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FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Twice a month, FASD Hope partners with FASCETS for "FASCETS Fridays". FASCETS Facilitators teach our listeners about a variety of topics related to FASD and other brain-based diagnoses.
Episode 89 is the THIRD FASCETS Friday episode featuring Suzanne Emery and this Episode is titled “Receiving a FASD Diagnosis Later in Life". Suzanne Emery has a Master in Leadership Nursing and she is a Family Nurse Practitioner. She is a Certified Facilitator of the FASCETS Neurobehavioral Model and she is a FASCETS Program Director. Suzanne lived in Costa Rica for over 20 years serving families and children at risk. She worked as a resident nurse at a children's home and then as a supervisor of health for a large, child care organization for over 15 years. Suzanne is the founder and lead facilitator for "Created to Be Free: Hope for Families Affected by Alcohol", a project started in 2013. She leads workshops, provides consulting services and facilitates family support groups - all in the area of Fetal Alcohol Spectrum Disorders, using FASCETS neurobehavioral model. She is a single mother of two wonderful young men; the younger has an FASD. She lives in the Portland area.
This 3rd FASCETS Friday Episode is titled " Receiving a FASD Diagnosis Later in Life" and Suzanne discusses the following: her journeys in parenthood and becoming a FASCETS Facilitator, why receiving a FASD Diagnosis later in life (if one is suspected) an important foundation in the NB model of parenting / caregiving, practical reasons for seeking a diagnosis later in life and words of hope for listeners.
EPISODE RESOURCES -
FASCETS
You can contact Suzanne Emery through FASCETS
https://fascets.org/
Instagram - https://www.instagram.com/fascets_inc/
Facebook - https://www.facebook.com/FASCETS
Twitter - https://twitter.com/FASCETS2
For Professionals, Caregivers, Parents
Prerequisite: None
6 TUESDAYS
12:00pm-2:00pm PT (US and Canada)
6 two-hour live online sessions
https://fascets.org/workshops/
NOTE - If you decide to sign up for a FASCETS training, please let FASCETS know that you were referred by FASD Hope (as this helps in supporting us as an organization).
FASD HOPE RESOURCES -
https://www.fasdhope.com/
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 88 welcomes back Kathy Kuhl of Learn Differently. In this episode, titled "Encouraging Your Child", Kathy discusses her book (of the same title) and how it can be a guide book for ANY parent, grandparent, teacher or anyone who wants to provide encouragement to children. Among Kathy's accomplishments include: publishing 3 books, being a homeschool consultant and the Founder of Learn Differently, presenting at workshops across the US / internationally, leading homeschool groups and serving on the boards of homeschool organizations. Kathy and her husband reside in Virginia and she enjoys reading, traveling, hiking and spending time with her children and grandchildren.
In this reassuring and resourceful episode, Kathy discusses the following topics: an update since her last FASD Hope episode, the motivation behind "Encouraging Your Child", encouragement and takeaways for parents.
"Have I not commanded you? Be strong and of good courage; do not be afraid, nor be dismayed, for the Lord your God is with you wherever you go." - Joshua 1:9
EPISODE RESOURCES -
Kathy Kuhl -
https://www.learndifferently.com/
The Gottman Institute -
https://www.gottman.com/
FASD HOPE RESOURCES -
https://www.fasdhope.com/
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
John and Natalie Vecchione, co-founders of FASD Hope, share their thoughts, struggles, goals and hopes in Episode 87, titled "It's Been A Year". FASD Hope celebrates it's one year anniversary on October 1, 2021.
"The Lord is my rock and my fortress and my deliverer; My God, my strength, in whom I will trust; My shield and the horn of my salvation, my stronghold." - Psalm 18:2
FASD HOPE RESOURCES -
https://www.fasdhope.com/
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 86 highlights the upcoming ProofCon 2021 Virtual Conference and features Shauna Feine of Proof Alliance. This year's ProofCon Conference is the 10th annual FASD Conference of Proof Alliance and will be held online from October 13-15, 2021.
