Extra To Love: A Trisomy Podcast

Jeanna Polacek, mom to 5 year old Mia who has full Trisomy 18 and co founder of Edwards’ Syndrome Association joins Extra To Love: A Trisomy Podcast to discuss their surprising birth diagnosis, the milestones Mia has reached, the relationship Mia has with her baby sister, as well as the heart and mission of Edwards’ Syndrome Association. We also discuss the intentionality behind choosing to use ‘Edwards Syndrome’, following in the foot steps of the Down syndrome (trisomy 21) community. 

To connect with ESA visit edwardssyndrome.org or find them on social media @edwardssyndromeassociation

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast

This week Julie discusses nurturing a spirit of gratitude and choosing to see God's hand in the midst of difficulties. If you are struggling to feel gratitude, let your challenge this week to be acknowledging your blessings. When you notice the good things in your life, even something like air conditioning in the summer heat, write it down or say thank you to God. 

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast

Home Health Nurse of 15 years and medical mom Tomi Moe joins Extra To Love: A Trisomy Podcast to share her perspective on how to identify and keep great nurses, realistic expectations for parents and more. Her experience being in many home as a nurse and also having nursing in her home for her child gives her unique and valuable insight to share. We know this is a subject that affects many families with trisomy diagnoses and we want to empower and equip families to have the best possible home nursing experience if they choose to utilize it. 

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast

In this Ministry Moment, Julie considers Joseph's role in our saviors life, and how we can glean the importance of an earthly father from what we know about him. Like Joseph, man trisomy fathers are thrown into situations they never could have predicted. Faith in God empowered Joseph to not only accept the situation, but to be the husband Mary needed, and the earthly father Jesus needed. Happy Father's Day to all trisomy dads. You are seen and loved. 

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast

Kelly, mom of 5 year old Kora, who has Trisomy 13 (Patau Syndrome) joins us to share their story of ups and downs, and the beautiful life that Kora now leads as a big sister and almost-first-grader. 

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast

In this week's Ministry Moment, Julie encourages listeners to remember that we are doing the Lord's work every day, and reminds listeners to consider Colossians 3:23-24 - in whatever you do, work as if you are working for the Lord. Caring for a child with disabilities such as those associated with Trisomy 13 and Trisomy 18 can be taxing and can lead to going through the motions to move from one task to the next. We hope this Ministry Moment encourages listeners to pause and consider the work they are doing, as well as the work of others. 

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast

On this episode of Extra To Love: A Trisomy Podcast , we're talking to Jennifer Springer, Director of Operations for ETL. Jennifer is connected to the trisomy community through her granddaughter, Sage, who had trisomy 18. Jennifer talks about the choice to be the "village" that is needed to raise a child with disabilities, her love for the trisomy community and her passion for her role within ETL.  Jennifer shares wisdom for those who are close with a family expecting a child with a trisomy diagnosis, such as a grandparent or sibling to the child's mom or dad, and how they can speak life and hope into their story. 

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast

Julie Hawkins, Extra To Love Board Member and a Director of Children's and Family Ministry, begins a new feature on the ETL Podcast, Ministry Moments. It is our hope that each Ministry Moment provides the uplifting  encouragement you need to continue seeking God's face through uncertainty. 

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast

Lacey Ponder, mom of Eloise who lived 14 months and had Trisomy 18, discusses the shock of their birth diagnosis, the decision to focus on speaking life over her daughter, and how she finds comfort in the truths of the gospel as a bereaved mother. 

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast

Families are often told to consider the burden their child with special needs will have on their neurotypical children. What better way to remove the stigma than to allow the opportunity for their siblings to speak on their experience! 

Five children ranging in ages 13 to 17 joined the Extra to Love podcast to discuss their prospective of having a sibling with Trisomy 18 and Trisomy 13. The teens get vulnerable with an inside look into their experience, they share about their joys and struggles with each other on this episode! Listen in to hear about the beautiful journey that is absolutely worth it to them!

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast