FASD Hope

FASD Hope

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FASD Hope episodes

  • 69 - Families Like Ours - The Dadcast with Brett Monk

    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.

     

    Episode 69 is this month's Dadcast and our guest is Brett Monk. Brett is the Director and Writer of Mount Hideaway Series. He and his wife built his family through foster adoption and he and his wife homeschool their daughter. Brett is a filmmaker and screenwriter with over thirty years of experience in writing, directing, editing and a variety of crew positions for film and video production. His work experience is mainly centered around media production and small business leadership. Over four years ago, he developed the Mount Hideaway Mysteries Series. 

     

    In this INSPIRATIONAL episode, Brett, Natalie and John explore the following topics: the adoption journey of Brett's family and how his daughter came home, why he and his wife chose to homeschool their daughter, what led to the formation of "Mount Hideaway Mysteries" , his words of encouragement for dads whose families were build through adoption and his words of hope for families who are on unique and hard journeys.

     

    "God sets the solitary in families; He brings out those who are bound into prosperity; But the rebellious dwell in a dry land."  - Psalm 68:6

     

    EPISODE RESOURCES - 

    Mount Hideaway Mysteries - https://www.mounthideaway.com/

    https://www.amazon.com/Mount-Hideaway-Mysteries-Exes-Nos/dp/B07L5W813X

    Facebook - https://www.facebook.com/mounthideaway

    Instagram - https://www.instagram.com/mounthideaway/

    LinkedIn - https://www.linkedin.com/in/brettmonk/

     

    FASD Hope -

    https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    Twitter - https://twitter.com/fasdhope

    LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

    Clubhouse - @natalievecc

     

    Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

     

    1 hr
  • 68 - FASD Advocacy and Social Media - A Conversation with Aubrey Page

    FASD Hope is podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.

     

    Episode 68 highlights Aubrey Page - an FASD Parent Advocate, FASD Educator, Disability Advocate and Parent Mentor. Aubrey and her husband, Nelson, founded "The Change Starts Here Collaborative". The CSH Collab helps families and professionals working with individuals with brain-based disabilities to feel confident and supported by providing a library of resources and a sense of community, so that they are empowered in supporting these individuals and advocating for their own needs.

     

    Aubrey will be opening up applications for the first year of a mentoring program "Making Change for FASD". It will involve 6 weeks of content that will equip the program student to advocate for FASD in their own community. Together, the students and Aubrey will partner up to work on a project to raise awareness for FASD Awareness Day on September 9th.

     

    In this "kick-start your advocacy up a notch" episode, Aubrey shares a few tips...

    When Advocating for FASD: 

    -  Know Your Facts

    -  Language Matters

    -  Consider Dignity and Privacy

     

    When Advocating for FASD on Social Media:

    -  Be Timely

    -  Be Relevant

    -  Engage with Your Audience

     

    EPISODE RESOURCES -

    Aubrey Page - Founder of The CSH Collaborative

    https://www.thecshcollab.com/

    Instagram - https://www.instagram.com/thecshcollab/

    Facebook - https://www.facebook.com/thecshcollab/

    Twitter - https://www.twitter.com/aubreypagefasd/

    Twitter - https://www.twitter.com/thecshcollab/

    LinkedIn- https://www.linkedin.com/in/aubreyppage/

     

     

    FASD Hope -

    https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    Twitter - https://twitter.com/fasdhope

    LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

    Clubhouse - @natalievecc

     

    Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

     

     

    46 min
  • 67 - BREAKING NEWS - FASD Across America Finale with Emmaus Holder

    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.

     

    BREAKING NEWS! Emmaus Holder of FASD Across America has just FINISHED his 4,300 bike trip from North Carolina to California!  Episode 67 celebrates Emmaus Holder (Episode 55 guest), a student at the University of North Carolina - Chapel Hill, where he is a Morehead-Cain Scholar. He is an alumni and a mentor of the program known as H.Y.P.E. or Helping Yourself with Pride Through Education, which is a step team focused on academic achievement, community engagement, mentorship and competitive dance. Emmaus is the oldest of five, including two brothers with FASD.

