FASD Hope

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

SEPTEMBER IS FASD AWARENESS MONTH!

Episode 79 is titled "Advocate Like A Pro" and highlights Alex Tripp.  Alex Tripp has been working with individuals with brain based disabilities for the past four years as a support professional in Ontario, Canada. She has developed a special interest in FASD and strives to create more awareness, while driving for changed towards a more supportive and inclusive world for everyone.

In this motivational episode, Alex shares the following topics: her journey / what led her to become an advocate for the FASD Community, how her FASD Advocacy work has grown in the past year, why it is SO critical to share FASD Awareness with others, examples of her "Caregiver Tips" and her words of hope for those in the FASD / NB Communities.

EPISODE RESOURCES -

Connect with Alex through-

Instagram - https://www.instagram.com/alextfasd/

Facebook - https://www.facebook.com/alexTFASD

Twitter - https://twitter.com/alexTFASD

Alex is also a Collaborator at THE CSH Collab - 

https://www.thecshcollab.com/

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

Episode 78 is a Dadcast titled "Shifting Gears and The Pivot" with John Vecchione. In this episode, John and Natalie discuss the importance of shifting gears (changing plans, making accommodations, providing supports) when parenting a young adult with an FASD and share a couple of real-life examples.  John shares how shifting gears in the FASD parenting journey is similar to shifting gears when driving. John also discusses "The Pivot" and how this strategy, that's utilized in the start-up and technology worlds, can apply to parenting and caring for children / teens / young adults with FASD and other Brain Based Diagnoses. Finally, John shares some words of encouragement and hope when it comes to changing plans.

"Teach me to do Your will, for You are my God; Let Your good Spirit lead me on level ground." - Psalm 143:10 

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

Episode 77. "More Guided Growth", welcomes back Dr. Ira Chasnoff - an award winning author, researcher, President of NTI Upstream and a Professor of Clinical Pediatrics at the University of Illinois College of Medicine in Chicago. Dr. Chasnoff is one of the nation's leading researchers in the field of child development and the effects of maternal alcohol and drug use on newborn infants, children and adolescents. Dr. Chasnoff's research, practice and contributions to the FASD and Pediatric Communities span over 40 years. Dr. Chasnoff is the co-author (along with Ronald J. Powell, Ph.D.) of "Guided Growth: Educational and Behavioral Interventions for Children and Teens with Fetal Alcohol Spectrum Disorders and Early Trauma". 

In this follow-up episode, Dr. Chasnoff explores the following topics: an update of Guided Growth , how Guided Growth has been such a well-received resource for families/ educators/ professionals, discussing the Guided Growth Book Club, understanding the connection of trauma / FASD, how Guided Growth can be a valuable resource for parents when working with teachers / administrators...and his words of encouragement and hope for families and caregivers of those children and teens with FASD.

EPISODE RESOURCES -

NTI Upstream

https://www.ntiupstream.com/

Guided Growth -

https://www.ntiupstream.com/guided-growth-about-the-book

Contact Information -

[email protected]

Instagram - https://www.instagram.com/ntiupstream/

Facebook - https://www.facebook.com/NTIUpstream

Twitter - https://twitter.com/ntiupstream

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

We are THRILLED to promote and provide an update for the FIRST Annual Run FASD Virtual 5K for FASD! Rebecca Tillou is a FASD Self Advocate, Author, Mom, Wife.....and now Race Chair and Coach of the First "Run FASD Virtual 5K". Jennifer Wisdahl (mom of three with FASD, Policy and Training Coordinator of NOFAS) and Natalie Vecchione (mom of a young adult with an FASD, co-founder of FASD Hope, Podcast Host and Author). Together, they are Team Run FASD!.  Rebecca, Jenn and Natalie share an update for Run FASD Virtual 5K.

The Run FASD Virtual 5K for FASD is taking place from September 9 through 15th, 2021. To sign up, to be a sponsor or for more information, see the below information:

https://nofaspolicycenter.org/run-fasd/

EPISODE RESOURCES -

https://nofaspolicycenter.org/run-fasd/

Jennifer Wisdahl (NOFAS) - [email protected]

Run FASD on Social Media-

Instagram - https://www.instagram.com/runfasd/

Facebook - https://www.facebook.com/groups/runfasd

Twitter - https://twitter.com/FasdRun

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. 