Shauna Feine has been with Proof Alliance for six years as the Senior Training Coordinator. She also serves on the board of directors for the Minnesota Fathers and Families Network (MFFN). Shauna received her Bachelor's of Science Degree from Minnesota University - Manakato, with a focus on neurodevelopmental disabilities, chemical dependency and mental health and she has more than ten years of experience working with individuals with various types of disabilities.
In this INFORMATIVE episode, Shauna discusses: the details of ProofCon 2021, keynote speakers, how it’s virtual platform allows for increased accessibility from around the globe, participants are able to access presentations both in real time and through January 2022 and highlights of the upcoming conference.
EPISODE RESOURCES
ProofCon2021 Information -
https://www.proofalliance.org/conference/
FASD HOPE RESOURCES -
https://www.fasdhope.com/
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
FASD Hope is partnering with FASCETS for "FASCETS Fridays", which will air twice a month. FASCETS Facilitators will be teaching our listeners about a variety of topics related to FASD and other brain-based diagnoses.
Episode 85 is the SECOND FASCETS Friday episode and features Melissa Elligson. Melissa Elligson is a Certified Facilitator of the FASCETS Neurobehavioral Model and a FASCETS Program Director. She is also a community-based counselor in Roanoke, VA. Melissa holds a Master's Degree from Seton Hall University and she has spent the past twenty years as an advocate, community counselor and trainer. Her passion is working with children and families living with neurobehavioral conditions and providing training on an international level. Melissa became frustrated that traditional models were not working within the community and this brought her Diane Malbin and her journey with FASCETS. Melissa is currently providing training, consultation and family groups. She is also working on developing a community-based diagnostic clinic in Southwest Virginia.
This second FASCETS Friday Episode is titled "Brain First and Examining Our Values" and Melissa shares the following: her journey in becoming a FASCETS Facilitator, why thinking 'brain first" and examining our values are a foundation of the FASCETS Neurobehavioral Model, real-life examples of "brain first" and examining our values, how parents / caregivers / educators can start taking small steps in changing their values to make a better fit and words of hope for listeners.
FASCETS
You can contact Melissa Elligson through FASCETS
https://fascets.org/
Instagram - https://www.instagram.com/fascets_inc/
Facebook - https://www.facebook.com/FASCETS
Twitter - https://twitter.com/FASCETS2
Upcoming FASCETS Workshops / Trainings -
NEUROBEHAVIORAL CONDITIONS INCLUDING FASD
For Professionals, Caregivers & Parents (Prerequisite - None)
6 TUESDAYS
October 5 – November 9, 2021
12:00pm-2:00pm PT (US and Canada)
6 two-hour live online sessions
https://fascets.org/workshops/
NOTE - If you decide to sign up for a FASCETS training, please let FASCETS know that you were referred by FASD Hope (as this helps in supporting us as an organization).
FASD HOPE RESOURCES -
https://www.fasdhope.com/
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 84 is an INSPIRATION-FILLED Episode with Melissa Jacobus. Melissa Jacobus has been advocating for her adopted children and the rights of all individuals with FASD since 1998. At the national level, she is a parent advocate and member of the Justice Task Force for the National Organization Fetal Alcohol Syndrome (NOFAS), serves on the Advisory Committee for FASD Communities and served as a member of the Speakers Bureau for the Centers for Disease Control's FASD Southeast Regional Training Center. In 2019, Ms. Jacobus was inducted into the NOFAS' Tom and Linda Daschle FASD Hall of Fame. Melissa is also active at the state in Georgia. Among her accomplishments, in 2012, she presented at the Georgia Department of Behavioral Health and Developmental Disabilities Suicide Prevention Program and the Supreme Court of Georgia's Committee on Justice for Children. In 2013, her work led Governor Deal to designate September 9th as FASD Awareness Day, which has continued under the current governor, Brian Kemp. Melissa co-led the 2018 Atlanta Training on FASD at the State Bar of Georgia. In May 2021, she published a book about FASD advocacy titled, The Accomplice. Melissa received a Bachelor of Science in Broadcasting from the University of Florida. She worked for the Tribune Broadcasting Company and she was awarded the company's highest honor for customer service before resigning in 1997, to devote herself fulltime to raising awareness and understanding FASD. She resides in Atlanta, GA.