     

    FASD Hope was honored to interview Emmaus within an hour after he finished his 4.300 mile coast-to-coast trip. Emmaus shares his experiences from his trip, what he learned from interviewing individuals with FASD / their families and his words of hope for the FASD Community.  We were honored to be joined by Mr. Joyner and his teammates of the H.Y.P.E. step team to surprise Emmaus in congratulating him on his AMAZING ACCOMPLISHMENT!  

     

    EPISODE RESOURCES - 

    https://www.thecshcollab.com/bike

     

    FASD Hope -

    https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    Twitter - https://twitter.com/fasdhope

    LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

    Clubhouse - @natalievecc

    Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

     

     

    21 min
  • 66 - Oshay’s FASD - A Conversation with Maryelen and Paula McPhail

    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.

     

    Episode 66 shines a light on an AMAZING. nonprofit organization in Scotland, Oshay's FASD, which is run by Maryelen and Paula McPhail. Oshay's FASD is a social enterprise based in Ayr with a mission of supporting families of / and children living with FASD. Maryelen is the mom of children with FASD with over 21 years of lived experience. Paula is a young adult living with an FASD and an AMAZING self-advocate. Together, Maryelen and Paula have developed Oshay's FASD to educate, support and train families / individuals / professionals wanting to learn more about FASD. Oshay's FASD runs workshops for teachers, social workers and carers, where they can learn to identify the symptoms of FASD, learn coping strategies and learn how to support children living with FASD. 

     

    In this HEARTFELT and HOPE-FILLED episode, Maryelen and Paula discuss the following topics: their family's FASD journey, what motivated Maryelen and Paula to start Oshay's FASD, programs and services offered by Oshay's FASD, how people can support Oshay's FASD and words of hope for families and individuals with FASD.

     

    EPISODE RESOURCES -

    Oshay's FASD -

    https://www.oshaysfasd.org/

    Mobile - +44 (0) 7796 135659

    Instagram - https://www.instagram.com/oshays_fasd/

    Facebook - https://www.facebook.com/oshaysfasd/

    Twitter - https://www.twitter.com/FasdOshay/

    Clubhouse - @oshaysfasd

     

    FASD Hope -

    https://www.fasdhope.com/

    Instagram -  https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1/

    Twitter - https://www.twitter.com/fasdhope/

    LinkedIn - https://www.linkedin.com/in/natalie-vecchione-17212160/

    Clubhouse - @natalievecc

     

    Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

     

    41 min
  • 65 - BREAKING NEWS - FASD Legislation Update

    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience. 

     

    Episode 65 is an EXCITING, HOPE-FILLED FASD Legislation Update with Susan Shepard Carlson and Jenn Wisdahl! FASD Hope welcomes back Susan Shepard Carlson, Former First Lady of Minnesota and Chair of the NOFAS Legislative and Policy Committee and Jenn Wisdahl is an FASD Parent Advocate and NOFAS Policy and Training Center Coordinator. Together, Susan and Jenn provide an update on the National FASD Legislation, "The FASD Respect Act", H.R. 4151 and S.2238. 

     

    This BREAKING NEWS episode provides an update on the introduction of The FASD Respect Act - H.R. 4151 and S. 2238. This IMPORTANT and CRITICAL FASD legislation now needs the FASD Community (parents, caregivers, professional, relatives, loved ones and self-advocates) to rally and reach out to their senators and representatives to hear WHY this legislation is SO needed! The time for us to get in touch and communicate with our legislators is NOW! This time is especially critical, as it is during the Summer Recess times of the Senate and House of Representatives. Jenn shares how everyone can learn HOW to get in touch with their senators and representatives and what needs to be communicated - and guidance is provided through the NOFAS Policy Center website.  This episode is a CALL TO ACTION for everyone to help get this legislation passed!

