FASD Hope

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. 

Episode 99 features Kansas FASD Support Group,Inc. - a diverse group of parents, caregivers, educators and FASD advocates. Kansas FASD Support Network is now a 501 (c)3 nonprofit organization, has submitted its application & is a pending FASD United Affiliate. and has grown in size and in it's advocacy efforts. The Kansas FASD Support Network, Inc. serves by  "Connecting Kansas families affected by FASD (Fetal Alcohol Spectrum Disorders). Providing information, support, and education to those living with the affects of prenatal exposure as well as advocating for change to better their lives as well." 

In this inspirational and advocacy filled episode, the members of Kansas FASD Support Network, Inc.  shared their journey in forming the group, the history of the Kansas FASD Support Network and it's exponential group in the past year, the programs and services offered to the community by the Kansas FASD Support Network , goals for 2022 and their words of hope.

Members who participated in this episode include: Kathy White, Kat Meinhardt, Jonathan Stahl, Kammi Bean, Stacy Crow and Holly Bane. 

Episode Resources -

Kansas FASD Support Group [email protected]

Facebook - https://www.facebook.com/KansasFASD

Instagram - https://www.instagram.com/kansasfasdsupportnetwork/

Twitter - https://www.twitter.com/KansasFASD/

FASD Hope Resources - 

FASD Hope 

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

Episode 96 is the FIFTH FASCETS FRIDAY episode, featuring Lance Chart. This episode, titled "A Dad's Perspective- Working As A Team".

Lance Chart is the founder and owner of "Chart Aggregate Delivery Corporation" and he served in the army for four years. He and his wife, Stacey, have been married for over 29 years and he is the father of four children, 3 grandchildren and they live on a small farm in Albany, OR. His youngest daughter has an FASD. Lance and his wife Stacey participated in their first FASCETS Training in 2013 and became certified facilitators of the FASCETS model in 2016.

In this fifth FASCETS Friday episode, Lance discusses the following topics: their family's FASD journey, how they learned about FASCETS and how the FASCETS Neurobehavioral Model changed their lives, the importance of working as a team in parenting children with FASD / Brain-Based Diagnoses, real life examples of working together, how dads are SO important in the NB parenting journey and words of hope and encouragement. #tagteamparenting

You can contact Lance through FASCETS -

https://fascets.org/

Instagram - https://www.instagram.com/fascets_inc/

Facebook  - https://www.facebook.com/FASCETS

Twitter - https://twitter.com/FASCETS2

For Professionals, Caregivers, Parents

Prerequisite: None

6 FRIDAYS

9:30am-11:30am PT (US and Canada)   

6 two-hour live online sessions 

Workshop seating is limited.

https://fascets.org/workshops/

Note - If you decide to sign up for a FASCETS training, please let FASCETS know that you were referred by FASD Hope (as this helps in supporting FASD Hope as an organization). 

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. 

November is National Adoption Month and FASD Hope is honored to have Lucas Boyce as the guest of Episode 95 titled "Living Proof". Lucas Boyce is an adoptee, an author and an FASD self-advocate. Lucas is the author of "Living Proof: From Foster Care to the White House and the NBA". He travels throughout the country and abroad presenting on topics that include faith, leadership, team work, overcoming obstacles and making a positive impact on the lives of others. Lucas is the Assistant to the County Administrator for Orange County Florida Government. Prior to his current position, Lucas served as the Business of Business of Development and Legislative Affairs for the Orlando Magic. Prior to that,  Lucas served at the White House under Former President George W. Bush. He served both at the White House and on a presidential campaign and in a three separate offices: Political Affairs, Public Liaison and the Office of the Vice President.  Lucas has served on a number of non-profits boards and he currently serves on the advisory board of the National Coalition on Adoption Institute (NCAI). Lucas is the newest board member of FASD United. 

During this INSPIRATIONAL and HOPE-FILLED conversation, Lucas shares the following: his foster care / adoption story, his FASD journey, his career highlights, his current work and advocacy work, the importance of his faith, what he hopes readers can take away from his book and his words of hope and encouragement.

"For You formed my inward parts; You covered me in my mother's womb. I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, And that my soul knows very well."

- Psalm 139:13-14

EPISODE RESOURCES-

"Living Proof: From Foster Care to the White House to the NBA" by Lucas Daniel Boyce (2011, Advantage Media Publications). You can purchase "Living Proof" where books are sold and on Amazon.

https://www.amazon.com/Living-Proof-Foster-White-House/dp/1599322579/ref=sr_1_1?dchild=1&keywords=living+proof+lucas+daniel+boyce&qid=1635566979&sr=8-1

You can reach out to Lucas at [email protected]

Facebook - https://www.facebook.com/ldboyce

Instagram - https://www.instagram.com/lucasdboyce/

LinkedIn - https://www.linkedin.com/in/lucas-boyce-mba-a49682a/

FASD United - http://fasdunited.org/

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

Episode 94 is part 2 of a 4 part, monthly series within FASD Hope titled "All About FASD - Professional Insights and Perspectives with Dr. Jerrod Brown". This month's topic is FASD and Trauma. Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Students (AIAFS) and the Editor-in-Chief of Forensic Scholars Today (FST). Jerrod has completed four separate master's degree programs and holds graduate certificates in Autism Spectrum Disorder (ASD), Other Health Disabilities (OHD) and Traumatic Brain Injuries (TBI).