In this HOPE-FILLED episode, Melissa explores the following topics: her family's journey, early advocacy efforts, when she shifted from local FASD parent advocate to regional / national advocate, her involvement in the FASD justice conferences, what led her to write her book The Accomplice, the importance of her faith, the living angels in her life and what she hopes readers can take away from her book.
"Teach me to do Your will, For You are my God; Your Spirit is good. Lead me in the land of uprightness." - Psalm 143:10
CLARIFICATION MESSAGE FROM EPISODE GUEST -
"Guest Melissa Jacobus inadvertently mentioned that she presented with Billy Edwards in Missouri and New Orleans, when in actuality, she presented with Billy Edwards in Mississippi and New Orleans."
EPISODE RESOURCES -
You can contact Melissa through the NOFAS website
https://nofas.org/
The Accomplice by Melissa Jacobus
https://www.amazon.com/Accomplice-Melissa-Jacobus/dp/1665300035/ref=sr_1_1?crid=14TED630GN1J9&dchild=1&keywords=the+accomplice+melissa+jacobus&qid=1632106013&sprefix=The+Accomplice+by+Meli%2Caps%2C178&sr=8-1
FASD HOPE RESOURCES -
https://www.fasdhope.com/
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
September is FASD Awareness Month! Episode 83 kicks off a 4 part, monthly series within FASD Hope titled "All About FASD - Professional Insights and Perspectives” with Dr. Jerrod Brown. This month's topic is FASD and the COVID19 Pandemic. Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS) and the Editor-in-Chief of Forensic Scholars Today (FST). Jerrod has completed four separate master's degree programs and holds graduate certificates in Autism Spectrum Disorder (ASD), Other Health Disabilities (OHD) and Traumatic Brain Injuries (TBI).
In this first "All About FASD" episode, Dr. Brown educates the listener about the following topics: the history of his extensive work in the FASD field, implications of the stressors of the COVID19 Pandemic on individuals with FASD (and their families), specific points about FASD and the COVID19 Pandemic, Trauma with the COVID19 Pandemic, Resources and Tips for Caregivers and Words of Hope and Encouragement.
EPISODE RESOURCES -
Dr. Jerrod Brown - [email protected]
American Institute for the Advancement of Forensic Studies (AIAFS) https://www.aiafs.com
FASD Hope -
https://www.fasdhope.com/
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with other nineteen years of lived experience.
FASD Hope is partnering with FASCETS for "FASCETS Friday" episodes, which will air twice a month. FASCETS Facilitators will be teaching our listeners a variety of topics related to FASD and other brain-based diagnoses.
Episode 81 is the FIRST episode of our FASCETS Fridays series and the topic is "Adjusting Developmental Timelines and Shifting Expectations" with Lynn Alsup. Lynn Alsup holds a Master of Social Work degree and a certificate in Spiritual Direction. In the Spring of 2014, she read Diane Malbin's "Trying Differently Rather Than Harder" while researching FASD for a friend. Lynn recognized her family's story. She dove deep into further research and began sharing her learning professionally and implementing the model at home. It transformed both her career and her family. Committed to increasing understanding, support and resiliency for neurodiverse people and their families, she became a Certified Facilitator of the FASCETS Neurobehavioral Model in 2017. Lynn founded neuro.behavioral.connections to consult with families and offer trainings across disciplines including psychiatric residency students and faculty, school educators, counselors, autism clinic providers, foster care providers, therapists and the Learning Disability Association of America. Lynn tells her story in her forthcoming memoir, "Finding Home: A Tale of Adoption and Transformation". She serves as a Program Director for FASCETS from her home in West Texas with her husband and three extraordinary, neurodiverse daughters.
In this first FASCETS Friday Episode titled "Adjusting Developmental Timelines and Shifting Expectations", Lynn explores and teaches about the following topics: her family and her professional journey, what it means to adjust developmental timeline, the importance of shifting expectations when parenting / teaching / caregiving a child / teen with FASD or other brain based diagnosis, developmental "leaps" and real life examples of these topics.
"Now to Him who is able to do exceedingly abundantly above all that we ask or think, according to the power that works in us.” - Ephesians 3:20
Post-Episode GUEST CLARIFICATION MESSAGE from Lynn Alsup -
"When I listened to our conversation, I realized I misspoke near the end of our time as I said 'full independence' is the goal of both traditional parenting and the neurobehavioral paradigm. A great example of long held beliefs and values surfacing unconsciously along the life-long journey of shifting our paradigm to trying differently rather than harder! At FASCETS, we embrace the idea that humans are interdependent. The aim isn't 'full independence', but a healthy interdependence that allows strengths to flourish and challenges to be accommodated across the lifespan. That will, of course, look different for each individual. Thanks for the opportunity to correct myself!"
EPISODE RESOURCES -
Lynn Alsup - https://lynnalsup.com/
Instagram - https://www.instagram.com/lynnalsup/
Facebook - https://www.facebook.com/neuro.behavioral.connections
FASCETS - https://fascets.org/
NOTE - If you decide to sign up for a FASCETS training, please let FASCETS know that you were referred by FASD Hope (as this helps in supporting us as an organization.)
FASD Hope -
https://www.fasdhope.com/
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 19 years of lived experience.
Episode 82 highlights Angela Paganelli, who is the founder of Foster Blessings, a foster care meals ministry, based out of the Evangelical Church in Clinton Corners, NY. They provide pizza for foster families as children come into care in their home, as well as 2 more nights of no-prep, no-cleanup meals. Foster Blessings also provides essentials such as diapers, wipes and other necessities all delivered to the foster family's door by the delivery team. The goal is to live out James 1:27 and be the hands and feet to the local fostering community.
In this heartfelt and INSPIRATIONAL episode, Angi and Natalie (podcast host) catch up and discuss the following topics: Angi's personal and family's journey, their MAPS class experiences, how Angi's faith has carried her through her incredible journey, how she was inspired to form Foster Blessings , what the Foster Blessings ministry provides for her community and her words of hope and encouragement.
"The Lord your God in your midst, The Mighty One, will save; He will rejoice over you with gladness, He will rejoice over you with gladness, He will quiet you with His love, He will rejoice over you with singing." - Zephaniah 3:17
EPISODE RESOURCES -
Email Angi Paganelli at [email protected]
Facebook - https://www.facebook.com/FosterBlessingsMealsMinistry/
Instagram - https://www.instagram.com/foster_blessingsefc/
Foster Blessings EFC - (845)-516-4218
FASD Hope -
https://www.fasdhope.com/
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 19 years of lived experience.
FASD Hope celebrates Episode 80 with a wrap up the prep work for the Run FASD Virtual 5K, which is happening from September 9 - 15, 2021. Run FASD Virtual 5K is the first race of its kind to raise awareness and support for the FASD Community....and to shine a light on the strengths of those individuals living with FASD.
Your Run FASD Virtual 5K Team is Coach and Race Chair, Rebecca Tillou and Assistant Coaches - Jennifer Wisdahl and Natalie Vecchione. Together, the team shares their hopes and excitement for this wonderful race. As Team Run FASD Virtual 5K approaches, Coach Rebecca, Jenn and Natalie also share favorite pre-race foods, race playlists and their thankfulness of the friendship they have developed in working as Team Run FASD Virtual 5K.
Registration for this race is STILL available through September 15, 2021!
Episode Resources -
RUN FASD Virtual 5K
https://nofaspolicycenter.org/run-fasd/
Run FASD on Facebook - https://www.facebook.com/groups/runfasd
Run FASD on Instagram - https://www.instagram.com/runfasd/
Run FASD on Twitter - https://twitter.com/FasdRun
FASD Hope -
https://www.fasdhope.com/
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
From the publisher's feed