     

    "Alone we can do so little, together we can do so much."   - Helen Keller

     

    EPISODE RESOURCES -

    The NOFAS Policy and Training Center -

    https://nofaspolicycenter.org/

    Jenn Wisdahl, Policy and Training Center Coordinator

    202-601-2530

    90 Days, 90 Ways Support #FASDRespect

    https://nofaspolicycenter.org/90-days-90-ways/

    Facebook - FASD Respect Act Champions - https://www.facebook.com/groups/459616135300282

     

    FASD Hope -

    https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Twitter - https://twitter.com/fasdhope

    Facebook - https://www.facebook.com/fasdhope1/

    LinkedIn - https://www.linkedin.com/in/natalie-vecchione-17212160/

    Pinterest - https://www.pinterest.com/fasdhope1/

    Clubhouse - @natalievecc

     

    Check out our new book - "Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities" by Natalie Vecchione and Cindy LaJoy. BUY NOW on Amazon

    https://amzn.to/3w8nQgK

     

     

     

    33 min
  • 64 - Changes for Generations - Part 2 - A Conversation with Dr. Susan Rich

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), from the lens of parent advocates with over eighteen years of lived experience. 

     

    June is Book Month on FASD Hope, to shine a light on a variety of authors in the FASD Community. Episodes 63 and 64 highlight Dr. Susan Rich. Dr. Susan Rich is a Child / Adolescent Psychiatrist and a champion in the field of FASD Clinical work and research. In addition to her psychiatric and clinical work in FASD, she also holds a Master's Degree in Public Health. Dr. Rich's life work is in the evaluation and treatment of Neurodevelopmental Disorder Associated with Prenatal Alcohol Exposure (ND-PAE), autism-related issues and individuals with histories of complex trauma, institutional, adoption, foster care and adjudication. Dr. Rich has been certified as an expert in a number of capital habeas cases and provides forensic evaluations and clinical reports for several death penalty pre-trial hearings and appeal trials. Dr. Rich is the author of "The Silent Epidemic: A Child Psychiatrist's Journey Beyond Death Row" (2016). In 2016, Dr. Rich also formed the nonprofit organization "7th Generation Foundation, Inc." and "Dream Catcher Farm" in Maryland.

     

    In the second part of this two part episode, Dr. Rich discusses the following topics: what led her to form the nonprofit 7th Generation Foundation, Inc. and The Dream Catcher Farm, how Dream Catcher Farm focuses on social / recreational / vocational opportunities, the backstories of the animals on the Dream Catcher Farm (and how the children / teens connect with the animals, how people can learn more about Dr. Rich's nonprofit and her words of hope for parents, and loved ones of those with FASD.

     

    EPISODE RESOURCES -

    Dr. Susan Rich - 

    https://www.susandrich.com/index.html

     

    "The Silent Epidemic: A Child Psychiatrist's Journey Beyond Death Row"

    https://www.amazon.com/Silent-Epidemic-Psychiatrists-Understanding-Neurodevelopmental/dp/1483448819/ref=sr_1_5?crid=2KWRK86785H8&dchild=1&keywords=the+silent+epidemic&qid=1624666339&s=books&sprefix=The+Silent+Epidemic+%2Caps%2C395&sr=1-5

     

    7th Generation Foundation, Inc. and Dream Catcher Meadows -

    http://www.7thgenerationfoundationinc.org/index.html

     

    Dream Catcher Meadows on Facebook -

    https://www.facebook.com/TheDreamCatcherFarm

     

    FASD Hope -

    https://www.fasdhope.com

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1/

    Pinterest - https://www.pinterest.com/fasdhope1/

    LinkedIn - https://www.linkedin.com/in/natalie-vecchione-17212160/

    Clubhouse - @natalievecc

     

    Check out our new book -  "Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities" by Natalie Vecchione and Cindy LaJoy

    BUY NOW on Amazon

    https://amzn.to/3w8nQgK

     

    31 min
  • 63 - Changes for Generations - Part 1 - A Conversation with Dr. Susan Rich

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), from the lens of parent advocates with over eighteen years of lived experience. 

