FASD Hope

FASD Hope

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FASD Hope episodes

  • 19 - Advocating From Coast to Coast: A Conversation with Lindsey Munns and Debbie Raymond

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disroder (FASD), through the lens of parent advocates with over eighteen years of lived experience.

    On this 19th episode of FASD Hope, Natalie Vecchione (Podcast Host) speaks with Lindsey Munns and Debbie Raymond about their respective, parent advocating experiences.  Lindsey is a parent advocate in Florida and Debbie is a parent advocate in the state of Washington.

    This episode is filled with advice, encouragement and hope for those parents and caregivers who are considering becoming advocates in the FASD Community (or in the Developmental Disabilities / Brain Based Diagnoses Communities). 

    "If you can't fly, then run. If you can't run, then walk. If you can't walk, then crawl. But, whatever you do, you have to keep moving forward." - Martin Luther King, Jr.

     

    RESOURCES -

    Lindsey Munns - 

    Instagram @fasd.florida  @fasdfurfighters

     

    Debbie Raymond -

    Instagram @fasd_strong

     

    FASD Hope -

    http://www.fasdhope.com/

    Instagram - @fasdhope

    Facebook - @fasdhope1

    Pinterest - @fasdhope1

     

     

    24 min
  • 18 - PEACE for the HOLIDAY Season: A Conversation with Wendy Brown

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.


    On this 18th episode of FASD Hope, Natalie Vecchione (Podcast Host) speaks with Wendy Brown. Wendy Brown is certified trainer of the FASCETS Neurobehavioral Model. Wendy enjoys helping caregivers and community partners learn to think differently when working with those challenged by FASD or other neurobehavioral diagnoses. Wendy previously worked for Eastern Washington University through the Family Resource and Training Center as a mentor to foster families in Southwestern Idaho. Wendy and her husband have parented over 80 children through foster care and adoption, most of whom have been neurodevelopmentally challenged. Now settled in a small, East Coast town, Wendy and her family continue to enjoy home educating, their RV travels and working in their garden.


    Natalie not only considers Wendy to be a dear friend, but also a mentor and guide in the journey of parenting a child with an FASD.

    In this heartfelt conversation, Natalie and Wendy discuss the following topics:

    - The journey of Wendy's family growth through birth, foster care and foster care adoption.

    - Her family's journey in learning about FASD

    - What is FASCETS and when she became a FASCETS trainer

    - How the Holiday Season can be dysregulating for children with an FASD or other brain-based       diagnoses

    -  The impact of COVID19 on family's of children with FASD / Brain Based Diagnoses, especially during the Holiday Season

    - What is the PEACE Acronym and how parents / caregivers can use it during the Holiday Season

    -  Her hopes for those families who struggle with parenting children with FASD or other brain based diagnoses.


    PEACE
    P -  PLAN
    E -  EVALUATE
    A -  ACCOMMODATE
    C -  CLEAN
    E -  EAT

    "The LORD bless you and keep you; The LORD make His face shine upon you, And be gracious to you; The LORD life up His countenance upon you, And give you peace."  - Numbers 6: 24-26

    RESOURCES -
    FASCETS -
    https://fascets.org/
    Wendy Brown - [email protected]

    FASD Hope -
    http://www.fasdhope.com/
    Instagram - @fasdhope
    Facebook - @fasdhope1
    Pinterest - @fasdhope1

    45 min
  • 17 - The FASD Project: A Conversation with Justin Shepherd and Kristina Uban

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD) through the lens of parent advocates with over eighteen years of lived experience.

    On this 17th episode of FASD Hope, Natalie Vecchione (Podcast Host) is privileged to have an EXCLUSIVE interview with Justin Shepherd (Director) and Kristina Uban (Executive Producer) of "The FASD Project".

    Justin and Kristina fell in love in Colorado, where they were married. They lived along the West Coast from Vancouver, Canada down to Los Angeles, CA. In California, they started their family and pursued their careers... Justin as a Performing Artist and Kristina as a Developmental Neuroscientist focused on FASD. Working with the nonprofit "FASD Communities" (which provides 4 young women, with an FASD, a forever home to live independently from family), Justin and Kristina were asked to amplify their FASD Movement through a film about FASD. When the COVID19 Pandemic struck, they learned about the 41% increase in maternal drinking in 2020 and the future spike in FASD incidence and severity among babies to be born in 2021-2022 - that would result from this side effect of the pandemic in the US. Justin immediately decided that the FASD film had to be made and disseminated now to help prevent this from happening. Justin and his brother formed a crew of two and hit the road from November 3rd - November 15th to interview individuals with an FASD, their caregivers and professionals around the US. Supported by a powerful team of pro bono producers, the road trip was a massive success and The FASD Project pilot film is now in post-production.

