FASD Hope

FASD Hope

By fasdhopeParentingKids & Family
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FASD Hope episodes

  • 119 - Stronger Together - The Women of FASD Podcasting

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

    In this SPECIAL EPISODE, the Women of FASD Podcasting (missing Jessica Rutherford) reunite for another STRONGER TOGETHER discussion. Happy One Year Anniversary to Robbie Seale of FASD Family Life Podcast!

    Robbie, in Alberta, Canada hosts this episode with Clare Devanney-Glynn of Spotlight on FASD (UK) & Natalie Vecchione (US). The Women of FASD Podcasting get REAL about their lives, families, grief and "plot twists" in being moms of kids / teens / young adults with FASD.

    #spaceandgrace

     

    EPISODE RESOURCES - 

    Podcasts: Robbie Seale - FASD Family Life Podcast (based in Canada),

    Clare Devanney-Glynn & Jessica Rutherford- Spotlight on FASD (UK)

    Both podcasts are available anywhere you find your podcasts! 


    FASD Family Life - 

    Facebook - https://www.facebook.com/robbie.seale.1

    Instagram - https://instagram.com/robbie.seale/

    Twitter - https://twitter.com/robbieseale9?s=21

     

    Spotlight on FASD -

    Facebook - https://www.facebook.com/Spotlightonfasdpodcast/

    Instagram- https://instagram.com/spotlightonfasd/

    Twitter - https://twitter.com/spotlightonfasd?s=21

     

    FASD Hope -

    https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    Twitter - https://twitter.com/fasdhope

    LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

    Racket - @fasdhope

    Clubhouse - @natalievecc

    Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

     

     

    37 min
  • 118 - Wired Differently - A Conversation with Gilberto Spencer

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

    Episode 118 highlights the AMAZING ADVOCACY of Gilberto Spencer! Gilberto is a serial entrepreneur, Life & Brain Coach, FASD Self-Advocate & Mentor. Gilberto is a neurodivergent who wasn’t aware of it until 2020 when he was diagnosed with FASD, ADHD, chronic stress, anxiety and depression amongst other conditions at age 33. “After trying all the available and traditional routes, psychiatrists, psychologists and counsellors and in a desperate attempt to improve and don’t give up on himself he came across Life Coaching and after seeing the extraordinary and life-changing results he decided to become a Life & Brain Coach himself to help others struggling with those conditions.” (Source- Wired Differently)

     
    In this HIGHLY MOTIVATIONAL episode, Gilberto shares his FASD journey, receiving his FASD diagnosis as an adult, his passion for FASD advocacy and helping others with FASD through his podcast / life coaching and his motivational words of encouragement and hope. 
     
    EPISODE RESOURCES - 
     
    Gilberto Spencer, Wired Differently Life and Brain Coaching - 
    https://www.wired-differently.com/
     
    Gilberto's Podcast - "Wired Differently: All About Brain Function & Dysfunction, Neurodiversity + FASD" is available anywhere you find your podcasts.
     
    https://music.amazon.com/podcasts/be0c7a3e-2b34-4755-92b4-f8b13e92235d/wired-differently-all-about-brain-function-dysfunction-neurodiversity-fasd
     
     
    Facebook -  https://www.facebook.com/WiredxDifferently
    Instagram - https://www.instagram.com/wiredxdifferently_/
    Twitter -  https://twitter.com/WiredDifferentx    and  https://twitter.com/GilbertoSpencer
    LinkedIn - https://www.linkedin.com/in/gilbertospencer/
     

    FASD Hope -

    https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    Twitter - https://twitter.com/fasdhope

    LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

    Racket - @fasdhope

    Clubhouse - @natalievecc

    Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    1 hr
  • 117 - FASD Hub Scotland - A Conversation with Aliy Brown
    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. 
     
    Episode 117 highlights Aliy Brown and her amazing #fasdadvocacy work through FASD Hub Scotland. Aliy Brown is the FASD Project Manager of FASD Hub Scotland and FASD Service Lead of Adoption UK.
    Aliy is an adoptive parent to three young people, one of whom has an FASD diagnosis, and Aliy understands the realities of supporting and parenting individuals with a history of PAE and FASD.  Aliy has a background in project management within the NHS and central government, is a Chartered Manager, and has previously worked in the third sector at home & overseas.  Aliy graduated from Newcastle University as a mature student in 1999 with a B.A. Hons in Social Policy and has worked for Adoption UK Scotland since 2015.  In her spare time, she likes being outdoors, spending time on adventures in her family’s motorhome, and enjoying creative crafts. 
     