     

    June is Book Month on FASD Hope, to shine a light on a variety of authors in the FASD Community. Episodes 63 and 64 highlight Dr. Susan Rich. Dr. Susan Rich is a Child / Adolescent Psychiatrist and a champion in the field of FASD Clinical work and research. In addition to her psychiatric and clinical work in FASD, she also holds a Master's Degree in Public Health. Dr. Rich's life work is in the evaluation and treatment of Neurodevelopmental Disorder Associated with Prenatal Alcohol Exposure (ND-PAE), autism-related issues and individuals with histories of complex trauma, institutional, adoption, foster care and adjudication. Dr. Rich has been certified as an expert in a number of capital habeas cases and provides forensic evaluations and clinical reports for several death penalty pre-trial hearings and appeal trials. Dr. Rich is the author of "The Silent Epidemic: A Child Psychiatrist's Journey Beyond Death Row" (2016).

     

    In the first part of this two part episode, Dr. Rich discusses the following: her professional background and what led her to work in the FASD field, how society needs to normalize sobriety, her book "The Silent Epidemic: A Child Psychiatrist's Journey Beyond Death Row" and what she wants readers to take away from her book. 

     

    EPISODE RESOURCES -

    Dr. Susan Rich - 

    https://www.susandrich.com/index.html

     

    "The Silent Epidemic: A Child Psychiatrist's Journey Beyond Death Row"

    https://www.amazon.com/Silent-Epidemic-Psychiatrists-Understanding-Neurodevelopmental/dp/1483448819/ref=sr_1_5?crid=2KWRK86785H8&dchild=1&keywords=the+silent+epidemic&qid=1624666339&s=books&sprefix=The+Silent+Epidemic+%2Caps%2C395&sr=1-5

     

    7th Generation Foundation, Inc. and Dream Catcher Meadows -

    http://www.7thgenerationfoundationinc.org/index.html

     

    Dream Catcher Meadows on Facebook -

    https://www.facebook.com/TheDreamCatcherFarm

     

    FASD Hope -

    https://www.fasdhope.com

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1/

    Pinterest - https://www.pinterest.com/fasdhope1/

    LinkedIn - https://www.linkedin.com/in/natalie-vecchione-17212160/

    Clubhouse - @natalievecc

     

    Check out our new book -  "Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities" by Natalie Vecchione and Cindy LaJoy.  BUY NOW on Amazon

    https://amzn.to/3w8nQgK

     

     

    42 min
  • 62 - Explained by Brain - A Conversation with Dr. Vanessa Spiller

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), from the lens of parent advocates with over eighteen years of lived experience.

     

    June is Book Month on FASD Hope, to shine a light on a variety of authors in the FASD Community. Episode 62 features Dr. Vanessa Spiller, author the book "Explained by Brain: The FASD Workbook for Parents, Carers and Educators". Dr. Vanessa Spiller is a Clinical Psychologist with over 20 years of clinical experience. She works therapeutically using a Feedback Informed Approach with adults and young people with families and young people on issues such as anxiety, adjustment to change, trauma and grief and loss. She also works with families and young people impacted by FASD. Dr. Spiller utilizes evidence-based approaches combined with practice-based evidence to ensure that the work done together is meaningful, helpful and on-track! Dr. Spiller has also worked in several Australian universities and provides lectures and professional development activities in areas such as professional practice, child and adolescent work and adult psychology and ethics. 

     

    This enlightening and resource-packed episode includes the following topics: Dr. Spiller's professional and personal journey in the FASD Community, her FASD work (and how it's grown in the past years), her current FASD work / advocacy, discussing how Australia has grown in FASD awareness / research and education, her book "Explained by Brain" and her words of hope as both a clinician and a parent of a young adult with an FASD.