     

    In this hope-filled conversation, Natalie speaks with Justin and Kristina about the following topics: 

    -  How they both became involved in the FASD community

    -  The development of FASD Project

    -  Why it was SO important to film "The FASD Project" during a Global Pandemic (and traveling cross-       country in an RV during a Global Pandemic)

    -  Reflections on filming a variety of members in the FASD community

    - The post-production status of "The FASD Project"

    -  Words of hope for those in the FASD community

     

    RESOURCES - 

    www.thefasdproject.com

    www.thefasdproject.org/donate

     

    Instagram - @thefasdproject

    Facebook - @theFASDproject

    Twitter - @theFASDproject

     

    FASD Hope - 

    http://www.fasdhope.com

    Instagram - @fasdhope

    Facebook - @fasdhope1

    Pinterest - @fasdhope1

     

    1 hr
  • 16 - Giving Thanks By The Dozen: A Conversation with the Doughertys

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD) through the lens of parent advocates with over eighteen years of lived experience.

    On this 16th episode of FASD Hope, Natalie Vecchione (Podcast Host) speaks with Josh and Alicia Dougherty of "The Dougherty Dozen". Josh and Alicia live in the suburb of Pittsford, NY with their 10 children, 5 chickens and 1 dog. Josh and Alicia are passionate about adoption from foster care. 6 of their 10 children are adopted (and have an FASD) and 9 of their 10 children have special needs. In August 2020, The Dougherty Dozen made headlines when their family was featured in an exclusive People Magazine Article about their story and their family's journey with Fetal Alcohol Spectrum Disorders.

     

    In this Thanksgiving Week Episode, Natalie talks with Josh and Alicia about the following topics:

    -  Josh and Alicia's journey into parenthood  (and growing their family 6 times through adoption from foster care)

    -  When they first learned about FASD

    -  The story behind the People Magazine article

    -  Their most challenging times and the times when their kids are the most regulated

    -  Managing the variety of sensory needs of their large family

    -  The balance of the involvement of their kids' birthparents in their lives

    -  What they're most thankful for this Thanksgiving (and every day)

    -  Their advice for families who are just starting to learn about FASD 

     

    "And the King will answer and say to them, 'Assuredly, I say to you, inasmuch as you did it to ne of the least of these, My brethren, you did it to Me.' "  - Matthew 25:40

     

    RESOURCES -

    https://linktr.ee/doughertydozen

    Instagram - @doughertydozen

    Facebook - @doughertydozen

     

    FASD Hope -

    http://www.fasdhope.com/

    Instagram - @fasdhope

    Facebook - @fasdhope1

    Pinterest - @fasdhope1

     

     

     

    37 min
  • 15 - Changing Holiday Expectations with John and Natalie Vecchione

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.

    On the 15th episode of FASD Hope, Natalie and John Vecchione discuss what they've learned from past holidays and how the Neurobehavioral / Brain Based Approach to parenting has changed their expectations of the holiday season. Natalie and John share also their thoughts about past holidays and how they've accommodated to enjoy more of the holiday season.  In this honest (and lighthearted) episode, John discusses how they have learned, from past holidays, to make changes that make a better fit for their family.  Finally, John and Natalie provide updates about the FASD Hope website and upcoming "Dadcast" episodes. 

     

    "The informality of family life is a blessed condition that allows us all to become our best while looking our worst."  - Marge Kennedy

     

    Resources - 

    http://www.fasdhope.com/

     

    Instagram - @fasdhope

    Facebook - @fasdhope1

    Pinterest - @fasdhope1

     

     

     

    29 min
  • 14 - Securely Attached: A Conversation with Mike and Kristin Berry

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.

     

    On the 14th episode of FASD Hope, Natalie Vecchione (Podcast Host) speaks with Mike and Kristin Berry, founders of Honestly Adoption and authors of the new book, "Securely Attached: How Understanding Childhood Trauma Will Transform Your Parenting". Mike and Kristin are authors, bloggers, podcasters, speakers, parent coaches, former foster parents. They have had the joy of adopting 8 children. They are passionate advocates in the foster / adoption communities, sharing a message of hope and transformation. They have been married for 21 years and they have 8 children, all of whom are adopted. They live on a farm in Indiana. Mike and Kristin truly are trailblazers, fierce advocates and the GO-TO resource for adoption / foster care / trauma!

