EULAR PARE

Join us on the EULAR PARE Podcast as our host, Jeanette Andersen, speaks with Gonzalo Tobar from Chile, a representative of ASOPAN and Lupus Chile. In this episode, Gonzalo sheds light on the challenges faced by people living with RMDs and patient organisations in South America to the EULAR PARE audience. There is much in common and plenty to learn from one another! 

 Join us on the EULAR PARE Podcast, where we facilitate the exchange of insights and expertise among the PARE Community. In this episode, we discuss the Knowledge Transfer Programme (KTP). Our host, Nadia Malliou, sits down with Ingrid Põldemaa from Estonia to explore the impactful projects her organisation has successfully implemented with KTP support. Discover how your organisation can benefit from this valuable programme and unlock new opportunities for growth and collaboration. 

Join us on the Young PARE Podcast as our host, Tanita-Christina Wilhelmer, delves into a captivating discussion with guest Caroline Kirsten. Together, they explore the distinctive challenges encountered by those living with Rheumatic and Musculoskeletal diseases (RMDs) when travelling and living abroad. Tune in for invaluable insights and expert tips on navigating journeys abroad while living with an RMD. 

In celebration of World Arthritis Day 2023, Young PARE is hosting a podcast on the topic "Living with an RMD at all stages of life". Our host, Tanita-Christina Wilhelmer, asks participants about their personal experiences living with an RMD and how their diagnosis has affected their lives. Listen to their inspirational stories and helpful tips on coping with a new diagnosis.

In the third Young PARE podcast episode, Tanita-Christina Wilhelmer discusses with Sladjana Rumpl Tunjic different paths to fulfilling professional careers.  How do you manage your RMD when working full-time? Why is it sometimes not possible to work 100%? How can you find a work-life balance? And why is it important to ask for help? 

In the second Young PARE podcast, Caroline Kirsten and Ilaria Bini discuss with host Tanita-Christina Wilhelmer the body image while coping with RMDs, and how it influences various relationships, friendships and intimacy. How are tattoos connected with RMDs? Find out in this episode!

This episode features the EULAR PARE Outstanding Achievement Award winner 2023. EULAR PARE meets with Dieter Wiek from Germany, who is the first person to be awarded with this important recognition for his outstanding work for EULAR and commitment as a volunteer for more than a decade. An inspiration to all volunteers. 

This episode features a brand new Young PARE Podcast series focusing on young people living with RMDs. Sophia Marantidou from Greece and Giovanni Mascarino from Italy, who both received the RMD diagnosis in their childhood, discuss with our host Tanita-Christina Wilhelmer growing up with an RMD. 

This episode features a new series within the EULAR PARE Podcast where EULAR PARE meets with representatives of RMD patient organisations outside of Europe. We start with South Africa and the African continent in general, where we will hear from Maranda van Dam, Chairperson of the Axial Spondyloarthritis Association of South Africa, what challenges people with RMDs are facing and what patient organisations are doing to improve their quality of life. Maranda`s initiative won the PARE Best Practice Award at the EULAR PARE Conference 2022.

Lene Mandrup Thomsen (Danish Rheumatism Association) and Jeanette Andersen (Lupus Denmark) discuss how their organisations have created a programme for patient education after diagnosis called “Know Your Lupus” and how this has helped patients manage their disease.