     

    EPISODE RESOURCES-

    Dr. Vanessa Spiller - www.jumpstartpsychology.com

    "Explained by Brain: The FASD Workbook for Parents, Carers and Educators"

    https://www.amazon.com/Explained-Brain-Workbook-Educators-everything/dp/0995353212/ref=sr_1_1?dchild=1&keywords=Explained+by+Brain+FASD&qid=1623696162&sr=8-1

     

    FASD Hope -

    https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    LinkedIn - https://www.linkedin.com/in/natalie-vecchione-17212160/

    Pinterest - https://www.pinterest.com/fasdhope1/

    Clubhouse - @natalievecc

     

    Check out our new book "Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities" by Natalie Vecchione & Cindy LaJoy.  BUY NOW on Amazon

    https://amzn.to/3w8nQgK

     

     

     

    1 hr 2 min
  • 61 - Road Trips and Gratitude- The Dadcast

    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.

     

    Episode 61 is a Dadcast Episode with John and Natalie Vecchione.  Affectionately titled "Road Trips and Gratitude", John and Natalie discuss an upcoming road trip (thinking about accommodations) and not having expectations for this road trip. With Father's Day soon approaching, John and Natalie also discuss having gratitude. Natalie shares how she is thankful for John and everything he does for their family.

     

    "Praise the Lord. Give Thanks to the Lord, for He is good; His love endures forever." - Psalm 106:1

     

    FASD HOPE - 

    https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1/

    Pinterest - https://www.pinterest.com/fasdhope1/

    Clubhouse - @natalievecc

     

    Check out Natalie's new book - "Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities" by Natalie Vecchione and Cindy LaJoy on Amazon - BUY NOW on Amazon

    https://amzn.to/3w8nQgK

     

    18 min
  • 60 - FASCETS - A Conversation with Nathalie Brassard

    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), from the lens of parent advocates with over eighteen years of lived experience.

     

    June is FASD Book Month at FASD Hope! FASD Hope celebrates it's 60th episode by featuring FASCETS and the Executive Director of FASCETS, Nathalie Brassard. FASCETS was developed as an extension of the GROUND BREAKING book about FASD, which was first published in 1997, "Trying Differently Rather Than Harder: Fetal Alcohol Spectrum Disorders" by Diane Malbin, MSW. The "Trying Differently Rather Than Harder" book is considered the sentinel and go-to book about FASD. It is often the book that podcast host, Natalie Vecchione, recommends to ANYONE wanting to learn about FASD.

     

    In this enlightening episode, Nathalie and Natalie discuss the following topics: the history of FASCETS and the "Trying Differently Rather Than Harder" book, how FASCETS has grown in it's 24 years. the growth of FASCETS online training (especially since the COVID19 Pandemic), trainings updates and how FASCETS and FASD Hope will be partnering to bring "FASCETS Fridays" episodes in the near future.

     

    EPISODE RESOURCES -

    FASCETS

    https://fascets.org/

    Facebook - https://www.facebook.com/FASCETS

    Instagram - https://www.instagram.com/fascets_inc/

    "Trying Differently Rather Than Harder: Fetal Alcohol Spectrum Disorders" by Diane Malbin, MSW

    https://www.amazon.com/gp/product/0972953205/ref=as_li_qf_asin_il_tl?ie=UTF8&tag=fasdhope-20&creative=9325&linkCode=as2&creativeASIN=0972953205&linkId=ffdc6ec315ada4981ab5ade0169c170f

     

    FASD Hope -

    FASD Hope - https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    LinkedIn - https://www.linkedin.com/in/natalie-vecchione-17212160/

    Clubhouse - @natalievecc

    READ OUR NEW BOOK ! -  "Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities" by Natalie Vecchione and Cindy LaJoy.  BUY NOW on Amazon

    https://amzn.to/3w8nQgK

     

    43 min

About FASD Hope

From the publisher's feed

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. The mission of FASD Hope is to bring…