Episode 75 highlights Marshae Franklin. Marshae Franklin is a Licensed, Pediatric Occupational Therapist in Los Angeles, California.  She completed her undergraduate degree in Psychology and Social Behavior at the University of California - Irvine and her Masters of Science in Occupational Therapy at Howard University. After two years of experience as a clinician, Marshae decided to further her education with a post-professional Doctorate of Occupational Therapy or OTD, and she is currently enrolled at the University of Southern California. Marshae is an advocate for underserved and marginalized populations. Her current research involvement includes addressing the occupational barriers of those exposed to prenatal alcohol exposure in utero, specifically Fetal Alcohol Spectrum Disorders (FASDs). Through her continuous efforts to disseminate research as an OTD Resident at USC, Marshae hopes to dismantle health disparities by bridging the existing gaps between research, lived experiences and policy on a national and global level. 

In this ENLIGHTENING episode, Marshae educates listeners about the following topics: her professional journey and what led her to study FASD during her clinical / educational experiences, what is  Occupational Therapy, what she learned the biggest policy barriers for the the FASD population, what she learned in the research literature of how OT supports FASD, her goals and her words of hope for the FASD community.

EPISODE RESOURCES 

Marshae Franklin - 

[email protected]

Instagram - https://www.instagram.com/marshaetheot/

Twitter - https://twitter.com/MarshaetheOT

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. 

Episode 74 features Dr. Jeffrey Wozniak - Professor, Division Director of Behavioral Sciences and  Pediatric Neuropsychologist at the University of Minnesota. His research is focused on Fetal Alcohol Spectrum Disorders (FASDs) and he directs the University of Minnesota's FASD Research Program which conducts neuroimaging, neurocognitive and intervention studies in FASD. He is a past-president of the Fetal Alcohol Spectrum Disorders Study Group (FASDRG). His current research is part of the Collaborative Initiative on Fetal Alcohol Spectrum Disorders (CIFASD). Dr. Wozniak's recent efforts have included a randomized controlled trial of choline supplementation in children with FASD - the goal of which is to develop a treatment for the neurodevelopmental aspects of the disorder. Dr. Wozniak is involved in advocacy and his team work closely with the National Organization on Fetal Alcohol Syndrome (NOFAS) and the Minnesota Chapter - Proof Alliance - to inform the public about the dangers of prenatal alcohol exposure and to train professionals in diagnosing and assisting affected individuals.

In this HIGHLY INFORMATIVE episode, Dr. Wozniak explores the following topics: his professional history (and what led him to his research and work with the FASD population), the significant clinical developments in FASD research that parents and caregivers should know, the focus of his FASD research and advocacy work for the rest of 2021, what he has learned from parents of children with FASD and his words of encouragement and hope for individuals with FASD and their families.

EPISODE RESOURCES -

FASD Research at University of MN

http://fasd.umn.edu/

Collaborative Initiative on Fetal Alcohol Spectrum Disorders (CIFASD)

https://cifasd.org/

Proof Alliance -

https://www.proofalliance.org/

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

Episode 73 shines a light on Liz Grubb - wife, working mom of two (via International Adoption), adoption advocate, podcaster and co-host and co-creator of the "Two Adoptive Mamas" podcast and resource website. Many moves and a decade after beginning her career in higher education, Liz has taken a step back from residence life and engaged in full-time remote work to allow for more flexibility as a wife and adoptive mama.  She and her husband made two international trips in the last five years to bring home two school-aged children; a daughter from Poland and a son from China. Jesus, family and an amazing network of support have helped Liz navigate countless therapy sessions, specialist appointments and a variety of procedures. Liz is committed to helping other adoptive mamas thrive personally and professionally amidst the growing needs of family and school-aged children, fully trusting in God's handiwork and plan to use this "hard" for His Glory!

In this INSPIRATIONAL FILLED episode, Liz discusses the following topics: her family's adoption journey, learning about FASD, being a parent advocate, her steadfast foundation in her faith, how her faith carries her through the "hard" of their family's journey, the "Two Adoptive Mamas" podcast / website and her words of hope for those parents and families of kids with FASD.

