FASD Hope

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 18 years of lived experience.

Episode 39 is part 2 of "Special Needs Homeschooling" double episode, highlighting Candice Dugger. Candice Dugger is the founder of "Bullied, Broken, Redeemed" and a nationally recognized, anti-bullying expert, author, speaker and trainer. Candice and her team specialize in equipping leaders, parents and youth on all aspects of Gen Z Bullying. These life-changing programs use interactive activities and projects to motivate and empower effective anti-bullying warriors. Candice has been on NBC, CBN and Family Research Council, as well as on top of training Fortune100 Companies. Candice is also regularly featured as a keynote speaker at national and international conferences. On top of being an anti-bullying warrior, Candice is passionate about helping families transition from public school to homeschool. Her "Coming Home" Series of talks and workshops are a blessing for those trying to navigate the sometimes difficult transition. She is also the co-founder of the "Reimagine Education Conference", which specializes in helping families transition to homeschooling. This conference is an annual event and has grown to an international presence with over 80 speakers and 100 talks.

In this powerful episode, Candice explores the following topics: her family's journey into homeschooling, what led her from being a special needs mom to a special needs homeschool advocate, her passion about her anti-bullying mission / ministry, how her faith guides her in her mission and being a resource for others,  the critical importance of mental health in our children / teens / young adults (especially in the homeschool community), her vision behind "Bullied, Broken Redeemed" and "Reimagine Education", using Clubhouse for advocacy and her words of HOPE for families of kids with special needs.

RESOURCES - 

Bullied Broken Redeemed -

http://bulliedbrokenredeemed.com/

Reimagine Education Conference - 

https://reimagineeducationconference.com/

Clubhouse - @cedugger

FASD Hope -

http://www.fasdhope.com/

[email protected]

Instagram - @fasdhope

Facebook - @fasdhope1

Pinterest - @fasdhope1

Clubhouse- @natalievecc

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 18 years of lived experience.

Episode 38 is the first of two "Special Needs Homeschooling" episodes and features Valerie Castle of "Our Homeschool Castle". Valerie has a family with five kids. They are a blended family, a special needs family and they have three kids under the age of five.  This year, Valerie started a YouTube channel, website, Instagram and podcast with hope of helping families who were new to homeschooling. Valerie now focuses on helping families of kids with special needs navigate their homeschool journeys and she is also sharing her family's journey learning American Sign Language (ASL). On her podcast, Valerie interviews homeschool parents of kids with special needs. She believes that there is a lack of community and not enough support for special needs families (especially those who homeschool) and she wants to help others feel that they're not alone.

In this episode, Valerie discusses the following topics:  her family's homeschool journey, when she made the transition to homeschool mom to special needs homeschool advocate / podcaster, the benefits of homeschooling, building on strengths, favorite homeschool activities, homeschooling three kids under the age of five and her words of hope for those families of kids with special needs who are homeschooling / considering homeschooling.

Resource links-

Our Homeschool Castle-

Website Blog-

http://www.ourhomeschoolcastle.com

Etsy- 

https://www.etsy.com/shop/ourhomeschoolcastle

YouTube-

https://www.youtube.com/c/OurHomeschoolCastle

Instagram - 

https://www.instagram.com/ourhomeschoolcastle/

Facebook -

https://www.facebook.com/ourhomeschoolcastle

Pinterest -

https://www.pinterest.com/ourhomeschoolcastle/boards/

Clubhouse-

@valeriecastle

FASD Hope -

http://www.fasdhope.com/

[email protected]

Instagram - @fasdhope

Facebook - @fasdhope1

Pinterest - @fasdhope1

Clubhouse - @natalievecc

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 18 years of lived experience.

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 18 years of lived experience.

Episode 36 is titled "FASD Legislation Update" and features Susan Shepard Carlson. In addition to being Minnesota's First Lady from 1991-1997, Susan Shepard Carlson is an attorney and a retired Hennepin County Juvenile District Court judicial officer.  It was through her experience in juvenile court that led to Minnesota's efforts in combating the harmful effects of prenatal alcohol exposure. In 1997, Susan launched an initiative to promote Minnesota's effort on FASD education and prevention and co-chaired the Minnesota Governor's Taskforce on FAS resulting in almost $7 million annual funding for FASD prevention and intervention services.

