions and clarify the points that they do not understand in the treatment plan, as well as welcomes questions about how patients can manage their side effects. Also, in this episode, Dr. Ninan talks about one of the most exciting developments in the treatment of diffuse large B-cell lymphoma in recent years.

Mentioned on this episode:

• Diffuse large B-cell lymphoma
• Atlanta Medicine magazine
• CAR T-cell Therapy
• Rituximab
• Radiation therapy
• Chemotherapy
• Non-Hodgkin Lymphoma

Additional LLS Support Resources:

• Information Specialists
• Information & Support Services
• Clinical Trial Support Center
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Epizyme, Genentech, Karyopharm, and Pharmacyclics/Janssen.

The post Dr. Ninan explains Diffuse Large B-cell Lymphoma (DLBCL) first appeared on The Bloodline with LLS.

Has the Coronavirus (COVID-19) affected your non-Hodgkin lymphoma treatment? Join Alicia, Lizette and Edith as they speak with Dr. Lori Leslie about non-Hodgkin lymphoma and how patients have been receiving treatment during the coronavirus pandemic. Dr. Leslie is a part of the lymphoma division of the John Theurer Cancer Center in Hackensack NJ.  She treats lymphoma and CLL clinically, is the director of the indolent lymphoma and CLL research programs and is heavily involved in the lymphoma CAR-T program. On this episode, Dr. Leslie explains the different types of lymphoma. The doctor informed us on how the coronavirus is affecting lymphoma patients, as well as if lymphoma patients should be taking any extra precautions at this time.  Dr. Leslie also updated us about the latest news regarding a vaccine for the coronavirus.  During this time, we remain hopeful after hearing Dr. Leslie say that research for lymphoma has continued despite the pandemic, and new treatments were recently approved for lymphoma patients.

Mentioned on this episode:

• Non-Hodgkin Lymphoma (NHL)
• COVID-19
• Follicular lymphoma (FL)
• Diffuse Large B-cell Lymphoma (DLBCL)
• CAR T-cell Therapy
• Allogeneic Stem Cell Transplantation
• New England Journal of Medicine
• Vaccines

Additional LLS Support Resources:

• Information Specialists
• Information & Support Services
• Clinical Trial Support Center
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Epizyme, Genentech, Karyopharm, and Pharmacyclics/Janssen.

The post What Non-Hodgkin Lymphoma (NHL) Patients Should Know During the COVID-19 Pandemic first appeared on The Bloodline with LLS.

Join this conversation as Alicia, Edith and Lizette sit down to chat with Brett Hagler.  Brett is an author, cancer survivor, and CEO of New Story, an organization that pioneers solutions to end global homelessness by working to create the world’s first 3D-printed community. On this episode, Brett explains how his chondrosarcoma diagnosis helped to refine his focus and future goals, putting him on the path of creating something bigger than himself. Despite diagnosis, Brett challenges patients to reflect on the question, “How do I want to remember this moment 10 years from now?”, to help gather strength and purpose to push forward. He also describes the crucial role of caregivers and the importance of having a supportive community rallying around each person facing a serious illness. Listen in and be sure to tell us how you liked the episode, by commenting below!

Mentioned on this episode:

• New Story
• Chondrosarcoma

Additional LLS support resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists.

The post Creating Something Bigger Than Myself Despite Cancer: Brett Hagler’s Story first appeared on The Bloodline with LLS.

Join this insightful conversation as Alicia, Edith and Lizette sit down to chat with Dr. Stephen B. Thomas, one of the nation’s leading scholars in the effort to eliminate racial and ethnic health disparities. Dr. Thomas is a Professor of Health Policy & Management and Director of the Maryland Center for Health Equity at the University of Maryland School of Public Health.  On this episode, Dr. Thomas explains structural determinants of health and defines ‘health disparity’ and ‘health equity’ as it relates to ethnicity and race in America. Dr. Thomas emphasizes that only together can we create lasting change and better outcomes for all people. He explains how his students and colleagues continue to think outside the box when creating ways to bring education and awareness to those within marginalized groups. Dr. Thomas shares the results of various research studies, current trends and future plans and projects that help to address racial and ethnic disparities within healthcare.

Mentioned on this episode:

• Race,

Additional LLS support resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program

The post Understanding Racial and Ethnic Disparities Within Healthcare first appeared on The Bloodline with LLS.

Join Alicia, Lizette and Edith as they speak with Dr. Benjamin Lampson.  Dr. Lampson is an instructor in medicine at Dana-Farber Cancer Institute.  On this episode, Dr. Lampson explains how mantle cell lymphoma (MCL) is diagnosed and treated. Dr. Lampson gives his advice for MCL patients during the coronavirus (COVID-19) pandemic. He also shares the long-term effects of treatment, the future of treatment for MCL, clinical trials and when they are considered for treatment for lymphoma patients, and the importance of open communication between a patient and their healthcare team.

Mentioned on this episode:

Additional LLS support

Support for this episode provided by Pharmacyclics/Janssen.

The post Mantle Cell Lymphoma (MCL) with Dr. Benjamin Lampson: What Patients Should Know first appeared on The Bloodline with LLS.