"Again, the kingdom of Heaven is like treasure hidden in a field, when a man found and hid, and for joy over it he goes and sells all that he has and buys that field."  - Matthew 13:44

EPISODE RESOURCES -

Two Adoptive Mamas - https://twoadoptivemamas.com/

The Two Adoptive Mamas podcast is available wherever you find your podcasts.

Instagram - https://www.instagram.com/2adoptivemamas/

Facebook - https://www.facebook.com/2adoptivemamas/

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

We are THRILLED to announce the FIRST Run FASD Virtual 5K for FASD! Rebecca Tillou is a FASD Self Advocate, Author, Mom, Wife.....and now Race Chair and Coach of the First "Run FASD Virtual 5K". Jennifer Wisdahl (mom of three with FASD, Policy and Training Coordinator of NOFAS) and Natalie Vecchione (mom of a young adult with an FASD, co-founder of FASD Hope, Podcast Host and Author) are the Run FASD Virtual 5K Organization & Support Team.  Rebecca, Jenn and Natalie share the beginnings of Run FASD Virtual 5K and their hopes and vision for this upcoming Virtual 5K!

The Run FASD Virtual 5K for FASD is taking place from September 9 through 15th, 2021. To sign up, to be a sponsor or for more information, see the below information:

https://nofaspolicycenter.org/run-fasd/

EPISODE RESOURCES -

https://nofaspolicycenter.org/run-fasd/

Jennifer Wisdahl (NOFAS) - [email protected]

Run FASD on Social Media-

Instagram - https://www.instagram.com/runfasd/

Facebook - https://www.facebook.com/groups/runfasd

Twitter - https://twitter.com/FasdRun

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

Episode 71 shines a spotlight on Susan Elsworth, Founder and Executive Director of Indiana NOFAS, Inc. - a nonprofit corporation serving families and individuals with prenatal exposure to substances and alcohol. Susan is also the Director of Perinatal Substance Abuse and Family Advocacy for Mental Health America of Indiana. Susan is the NOFAS Affiliate Coordinator of the NOFAS network. Indiana NOFAS is a subsidiary of Mental Health America of Indiana, who seeks to provide support and services to individuals and their families, while advocating for positive system change a holistic across the lifespan.

During this HOPE FILLED episode, Susan explores the following topics: her family's journey in FASD, the transformation of her as a "Go-To Mom About FASD" to FASD Parent Advocate, the importance of safety plans, the importance of grieving, the innovative educational and training opportunities offered through Indiana NOFAS and her words of encouragement and hope for the FASD community. 

#stopthebounce

EPISODE RESOURCES - 

Indiana NOFAS

https://indiananofas.org/

Facebook - https://www.facebook.com/IndianaNOFAS

Instagram - https://www.instagram.com/indiananofas/

Twitter - https://twitter.com/IndianaNOFAS

LinkedIn - https://www.linkedin.com/in/susan-elsworth-a9373440/

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience. 

Episode 70 highlights Tara Murphy of "The Parenting Frontier". Tara Murphy is the mother of two children diagnosed with developmental disabilities. She has successfully secured effective therapies for them from medical insurance and appropriate educations from her school district. This included multiple, due process hearings. Six years of experience in advocating for her own children has made Tara want to fight for other children as well.  Tara believes that advocating for children with disabilities should begin as early as possible in order to maximize their outcomes. Based in New Jersey, Tara is knowledgeable about state practices and the IDEA (Individuals with Disabilities Education Act), which applies to children in every state. Tara is a SPAN Resource Parent, a Volunteer Advocacy Ambassador for Autism Speaks member of the Somerset County, NJ Advisory Council on Disability Issues and member of the Council of Parent Attorneys and Advocates (COPAA).

In this resourceful episode, Tara discusses the following topics: her family's journey and what led her to become a parent advocate, her current work through "The Parenting Frontier", services and supports offered through "The Parenting Frontier" and words of encouragement and hope for parents and caregivers of children / teens with developmental disabilities / neurodiversity.

Episode Resources -

The Parenting Frontier -

https://theparentingfrontier.com/

Tara Murphy - [email protected]

Instagram - https://www.instagram.com/parentingfrontier/

FASD Hope -

https://www.fasdhope.com/

[email protected]

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!