Extra To Love: A Trisomy Podcast

Audrey Mercier gives a glimpse into the life she has with her daughter, Cecilia "Cece" who has Partial Trisomy 13. She was vulnerable with her heart and journey.  She has just completed her first year of medical parenthood and is doing an incredible job! 

You can find her on facebook and instagram @reslilientmama_co.

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast

Emma, Jenn and Amber announce some exciting changes and goals for 2024 with services offer from Extra to Love. 

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast

Charity joins Emma and Amber on this episode to talk about the way she juggles her many hats and accomplishments. Charity has a heart to serve and give Maggie a life well lived and loved! The diagnosis her daughter has wasn't the end, but a beautiful revelation of things that really matter in life! 

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast

Jenn, Emma, and Amber discuss the events and emotions leading up to the very emotional first birthday of their children with Trisomy. We are often told the chances of even getting one is slim to none, as the first has come to pass, they discuss what it feels like as each birthday for their child comes back around. 

Asher is a little boy who will be 5 soon, Sage just turned 3 and Evalyn is about to be 2!

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast

The name "Journey" is the perfect name for a little girl who is described by her Mom as an answered prayer and a true blessing in her life! Listen in as her Mom, Deirdra tells the story of her birth, diagnosis, and the advocacy that has followed. Journey is a four year old girl who is quite the fashionista, and has a beautiful relationship with her sibling! Journey is pure sunshine and nothing short of an incredible testimony of God's Love! 

Deirdra is the first member of ETL's Parent Advisory Counsel and we look forward to sharing more from her!

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast

Amber, Jenn, and Emma discuss their experience with "Hospice/Comfort Care" measures. One of us skipped over it, the other was not given a choice and the last of us chose it! In this episode we discuss our vastly different experiences and what lead us to make the decisions we did. 

We discuss the importance of titration of the FIO2 for your child. 


Disclaimer: "Amber here, in this episode we do discuss death, I want to put a quick disclaimer that my ease of using the word "dead" in the episode came from my own healing of trauma. I was at a beautiful retreat where I had the honor of hearing Bethany Bernard play her newest album. She discussed, there is a terrible stigma around using the words "death, and dead." It took me 9 months to be able to say that my own daughter had died and not using that verbiage for me, minimized her story."

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast

Podcast Co-Host Jenn takes us through the journey of her own grief of loss and life with another medically complex child. Asher, is her four year old son who has Trisomy 18, the odds have been completely stacked against him from the beginning. Asher has done incredible and amazing things despite the statistics he was compared to! 

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast

Charity Nelson tells the story of her pregnancy, birth and life with daughter Maggie who is 3 years old and has Trisomy 18 (Edwards Syndrome). With a trach and GJ tube and two fun siblings, Maggie's story demonstrates the way medical complexity and fullness of life can coexist. Charity shares how she has witnessed God in the details of Maggie's life and coming to terms with her diagnosis. 

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast

Amber, Jenn and Emma sit down with Jenn’s close friend, Laura, to discuss how raising a child with trisomy has impacted their friendship. The ladies have an insightful conversation regarding how to discuss medical complexities with typical children and how to be a supportive friend to someone with a disabled child.  

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast

In this episode Kathryn discusses the impact her daughter's Trisomy 18 diagnosis had on her as a NICU nurse and her family. Indiana's lasting impact on her family isn't determined by the length of her life! Kathryn discusses the complications she had and all the things that make her daughter the blessing that she is. 

Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.

To receive support or learn more about our mission, visit www.extratolove.org

Follow us on socials!
https://www.facebook.com/extratolove
https://www.instagram.com/extratolove
https://www.instagram.com/extratolovepodcast