    In this inspirational episode, Aliy shares: her family’s adoption & FASD stories, the comprehensive and wonderful resources offered by FASD Hub Scotland and her words of hope & inspiration.
     
    EPISODE RESOURCES -
     
    FASD Hub Scotland -
    https://www.adoptionuk.org/fasd-hub
     
    • FASD Hub Scotland helpline is open Tuesday-Friday, 10am to 2.30pm 0300 666 0006 outside these times people can leave an answer phone message or alternatively they can email the FASD Hub team at [email protected]
  • People can access a wide range of digital resources, events FASD Hub Scotland has hosted and previous Wednesday Webinars and Webinar events by visiting their YouTube channel - https://www.youtube.com/channel/UC_JeE1pfMVdVxu3hKNXuCEw?view_as=subscriber
  • Specific FASD free factsheets and education resources are available here - https://www.adoptionuk.org/factsheets-fasd
  • During April, FASD Hub Scotland will also be launching a number of new initiative with their brand new team of FASD Hub Volunteers, who are currently going through induction and getting themselves set up.  People should keep a look out on social media for more updates of activities coming to their area.

    • Facebook - https://www.facebook.com/FASDHubScot

    Instagram - https://www.instagram.com/fasdhubscotland/

    Twitter - https://twitter.com/FasdhubScotland

     

    FASD Hope -

    https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    Twitter - https://twitter.com/fasdhope

    LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

    Racket - @fasdhope

    Clubhouse - @natalievecc

    Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    26 min
  • 116 - Three Generations of FASD Exposure - A Conversation with Dr. Larry Burd
    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. 
     
    Episode 116 highlights the work, contributions and legacy of Dr. Larry Burd of the University of North Dakota. Larry Burd received his PhD from the University of Manitoba Health Science Center in Winnipeg, Manitoba in Community Health Sciences. Dr. Burd currently is a professor in the Department of Pediatrics at the University of North Dakota School of Medicine and Director of the North Dakota Fetal Alcohol Syndrome Center and FAS Clinic. Dr. Burd has been with the Pediatric Therapy Program for 40 years where he has evaluated over 18,000 children with birth defects, developmental disorders and mental illness. Dr. Burd has conducted research in 41 countries around the world. He has ongoing longitudinal studies of linked cohorts of subjects with Tourette syndrome, autism, fetal alcohol syndrome and infant mortality risk that are in their 28th consecutive year of data collection. He published over 220 professional papers on topics dealing with development and behavior in children and adolescents. He has had clinics for children with developmental disabilities and mental health disorders on Tribal Nations for over 30 years.
     
    In this enlightening and highly insightful episode, Dr. Burd discusses the following topics: Dr. Burd's legacy of work in the FASD field, his developing population-based studies in FASD, how use / misuse during pregnancy affects 3 Generations, important facts and statistics about FASD, his findings and words of encouragement.
     

    Episode Resources -

    UND FASD Center 
     
    https://med.und.edu/fetal-alcohol-syndrome-center/
     
    http://www.online-clinic.com/
     
    Dr. Larry Burd - 
     

    FASD Hope -

    https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    Twitter - https://twitter.com/fasdhope

    LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

    Racket - @fasdhope

    Clubhouse - @natalievecc

    Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    34 min
  • 115 - SPECIAL EPISODE - When The World Doesn’t Make Sense - A Conversation with Sandra Flach

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

    This is a Special Episode focusing on Ukraine, the act of war against Ukraine and how the adoption / FASD community has such strong ties with Ukraine. 

    Sandra Flach is a mom of 8 children, 5 through adoption and 2 who are diagnosed with a Fetal Alcohol Spectrum Disorder (FASD). 4 of her children are from Ukraine. She encourages and equips foster and adoptive moms through her weekly "Orphans No More" podcast. Sandra is the co-founder of Justice for Orphans and serves as the Area Director for Care Portal. Sandra and her husband Wayne have been married for 34 years. They reside in upstate New York, where they love to spend time with their 5 precious grandchildren.


    In this INSPIRATIONAL episode, Sandra and Natalie discuss the acts of war committed against Ukraine, Sandra’s close ties with Ukraine as the mom of 4 (now young adults / teens) from Ukraine, how we can serve and pray for those in Ukraine and her words of faith and hope.

     

    EPISODE RESOURCES -


    Sandra Flach - https://www.sandraflach.com/

    Sandra Flach's New Book "Orphans No More: A Journey Back to the Father"
    https://www.amazon.com/Orphans-No-More-Journey-Father-ebook/dp/B095QFN7X7/ref=sr_1_3?crid=E4UWS4TCFMZY&dchild=1&keywords=orphans+no+more&qid=1622412192&s=books&sprefix=orphans+no+more%2Caps%2C190&sr=1-3

    Justice for Orphans -   https://www.justicefororphansny.org/

    The "Orphans No More" Podcast is available anywhere you find your podcasts.

