FASD Hope

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

FASD Hope is honored to welcome Kathryn "Kay" Kelly in Episode 129, titled "A Legacy in FASD and Law". Kathryn Kelly, called Kay by most who know her, came to the University of Washington after an extensive career in criminal justice. She worked for nine years as a probation officer for the state of California, and for twenty years as a federal probation officer. She was retrained as a mitigation specialist and served for three years as part of a team assembled by the Capital Habeas Unit of the Federal Public Defender in Los Angeles to represent inmates on Death Row seeking redress of their death penalty sentences.

In 2001, Kay joined the Fetal Alcohol and Drug Unit (FADU) at the University of Washington, working with Dr. Ann Streissguth. With a grant from the Robert Wood Johnson Foundation, she and Dr. Streissguth established the FASD Legal Issues Resource Center. In that role, Ms. Kelly has planned and/or participated in numerous trainings for judges, defense attorneys, prosecutors and other court professional throughout the United States, and in numerous foreign countries. Since 2013, she has organized a series of conferences about FASD and the law held in conjunction with the biennial UBC - Vancouver International Conference on FASD.

Ms. Kelly was instrumental in the organization of the first forensic FASD diagnostic team, FASDExperts, and in the passage of an American Bar Association Resolution on FASD in 2012.

Ms. Kelly is also a Research Coordinator for a National Institute of Alcohol Abuse and Alcoholism (NIAAA)-funded five year project: Fetal Alcohol Spectrum Disorders in Adults: Health and Neurobehavior.  Ms. Kelly is a Board member of the FASD United Affiliate - Washington.

In this ENLIGHTENING episode, Kay discusses the following: her work and contributions in the FASD community, her amazing work with Dr. Ann Streissguth / FASD Legal Resource Center, her current projects and initiatives....and words of experience, encouragement and hope for parents and caregivers.

EPISODE RESOURCES -

Kathyrn "Kay" Kelly - [email protected]

Tel- 206-616-5408

https://adai.uw.edu/staff_members/kay-kelly/

University of Washington - FADU

https://www.washington.edu/research/research-centers/fetal-alcohol-and-drug-unit/

FASD Resolution - ABA

https://www.americanbar.org/groups/public_interest/child_law/resources/attorneys/fasd-resolution/

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

Episode 128 welcomes Emily Rusnak and highlights her amazing advocacy through MC FARES and The FASD Collaborative Project. Emily Rusnak, Ph.D., CCC-SLP is the founder and project coordinator for the FASD Collaborative Project, a cross-organization international initiative to increase high-quality training and support options for caregivers, self-advocates, and professionals in the FASD community. Dr. Rusnak is also the vice president for Michigan's FASD United affiliate and has served on the Executive Council for FASD United.

In this enlightening episode, Emily discusses the following topics: her professional background and her family's journey, MC FARES, The FASD Collaborative Project, upcoming events and words of encouragement and hope.

EPISODE RESOURCES - 

MC FARES -

https://www.mcfares.org/

Twitter - https://twitter.com/MCFARESNOFASMI

The FASD Collaborative Project - 

https://www.fasdcollaborative.com/

Facebook - https://www.facebook.com/FASDCollaborative

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

Episode 127 features Tom and Amanda Dyer, Creators / Directors / Producers, of the upcoming documentary "Unseen: How We're Failing Parent Caregivers and Why It Matters". Tom and Amanda share what inspired them to create this MUCH NEEDED documentary, what they learned in making the "Unseen Caregiver Documentary" and words of hope for parent caregivers.

"The Unseen Documentary film follows Jess and Ryan Ronne, a blended family with 8 children, including Lucas, who has profound disabilities requiring total care. Their situation has gotten more and more challenging as Lucas gets older and stronger. With limited resources and support, caregiving takes a toll on their physical health. It's a common story among parent caregivers: the isolation, uncertainty about the future, lack of options , and a never-ending daily to-do list means the role of caregiver overpowers nearly ever other facet of life. Video diaries from diverse caregivers featured in the film illustrate this universality, while interviews with mental health experts and policy / legal advocates provide a broader view on the societal impacts."

Objectives of the Unseen Documentary Film include:

-  Give an unfiltered glimpse into the lives of parent caregivers and their real challenges.

-  Shed light on how difficult it can be to get support and solutions.

-  Establish strategic partnerships to enable real change.

The Global Online Premiere of the "Unseen Caregiver Documentary" will be held May 20-26, 2022. See the below for links / more information.