Recognizing the need for the private sector to be involved in FASD in 1998, Susan formed the first affiliate of NOFAS (National Organization on Fetal Alcohol Syndrome) - Minnesota Organization on FAS (now Proof Alliance). For over 20 years, Susan has lead FASD policy, advocacy and training efforts on the national level as a member of the ICCFASD Justice Work Group, which led the effort in getting an ABA (American Bar Association) FASD resolution adopted in 2012. Other FASD achievements include: author of "tools for Success", an FASD training guide of juvenile justice professionals;  facilitated "Train the Trainers" conferences on a FASD curriculum for juvenile justice professionals at 4 sites throughout the country; 2006-2007 directed Hennepin County pilot program to screen and assess adjudicated juveniles for FASD; national speaker on FASD, justice issues and its impact on society. Susan currently is on the Board of Directors of NOFAS and chair of the Legislative and Policy Committee leading  the effort to pass the "Advancing FASD Research, Prevention and Services Act". Susan received her Bachelor of Arts Degree in Political Science from the University of Minnesota and a JD from Hamline University School of Law.

In this informative and HOPE filled episode, Susan discusses the following topics: her background and work in the FASD Community, the FASD Legislation that was ready to be presented last year (prior to COVID19), an update on the "Advancing FASD Research, Prevention and Services Act", how families can help the legislation gain momentum in moving forward and words of hope for families and those in the FASD community.

"...Remember to walk a mile in his moccasins and remember the lessons of humanity taught to you by your elders. We will be known forever by the tracks we leave in other people's lives, our kindnesses and generosity. Take the time to walk a mile in his moccasins."  - Mary T. Lathrap, "Judge Softly", 1895

Resources - 

NOFAS -

https://nofas.org/

FASD Advocacy Coalition Sign Up Form - 

https://nofas.wufoo.com/forms/fasd-advocacy-coalition-sign-up-form/

FASD Hope -

Instagram - @fasdhope

Facebook - @fasdhope1

Pinterest - @fasdhope1

Clubhouse - @natalievecc

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.

This 35th episode of FASD Hope is titled "Time for Each Other: The Dadcast".  John speaks with Jesse Walker, a dad of a daughter with an FASD.  Jesse shares the familial challenges of having a child with and FASD and the challenge of trying to have time with his wife. Further on, John and Natalie explore this topic of taking time for each other and supporting each other on the journey of parenting a young adult with an FASD. Finally, John and Natalie talk about changing expectations in making time for each other and appreciating the "shorter moments of togetherness". 

"Love is patient, love is kind. It does not envy, it does not boast, it is not proud. It is not rude, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. Love does not delight in evil but rejoices with the truth. It always protects, always trusts, always hopes, always perseveres."

- 1 Corinthians 13: 4-7

FASD Hope -

http://www.fasdhope.com/

[email protected]

Instagram - @fasdhope

Facebook - @fasdhope1

Pinterest - @fasdhope1

Clubhouse - @natalievecc

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 18 years of lived experience.

Resources for Providers to Increase FASD-Informed Care

CDC Collaborative for Alcohol-Free Pregnancy – FASD Training and Resources

https://nccd.cdc.gov/FASD/

SAMHSA TIP 58: Addressing Fetal Alcohol Spectrum Disorders

Free downloadable guide for how to adapt and deliver mental health treatment for people with FASD. https://store.samhsa.gov/product/TIP-58-Addressing-Fetal-Alcohol-Spectrum-Disorders-FASD-/SMA13-4803 

American Academy of Pediatrics – FASD Toolkit

https://www.aap.org/en-us/advocacy-and-policy/aap-health-initiatives/fetal-alcohol-spectrum-disorders-toolkit/Pages/default.aspx

Petrenko, C. L. M., Parr, J, Kautz, C, Tapparello, C., Olson, H. C. (2020). Families Moving Forward Connect mobile health intervention for fetal alcohol spectrum disorders: Development and qualitative evaluation of design and functionalities. JMIR: uHealth mHealth, 8, e14721. https://mhealth.jmir.org/2020/4/e14721/

www.fmfconnect.com 

Flannigan, K., Harding, H. D., & Reid, D. (2018). Strengths among individuals with FASD. CanFASD. https://www.researchgate.net/publication/332439796_Strengths_Among_Individuals_with_FASD 

Roozen, S., Stutterheim, S. E., Bos, A. E., Kok, G., & Curfs, L. M. G. (2020). Understanding the social stigma of fetal alcohol spectrum disorders: From theory to interventions. Foundations of Science. https://link.springer.com/article/10.1007/s10699-020-09676-y 

Ryan, D. M., Bonnett, D. M., Gass, C. B. (2006). Sobering thoughts: Town hall meetings on fetal alcohol spectrum disorders. American Journal of Public Health, 96, 2098-2101. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1698155/ 

Episode Resources-

MT. Hope Family Center at University of Rochester -

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 18 years of lived experience. 

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 18 years of lived experience.