    In this highly informative and insightful episode, Mike and Kristin discuss a number of topics, including the following: their parenting / adoption journey, their experiences with FASD with their children, when they started becoming advocates in the foster care / adoption / trauma communities, how "Honestly Adoption" became the online resource for adoptive and foster parents, their newest book "Securely Attached", trauma and their hopes for the FASD / Foster / Adoption Communities.

     

    "...but there is HOPE! The storm is temporary, the sun is permanent. The sun is ALWAYS shining just beyond the clouds." - Mike and Kristin Berry

     

    Resources - 

    The Honestly Adoption Company

    https://honestlyadoption.com/

     

    "Securely Attached: How Understanding Childhood Trauma Will Transform Your Parenting" by Mike and Kristin Berry. Moody Publishers; Chicago (2020).

     

    FASD Hope -

    http://www.fasdhope.com/

    Instagram - @fasdhope

    Facebook - @fasdhope1

    Pinterest - @fasdhope1

     

    37 min
  • 13 - Her Words Give Hope: A Conversation with Audreuna Butler

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.

    On the 13th episode of FASD Hope, Natalie Vecchione (Podcast Host) speaks with Audreuna Butler and her mom, Crystal Butler. Audreuna is 10 years old and an author who wants to bring awareness to people about foster care and for families becoming foster families. From the time she was 5-9 years old, Audreuna wrote a book (with her mom and dad's assistance) to honor her three foster sisters. Audreuna's book, "The Krystal Kingdom", is Biblical-based, fictitional story and takes her readers on an imaginative journey with four princesses and their struggles to get back to their families. Her book is through the lens of a child and her story is imaginative, symbolic and shares her love for her foster sisters. Audreuna's mission is to bring awareness about being a foster family and sharing her faith to as many people as possible.  A portion of the proceeds from the sales of "The Krystal Kingdom" will go the Bair Foundation, a Christian, Child and Family Ministries and Foster Care Organization. 
     
    During our conversation, Audreuna, Crystal and Natalie discuss the following topics:  how Audreuna's vision of writing a book became a reality, how her family supported her in writing this book to honor her foster sisters, her favorite parts of the book and what she hopes people will learn from her book.
     
    "I can do all things through Christ Jesus Who strengthens me." - Phillipians 4:13
     
    RESOURCES - 
    "The Krystal Kingdom" by Audreuna Butler (2019)
     
    How to buy Audreuna's book-
    ebay.com - "The Krystal Kingdom"
    momentspod.com
    drajrbutler.com
     
    FASD Hope-
    http://www.fasdhope.com/
    Instagram - @fasdhope
    Facebook - @fasdhope1
    Pinterest - @fasdhope!
    21 min
  • 12 - Hope in a New Day: A Conversation with Kathryn Shea

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.

     
    On this 12th episode of FASD Hope, Natalie Vecchione (Podcast Host) speaks with Kathryn Shea. Kathryn Shea is a licensed clinical social worker (LCSW) with over 40 years of experience working with children with serious emotional, behavioral disorders and fetal alcohol and drug effects. Kathryn served as the President and CEO of The Florida Center for Early Childhood in Sarasota, FL for 12 years. Kathryn has received numerous awards for her work in infant mental health, FASD and child advocacy.  Kathryn Shea is a Board Member of NOFAS (National Organization on Fetal Alcohol Syndrome). Kathryn and her husband are also proud parents of an adult son with an FASD.
     
    Kathryn's professional legacy is prolific and incredibly impressive. What's equally amazing is Kathryn's lived experience as a mom of a son with an FASD. Additionally, Kathryn is friendly, kind and engaging. In their lively conversation, Kathryn and Natalie bond over being moms to sons with FASD, as well as sharing their respective experiences.  As Kathryn wraps up her remarkable career as President and CEO of The Florida Center (in Sarasota, FL), she is beginning a new professional chapter as a Board Member for the National Organization on Fetal Alcohol Syndrome (NOFAS). Additional topics covered in this episode include the following: Kathryn's professional work experience, her experiences with The Florida Center, key advice for parents / caregivers who may suspect their child may have an FASD, key points when seeking a diagnosis for children with a suspected FASD and her hopes for the FASD community. 
     
    "Live justly, love tenderly and walk humbly with our God," - Micah 6:8
     
    Resources-
    Kathryn Shea
     
    The Florida Center for Early Childhood
    https://www.thefloridacenter.org/
     
    FASD Hope-
    http://www.fasdhope.com/
     
    Instagram - @fasdhope
    Facebook - @fasdhope1
    Pinterest - @fasdhope1
    45 min
  • 11 - We’re Not Alone: A Conversation with Sandra Flach

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.