EPISODE RESOURCES -

FASD HOPE -

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

Episode 126 is with "4 Paws For Ability". 4 Paws for Ability enriches the lives of people with disabilities by placing life changing service dogs. 4 Paws for Ability is a nonprofit organization, founded in 1998 and has placed over 1600 service dogs with individuals (and their families) with disabilities. To meet this objective, 4 Paws for Ability breeds dogs for their service program with their health, temperament,, and potential skills in mind. In this episode, Kelly Camm (Development Director) and Laurie Hodne (Parent of a Child with FASD / Family with a Service Dog) discuss the following: the history of 4 Paws for Ability, Laurie's journey as a mom of a child with an FASD, some of the techniques / therapeutic benefits of service dogs, how Laurie's daughter (and family) dramatically benefitted and improved since the placement of their service dog and words of hope and encouragement for listeners.

EPISODE RESOURCES - 

4 Paws for Ability

https://www.4pawsforability.org/

Facebook - https://www.facebook.com/4pawsforability/

Instagram - https://www.instagram.com/4pawsforability/

Twitter - https://twitter.com/4PawsForAbility

LinkedIn - https://www.linkedin.com/company/4-paws-for-ability-inc/

YouTube - https://www.youtube.com/channel/UC0M1yrIxG3BIyknZRCeRlNw

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

Episode 125 welcomes back the "Dynamic Duo" of Susan Shepard Carlson, Former First Lady of Minnesota and Chair of the FASD United Legislative and Policy Committee and Jenn Wisdahl, FASD Policy and Training Center Coordinator. Together, Susan and Jenn provide an important update of The FASD Respect Act HR4151 / S2238, the progress of the bill, the exciting FASD legislative momentum picking up in various states, ways to advocate for the bill and why NOW is the most important time to reach out to your two senators and representative about The FASD Respect Act and their words of hope and encouragement for the FASD community

IMPORTANT - You can text your 2 senators and 1 representative in the US to share your support and ask for their co-sponsorship / support of The FASD Respect Act HR4151 / S2238

TEXT TO CONNECT - 

1. TEXT THE WORDS: SIGN PRVJQX  to : 50409

2.  Follow the instructions when you receive the reply.

For more information about TEXT TO CONNECT -

https:///nofaspolicycenter.org/text-your-support-for-the-fasd-respect-act/

EPISODE RESOURCES - 

For More Information about The FASD Respect Act (or potential FASD legislation happening in your state in the US) -

https://nofaspolicycenter.org/the-fasd-respect-act/

Jenn Wisdahl -

[email protected]

202-601-2530

FASD United -

http://fasdunited.org/

Facebook - https://www.facebook.com/fasdunited

Instagram - https://www.instagram.com/fasdunited/

Twitter - https://twitter.com/FASDUnited

LinkedIn - https://www.linkedin.com/company/fasd-united/

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

Episode 124 highlights “The FAS Project Netherlands” with Luke Schut (Project Coordinator) and Dami Munter (Foster Mother & Parent Advocate). 

The FAS project is part of non-profit organization ‘Het Witte Bos’, which initiates transmedial projects on the cutting edge of journalism, art and society. The FAS-project started as a journalistic initiative, but eventually developed into a big, multimedia awareness campaign, showing the potentially dangerous consequences of alcohol consumption during pregnancy. By storytelling, the FAS Project raises attention to a relatively unknown problem in a personal way. The FAS-project started in 2013 and launched with the book FAS-kinderen (Children with FAS). The FAS-project will continue until at least 2025, under the name FAS2025. In the past years the project developed and gained a wider reach & more impact. FAS2025 tells the story of Isiah, Lorenzo, Marcella, Mila and Jasmijn, following their journey towards adulthood for ten years. Their stories are told by a collection of stories, portraits and mini-documentaries. To give children with FAS(D) a face, make FAS(D) less abstract and to tell what FAS(D) means to them and how it impacts their lives. The project also consists of expositions, books, a podcast, a college tour to inform future professionals about FAS, readings at professional organizations who (may) come in contact with FAS(D), and The Buddy Project. Almost all of the materials of The FAS Project are translated in English/have English subs. However, the podcast is in Dutch.

In Episode 124, Luke & Dami share: the history of The FAS Project, Dani’s journey as a foster mother learning about FASD, the many initiatives offered by The FAS Project, FASD in the Netherlands, an excerpt from the book “Children With FASD: An Insight Into Their Lives” by Allard de Witte and Joost Bos, and words of encouragement and hope.