In this second "All About FASD" episode, Dr. Brown educates the listener about the following topics: different types of trauma,  the importance of understanding trauma and those with FASD / brain based diagnoses, answering questions from FASD Hope listeners about Trauma, Resources and Tips for Caregivers and Words of Hope and Encouragement. 

EPISODE RESOURCES-

Dr. Jerrod Brown - [email protected]

American Institute for the Advancement of Forensic Studies (AIAFS) https://www.aiafs.com/

Facebook - https://www.facebook.com/AIAFStraining

Twitter - https://twitter.com/AIAFS2011

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), from the lens of parent advocates with over nineteen years of lived experience. 

Episode 93 shines a light on David Deere, MSW, MTh.  David Deere is the treasurer for his state's FASD United Affiliate Organization - Arkansas None for Nine. For fifteen years before his retirement, he worked on FASD Projects funded by the Centers of Disease Control and Prevention and Substance Abuse and Mental Health Services Administration. David currently serves as the co-director of the Specialty Diagnostic Resource Center, which is the first clinic and resource center in Arkansas devoted to children and adolescents suspected of having an FASD. He is a social worker, by training, and a retired member of the United Methodist clergy.

This episode highlights David's work with Arkansas None for Nine AND the "Advocating for Individuals and Families Living with Fetal Alcohol Spectrum Disorder (FASD)" - An Online Training, which will be held on November 12, 2021.

This all-day training will provide an overview of diagnosis, ramifications, interventions and prevention of fetal alcohol spectrum disorders (FASD).  Provided virtually, participants will have the opportunity to learn from leading experts in the field of FASD and Justice.

Presenters include:

-  Dr. Ken Jones and Dr. Christina Chambers of University of California in San Diego- Dr. Kenneth Lyon Jones is considered the leading expert of Fetal Alcohol Syndrome (FAS) and he was one of two doctors who first identified FAS in the US in 1973. 

-  Dr. Larry Burd of North Dakota Fetal Alcohol Syndrome Center

-  Dr. Steven Greenspan - FASD Clinician, Researcher and Author

-  Dr. Paul Connor - University of Washington

-  Dianne Smith Howard - National Disability Rights Network

-  Billy Edwards, Esquire - Deputy Public Defender, Los Angeles County Mental Health Unit

-  Dr. Douglas Waite - Pediatrician, FASD Clinician and Diagnostician - NY, NY

This event will be held via zoom from 9:00 am to 5:00 pm Central Time on Friday, November 12, 2021.

Tickets may be purchased through - https://nofasjusticecenter.org/ar-nov-2021/

"For I was hungry and you gave me something to eat, I was thirsty and you gave me something to drink, I was a stranger and you invited me in, I was sick and you looked after me, I was in prison and you came to visit me." - Matthew 25: 35-36

EPISODE RESOURCES -

Arkansas None for Nine - https://arkansasnonefornine.org/

Email - [email protected]

Facebook - https://www.facebook.com/arkansasnonefornine/

Twitter - https://twitter.com/arnonefornine

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD) , through the lens of parent advocates with over nineteen years of lived experience.

Episode 92 is the FOURTH FASCETS Friday Episode, featuring Stacey Chart and this episode is titled "Getting Ready for the Holidays".  Stacey joined FASCETS in 2020 as the Office Administrator and shortly after, became a Program Director. Although her educational background is in Early Childhood Education and she has many years of experience as a Medical Office Professional, she describes herself as "Just a Mom", as that is where she truly has gotten her life skills as a successful FASCETS Facilitator.

Her journey with FASCETS began several years prior to her employment with them, in 2013, when she and her husband attended their first FASCETS training with Diane Malbin. The training was life-changing for them and it became pretty clear that their adopted daughter, who was nearly 2 at the time, likely had FASD. Following their daughter's official diagnosis from the University of Washington, they became fierce advocates and set out to learn as much as possible. This led to Stacey and her husband becoming certified facilitators of the FASCETS Neurobehavioral model in 2016

Stacey began a website, https://www.charthope.org/  to educate people about FASD and to share hope and personal stories. She and her husband have facilitated workshops in the Willamette Valley of Oregon and all the way to New York.  Stacey lives in Oregon with her husband and youngest daughter, now 10 (who has FASD) on a mini-farm with their chickens, ducks, goats, emus, a mini-horse, dogs and cats. In addition to their young daughter, they have 3 adult children and 3 grandchildren.

In this FOURTH FASCETS Friday Episode, Stacey addresses the following (especially when getting ready for the Holidays with children / teens / young adults with FASD and other brain-based diagnoses): her own family's journey with FASD, what led both her and her husband to become FASCETS Facilitators, the dysregulation behind the holiday season, things to consider NOT to do during the holidays, ways to prepare for the holidays and words of hope.

You can contact Stacey Chart through FASCETS -

https://fascets.org/

Instagram - https://www.instagram.com/fascets_inc/

Facebook - https://www.facebook.com/FASCETS

Twitter - https://twitter.com/FASCETS2

Online Workshop Opportunity -

For Professionals, Caregivers, Parents

Prerequisite: None

6 FRIDAYS

9:30am-11:30am PT (US and Canada)   

6 two-hour live online sessions 

Workshop seating is limited. Register early.

https://fascets.org/workshops/

NOTE - If you decide to sign up for a FASCETS training, please let FASCETS know that you were referred by FASD Hope (as this helps in supporting FASD Hope as an organization).

FASD HOPE RESOURCES - 

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

Episode 91 shines a spotlight on the Hope Rising Clinic in Bothell, Washington. Hope Rising Clinic is the only clinic in the Washington region that offers comprehensive services for prenatal exposure. Podcast Host, Natalie Vecchione, speaks with Alex Lundy, M.S., CCC-SLP (Clinic Manager) and Michelle Stiller Bradley, M.A., LMHCA (Chief Program Officer) about Hope RISING Clinic. 

Michelle Stiller Bradley has worn many hats in her 30 year, social service career: therapist, case manager, forensic child interviewer, child abuse investigator, caseworker, advocate and director. Michelle has a Bachelor's Degree in Social Welfare, A Master's Degree in Counseling and she is pursuing a Doctorate in Healthcare Administration. Michelle currently serves as Chief Program Officer at Wonderland Child and Family Services, where she has worked for over a decade. While overseeing Wonderland's early intervention, Michelle developed a special interest in serving children with prenatal substance exposure. She has channeled this passion, and her personal experience raising a child with FASD, into the developmental of Wonderland's Hope RISING Clinic for Prenatal Substance Exposure, an innovative diagnostic and treatment center for children and families in the greater Seattle area. Michelle is also on the Board of Directors of NOFAS Washington. Her most important job (and hardest by far!) is parenting four children ages 12-23 years.

Alex Lundy has been leading a multidisciplinary team providing holistic services to children with prenatal substance exposure and their families. Alex began her career in the field of neurodiversity as a behavior technician for children with autism. She found joy in discovering how to enter a child's world and to teach communication, leading her to pursue a Master's Degree in Speech - Language Pathology at University of Oregon. She has worked in a variety of settings including: early intervention, outpatient clinics and schools. Alex began to notice children in the school system with emotional regulation, social skills and impulse  control - who did not have a diagnosis, but all had something in common... a history of trauma and suspected prenatal substance exposure. A few years later, Alex moved to Seattle, WA and began working at Wonderland Child and Family Services. In 2019, Hope RISING Clinic for Prenatal Substance Exposure opened their doors and Alex jumped at the chance to lead the team and learn more about the invisible disability of FASD!

In this HOPE filled conversation, Michelle and Alex discuss the following: the history of Hope RISING Clinic and it's growth in the past year, programs / services / supports offered by Hope RISING, the importance of getting an FASD Diagnosis (if suspected), goals for Hope RISING and words of hope for families of those with FASD.

Hope

RISING 

R - Resources

I - Interventions

S - Support to

I - Inspire

N - Nurture and

G - Grow

"God, grant me the serenity to accept the things I cannot change, the courage to change the things I can and the wisdom to know the difference."  - The Serenity Prayer

EPISODE RESOURCES -

Hope Rising Clinic 

https://hoperisingclinic.org/

Instagram - https://www.instagram.com/wonderlandchildfamily/

Facebook - https://www.facebook.com/WonderlandChildandFamilyServices

Twitter - https://twitter.com/wonder_families

FASD HOPE RESOURCES - 

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

Episode 90 features Heather Morris of "Nevada Families for FASD". Heather and Thomas Morris have 9 children, 4 of whom have special needs and 2 of whom have FASD. They started "Sugah Momma's Cookies" to teach job skills to their children with special needs, utilizing Heather's skills as a former pastry chef. After seeing the lack of services and recognition FASD had in Nevada, they began thinking about starting a nonprofit to benefit other families like theirs. It took several years of everything to work out, but today Nevada Families for FASD Awareness is operating and ready to serve their community. 

In this hope-filled episode, Heather discusses the following: their family's unique journey, her journey as a parent to a parent advocate, the history of "Nevada Families for FASD", the goals / resources and supports provided by "Nevada Families for FASD" and her words of hope for families and those in the FASD community.

EPISODE RESOURCES - 

Nevada Families for FASD -

https://nevadafasd.org/

[email protected]

Instagram - https://www.instagram.com/nevada_fasd/

Facebook - https://www.facebook.com/NevadaFASD

Sugah Momma's Cookies - 

Instagram - https://www.instagram.com/sugahmommascookies/

Facebook - https://www.facebook.com/sugahmommascookies

[email protected]

FASD HOPE RESOURCES - 

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!