     
    On the 11th episode of FASD Hope, Natalie Vecchione (Podcast Host) speaks with Sandra Flach, Co-Founder and Executive Director of Justice for Orphans.  Justice for Orphans is a nonprofit ministry on a mission to rally the Church to serve children and families in crisis. For 7 years, Sandra has hosted the weekly "Orphans No More" podcast, where she seeks to inspire, educate and encourage foster and adoptive parents through guest interviews and inspirational content. She also serves as the Area Director for CarePortal throughout the state of New York. Sandra lives in upstate New York with her husband of 33 years. They are the proud parents of 8 children - 5 of whom through adoption.
     
    A little over 5 years ago (shortly after the adoption of Natalie's daughter), Sandra interviewed Natalie for the "Orphans No More" podcast. Shortly after, Natalie met Sandra at an adoption conference. and they instantly bonded over their adoption journeys and how God brought them together in their respective journeys as moms advocating in the adoption community.  A few years later, Natalie was a guest on "Orphans No More" again  to discuss FASD and her family's journey.  Natalie is blessed to call Sandra a friend and mentor in advocacy.  During this heartfelt conversation, Sandra and Natalie discuss the following topics - Sandra's journey into parenthood; adoption and FASD, the development of Justice For Orphans; Sandra's extensive advocacy for children, teens and young adults in foster care; the devastating impact of COVID19 on those in the foster care system and the urgent need for FASD awareness and training in churches, foster care trainings and the community. 
     
    "LORD, You know the hopes of the helpless. SUrely you will hear their cries and comfort them. You will bring justice to the orphans and the oppressed, so mere people can no longer terrify them."
    - Psalm 10: 17-18
     
    Resources-
    Sandra Flach - Justice for Orphans
    https://www.justicefororphansny.org/
    Facebook - https://www.facebook.com/JusticeForOrphans/
     
    Resources that Sandra Mentioned-
    Book- "The Connected Child" by Karen Purvis, Ph.D., et. al. (2007)
     
    Ryan and Kayla North of "One Big Happy Home" and  "The Empowered Parent Podcast"
    https://www.onebighappyhome.com/
     
    FASD Hope
    http://www.fasdhope.com/
    Instagram - @fasdhope
    Facebook - @fasdhope1
    Pinterest - @fasdhope1
    1 hr 4 min
  • 10 - Hope in Homeschooling: A Conversation with Kathy Kuhl

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.

    On the tenth episode of FASD Hope, Natalie Vecchione (Podcast Host) talks to Kathy Kuhl - Author, Speaker and Coach for parents who homeschool students with learning challenges. In addition to coaching parents who are teaching children / teens with learning challenges, Kathy also provides resources, support and guidance in the homeschool & special needs homeschool community. After homeschooling her creative, distractible son (with dyslexia), Kathy interviewed sixty-four parents who were homeschooling students with learning disabilities. Then, she wrote "Homeschooling Your Struggling Learner", a handbook equipping parents to teach children with many learning challenges. Kathy also wrote "Staying Sane As You Homeschool"  and "Encouraging Your Child". Kathy gives workshops and private consultations.

    Six and a half years ago, Natalie read Kathy's book, "Homeschooling Your Struggling Learner", when she began homeschooling her son. Natalie considered it to be a highly valuable resource throughout her son's homeschooling journey and she considers Kathy to be one of her "homeschool heroes".  During their conversation, Natalie and Kathy discuss the following topics: Kathy's lived experience as a homeschool mom (and how that led to her career as an author / homeschool consultant), how she became an advocate for those homeschool students who learn differently, tips and resources for  homeschool parents and caregivers of children / teens with learning disabilities and reasons why homeschooling is such a great fit for families of children and teens with learning disabilities and brain based diagnoses. 

     

    "See how the farmer waits for the precious fruits of the earth, being patient about it, until it receives the early and late rains. You also be patient. Establish your hearts, for the coming of the Lord is at hand..."  - James 5: 7-8

     

    Resources-

    Kathy Kuhl - Author, Speaker and Coach

    https://www.learndifferently.com/

    Resources mentioned by Kathy in the episode-

    http://spedhomeschool.com/

    https://hslda.org/

    Book- "The Mislabeled Child" by Drs. Brock and Fernette Eide

     

    FASD Hope-

    http://www.fasdhope.com/

    Instagram - @fasdhope

    Facebook - @fasdhope1

    Pinterest - @fasdhope1

     

     

     

    39 min

About FASD Hope

From the publisher's feed

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. The mission of FASD Hope is to bring…