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EULAR PARE Podcast, where we discuss topics of interest to the PARE community as well as to people living with rheumatic and musculoskeletal diseases.... more
FAQs about EULAR PARE:How many episodes does EULAR PARE have?The podcast currently has 32 episodes available.
April 04, 2023Meet a PARE Best Practice winner - Axial Spondyloarthritis Association of South AfricaThis episode features a new series within the EULAR PARE Podcast where EULAR PARE meets with representatives of RMD patient organisations outside of Europe. We start with South Africa and the African continent in general, where we will hear from Maranda van Dam, Chairperson of the Axial Spondyloarthritis Association of South Africa, what challenges people with RMDs are facing and what patient organisations are doing to improve their quality of life. Maranda`s initiative won the PARE Best Practice Award at the EULAR PARE Conference 2022....more17minPlay
September 26, 2022How to create a programme for patient education after diagnosisLene Mandrup Thomsen (Danish Rheumatism Association) and Jeanette Andersen (Lupus Denmark) discuss how their organisations have created a programme for patient education after diagnosis called “Know Your Lupus” and how this has helped patients manage their disease....more17minPlay
May 27, 2022Celebrating EULAR's 75th Anniversary!EULAR Past-President, Iain McInnes, and EULAR PARE Vice President, Elsa Mateus, discuss EULAR's biggest achievements over the years, and what we can expect for the future of rheumatology and the organisation, in this very special episode celebrating a momentous occasion - EULAR's 75th Anniversary!...more34minPlay
May 27, 2022Patient representatives at the EULAR Congress: experiences and expectationsSimon Stones (patient advocate from the UK) and Alice Grosjean (Swiss League Against Rheumatism) discuss the meaning and importance of the EULAR Congress to the PARE member organisations but also to the patient representatives themselves....more9minPlay
May 17, 2022Why and how to implement peer-mentoring programmesNele Caeyers and Diederik De Cock from Belgium's patient organisation ReumaNet talk about peer mentoring: what is it, how ReumaNet has implemented peer mentoring programmes in their country, as well as some lessons learned from this experience....more13minPlay
April 26, 2022Meet our collaborators - EURORDISThis episode initiates a new series within the EULAR PARE Podcast where we aim to get to know the European organisations that collaborate with EULAR PARE a little better. Simona Bellagambi and Ilaria Galetti from EURORDIS share its history, connection to EULAR PARE and the excellent work that they do for people with rare diseases in Europe, including people with RMDs....more22minPlay
February 25, 2022Meet our members - Russian Rheumatism AssociationThis episode resumes the “Meet our members” series where we aim to get to know the EULAR PARE member organisations a little better. Polina Pchelnikova from the Russian Rheumatism Association talks about the excellent work that they do at the national level for people with RMDs, as well as the unique challenges of a patient organisation in Russia due to the pure size of the country....more25minPlay
February 14, 2022Meet a PARE Best Practice Fair winner - NRASAilsa Bosworth from the UK’s National Rheumatoid Arthritis Society talks about SMILE-RA, a project on self-management e-learning for people with RA, which was also one of the winners of the Best Practice Fair at the EULAR PARE Conference. ...more20minPlay
January 25, 2022Meet a PARE Best Practice Fair winner - ASIFJo Lowe and Jo Davies from the Axial Spondyloarthritis International Federation (ASIF) talk about their project on the delay to diagnosis that people with axial spondyloarthritis often face, which was also one of the winners of the Best Practice Fair at the EULAR PARE Conference....more25minPlay
November 24, 2021Meet our members - Arthritis IrelandThis episode initiates a new series within the EULAR PARE Podcast where we aim to get to know the EULAR PARE member organisations a little better. Brian Lynch and Peter Boyd from Arthritis Ireland share its history, connection to EULAR PARE and the excellent work that they do at a national level for people with RMDs....more27minPlay
FAQs about EULAR PARE:How many episodes does EULAR PARE have?The podcast currently has 32 episodes available.