     

    FASD Hope -

    https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    Twitter - https://twitter.com/fasdhope

    LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

    Racket - @fasdhope

    Clubhouse - @natalievecc

    Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

     

    36 min
  • 114 - Lessons From Forensic Work - A Conversation with Dr. Natalie Novick Brown

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

    FASD Hope welcomes Dr. Natalie Novick Brown, a psychologist with a nationwide forensic practice , who is based in the Seattle/Tacoma area of Washington State. Dr. Brown is the editor of "Evaluating Fetal Alcohol Spectrum Disorders in the Forensic Context: A Manual for Mental Health Practice". Formally trained in Fetal Alcohol Spectrum Disorders and Forensic Investigation in Sexual Offense and Parenting Matters as well as Clinical Psychology,  Dr. Brown is certified by the Association of State and Provincial Licensing Boards and licensed as a psychologist in Washington, Florida and Alaska.

    In this enlightening and extremely insightful episode, Dr. Brown discusses the following: how she became involved in FASD clinical work, what led her to focus on forensic training & FASD, her book "Evaluating Fetal Alcohol Spectrum Disorders in the Forensic Context", important takeaways from this book and her words of encouragement and hope for those in the FASD community. 

     

    EPISODE RESOURCES -

    "Evaluating Fetal Alcohol Spectrum Disorders in the Forensic Context: A Manual for Mental Health Practice" , Edited by Dr. Natalie Novick Brown (Springer, 2021).

    https://link.springer.com/book/10.1007/978-3-030-73628-6

    Dr. Brown mentioned Kay Kelly of University of Washington

    https://adai.uw.edu/staff_members/kay-kelly/

    You can reach Dr. Brown at [email protected]

    FASD Hope -

    https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    Twitter - https://twitter.com/fasdhope

    LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

    Racket - @fasdhope

    Clubhouse - @natalievecc

    Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

     

    35 min
  • 113 - Families Moving Forward Connect App - A Conversation with Dr. Christie Petrenko

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

    Episode 113 welcomes back Dr. Christie Petrenko (Episode 32 Guest), who discusses the final stage of the resourceful, innovative and accessible "Families Moving Forward Connect App".  Christie Petrenko, Ph.D, is a clinical psychologist and researcher who has been conducting research with individuals with FASD since 2003. She completed her graduate training with Edward Riley and Sarah Mattson in San Diego, CA in 2009 and she is currently a faculty member at Mt. Hope Family Center at the University of Rochester. Her research focuses on developing and evaluating interventions for people with FASD, including the use of mobile health technology to increase access to care. She has experience in training teams of providers, both regionally and internationally, in FASD Diagnoses. Dr. Petrenko also runs a multidisciplinary FASD clinic - providing diagnostic, intervention and family support services in Rochester, NY.

    In this exciting episode, Dr. Petrenko discusses the "Families Moving Forward Connect App" and the following: the app's history, the need and goals for this app, how it's in the final testing portion of app development, how this app can be a HUGE resource for the FASD community, components of FASD Informed Care, barriers to diagnoses / care, CRITERIA to be in this final part of the Families Moving Forward app development and how the app gives her hope for the FASD Community.

    Components of FASD Informed Care: Reframing, Accommodations, Brainstorming, Building Skills and HOPE!

    Criteria to be in this last phase of (and to have access to) the Families Moving Forward App:  Families of children, between the ages of 3-12 years old, who have an FASD or Prenatal Alcohol Exposure, Able to use the app on an iPhone or iPad Apple Device, Families must live in the United States

    *If you are interested in participating in this INNOVATIVE and RESOURCEFUL app final stage, please visit the following website *

    FAMILIES MOVING FORWARD CONNECT APP

    https://www.urmc.rochester.edu/fasd-research.aspx

     

    OTHER EPISODE RESOURCES

    Mt. Hope Family Center at University of Rochester -

    Facebook - https://www.facebook.com/mthopefamilycenter

    Twitter - https://twitter.com/MtHopeFamilyCtr

     

    The Families Moving Forward Program discussed by Dr. Petrenko -

    https://familiesmovingforwardprogram.org/

     

    CiFASD -

    https://cifasd.org/

     

    FASD Hope -

    https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    Twitter - https://twitter.com/fasdhope

    LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

    Racket - @fasdhope

    Clubhouse - @natalievecc

    Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    51 min
  • 112 - Created to Be Free - A Conversation with Suzanne Emery

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

    FASD Hope welcomes back Suzanne Emery to FASD Hope! Suzanne previously guested in Episode 89 "FASCETS Friday".  Suzanne Emery has a Master in Leadership Nursing and she is a Family Nurse Practitioner. (She is a Certified Facilitator of the FASCETS Neurobehavioral Model and she is a FASCETS Program Director.) Suzanne lived in Costa Rica for over 20 years, serving families and children at risk. She worked as a resident nurse at a children's home and then as a supervisor of health for a large, childcare organization for over 15 years. Suzanne is the founder and lead facilitator of "Created to Be Free: Hope for Families Affected by Alcohol", a project started in 2013. She leads workshops, provides consulting services and facilitates family support groups - all in the area of Fetal Alcohol Spectrum Disorders, using the FASCETS neurobehavioral model. She is a single mother of two, wonderful young men, the younger has an FASD. She lives in the Portland area.

    In this FAITH-FILLED episode, Suzanne discusses the following topics: her personal and professional journey in the FASD / NB community, becoming a missionary and starting "Created to Be Free", how the church and faith-communities need to better understand and support those with FASD / NB diagnoses, comparing the NB model with Grace Based Parenting, how the church and faith-communities can better support and understand individuals with FASD / NB Diagnoses (and their families), her words of faith and hope....and what her sons have taught her.

    "For judgement is without mercy to one who has shown no mercy. Mercy triumphs over judgement." 

    - James 2:13

     

    EPISODE RESOURCES -

    Suzanne Emery -

    https://uwm.org/missionaries/27381/

    Created to Be Free -

    https://www.facebook.com/Created-to-be-Free-hope-for-children-affected-by-alcohol-318252581629117

    The video that Suzanne mentioned in this episode - 

    https://youtu.be/t7n-4-0h4mc

     

    FASD Hope -

    FASD Hope -

    https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    Twitter - https://twitter.com/fasdhope

    LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

    Racket - @fasdhope

    Clubhouse - @natalievecc

    Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

     

     

    1 hr 1 min
  • 111 - A Conversation with the DiG FASD Research Team

    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.


    Episode 111 showcases the AMAZING research and work of the DiG FASD Research Team from Indiana University School of Medicine. Today’s episode includes the following members: Tatiana Foroud, PhD, Leah Wetherill, PhD, Jeanine Schulz, MS CGC and Abigail Erickson, BS.

    Learn about the history of this FASD research study, the accomplishments of the team, goals for 2022 (hint- they need families!), their innovative strategies for research and words of hope for the #FASD community.

     

    EPISODE RESOURCES - 

    DiG FASD Research Study -

    https://digfasd.org/

    844-378-0002

     

    FASD Hope -

    https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    Twitter - https://twitter.com/fasdhope

    LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

    Racket - @fasdhope

    Clubhouse - @natalievecc

    Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    35 min
  • 110- FASD Ottawa - A Conversation with Nancy Lockwood

    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. 


    Episode 110 features Nancy Lockwood of FASD Ottawa. Nancy Lockwood is an FASD consultant and educator with over 25 years of work and lived experience supporting individuals of all ages with FASD. Nancy's current work includes building capacity at provincial and national Canadian agencies to increase their ability to support people of all ages with FASD and their families. Previously, Nancy managed ABLE2's Fetal Alcohol Resource Program, a program she helped to design in collaboration with Kids Brain Health Network, the Children's Aid Society of Ottawa, and a leading children's hospital. Nancy has provided customized FASD education workshops to thousands of professionals and front-line workers in multiple sectors. 

    During this encouraging and resource-filled episode, Nancy discusses her decades of FASD work, the development of FASD Ottawa, current (and innovative) programs, upcoming events, her wisdom and her hopes for those in the FASD community.

     

    EPISODE RESOURCES -

    FASD Ottawa

    Facebook -   https://www.facebook.com/FetalAlcoholSpectrumDisorderOttawa

    Twitter - https://twitter.com/fasdottawa

    Nancy Lockwood - [email protected]

    Nancy mentioned the "FASD and Me: Strengthening My Community" book inspired by Hope Myers and Miranda Myers.  That book can be obtained through Adopt4Life at www.adopt4life.com

     

    FASD Hope -

    https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    Twitter - https://twitter.com/fasdhope

    LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

    Clubhouse - @natalievecc

    Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    41 min

About FASD Hope

From the publisher's feed

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. The mission of FASD Hope is to bring…