EPISODE RESOURCES - 

The FAS Project - 

https://fasproject.nl/en/

The FAS Project - Book - "Children With FASD: An Insight Into Their Lives" by Allard de Witte and Joost Bos

https://fasproject.nl/en/book/

The FAS Project - Films -

https://fasproject.nl/en/films/

The FAS Project -

Het Witte Bos

[email protected]

Facebook - https://www.facebook.com/thefasprojectinternational

Instagram - https://www.instagram.com/the_fasproject/

LinkedIn - https://www.linkedin.com/company/het-fas-project/

YouTube - https://www.youtube.com/channel/UC5UVp3YsIILE2yeGISu_z5Q

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of Parent Advocates with over nineteen years of lived experience.  

Episode 123 is a BONUS EPISODE and welcomes back Louise Gray, CEO and Sophie Harrington, COO of NOFASD Australia to announce the first-ever FASD Forum '22 - Virtual FASD Conference. In this episode, Louise and Sophie discuss the presenters, resources, presentations and newest FASD Research offered in this highly accessible and resourceful 2 day conference. Conference attendees will also have the benefit of accessing all presentations for up to 90 days after the end of this event.

The FASD Forum '22 - FASD@50 will be held from May 13-14, 2022 AEST 

To learn more or to register for this online conference, visit the NOFASD Australia website at -

https://www.nofasd.org.au/

NOFASD Australia -

Facebook - https://www.facebook.com/NOFASDAustralia

Instagram - https://www.instagram.com/nofasd.australia

Twitter - https://twitter.com/NOFASDAustralia

LinkedIn - https://www.linkedin.com/company/nofasdaustralia/

FASD Hope - 

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with other nineteen years of lived experience.

FASD Hope welcomes back Episode 62 Guest, Dr. Vanessa Spiller of Jumpstart Psychology, Author of "Explained By Brain: The FASD Workbook for Parents, Carers and Educators" and Creator of the “Explained By Brain Online FASD Training and Community”. Dr. Vanessa Spiller is a Clinical Psychologist, based in Australia, with over 20 years of clinical experience. She works therapeutically, using a Feedback Informed Approach with adults and young people with families and young people on issues such as anxiety, adjustment to change, trauma, grief and loss. Dr. Spiller also works with families and young people with FASD. Dr. Spiller has also worked in several Australian universities and provides lectures and professional development activities in areas such as professional practice, child / adolescent work and adult psychology and ethics. Dr. Spiller offers the rare trifecta of FASD experience as an FASD Clinician, FASD Educator and FASD Parent Advocate.

In this hope-filled, resource-packed episode, Dr. Spiller discusses the following topics:  the work she has been doing since her 2021 FASD Hope episode, her new online, FASD training "Explained By Brain", who can benefit from this online FASD training, the "3 Streams of Content" framework of this online training, benefits of this online training, how to learn more / sign up for this training and her words of hope and encouragement. 

The 3 Streams of Content in the "Explained By Brain Online FASD Training are: FASD Information, Complex Behavioral Symptoms and Focus on Parents / Caregivers.

EPISODE RESOURCES - 

Dr. Vanessa Spiller - www.jumpstartpsychology.com

Explained By Brain Online FASD Training - https://sites.google.com/view/explainedbybrain-startpage/home 

The book - "Explained by Brain: The FASD Workbook for Parents, Carers and Educators" by Dr. Vanessa Spiller

https://www.amazon.com/Explained-Brain-Workbook-Educators-everything/dp/0995353212/ref=sr_1_1?crid=2NA9E3EKH6293&keywords=Explained+By+Brain+FASD&qid=1648501837&sprefix=explained+by+brain+fasd%2Caps%2C591&sr=8-1

Resources -

https://www.jumpstartpsychology.com/EBBdownloadspodcastsvideos2021.html

Video - 

https://www.youtube.com/watch?v=tK_6Mdnpk5k

Instagram - https://www.instagram.com/jumpstartpsychology/

Facebook - https://www.facebook.com/FASD-Explained-By-Brain-resources-101506929127325

LinkedIn - https://www.linkedin.com/in/vanessa-spiller-343a5449/

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Racket - @fasdhope

Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

"Fear not, for I am with you; Be not dismayed, for I am your God. I will strengthen you, Yes, I will help you, I will uphold you with My righteous right hand." - Isaiah 41:10

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc