Topic: Headache Medicine Advocacy: Lessons from Headache on the Hill
Hosts: Mia Minen, MD, MPH, FAHS & Angeliki Vgontzas, MD
Guests: Robert Shapiro, MD, PHD, FAHS & Annika Ehrlich, DNP, FNP-C, CNRN, AQH
Description: Advocacy is a powerful tool for improving care for people living with migraine and other headache disorders, and clinicians and patients can make an impact together. In Season 2, Episode 1 of First Contact: Headache in Primary Care, Drs. Mia Minen and Angeliki Vgontzas speak with Drs. Robert Shapiro and Annika Ehrlich about how headache advocacy has shaped policy, expanded access to treatments, and helped drive meaningful change through initiatives like Headache on the Hill and the Alliance for Headache Disorders Advocacy (AHDA). You’ll hear practical ways busy clinicians (and patients) can get involved, whether that’s joining advocacy events, writing to representatives, leveraging social media, or simply connecting patients with opportunities to use their voices.
[00:58] Why advocacy matters in headache medicine and what’s at stake
[01:38] Dr. Shapiro’s advocacy journey + the origin of Headache on the Hill
[03:57] Dr. Ehrlich on joining headache care and leading AHDA
[06:02] The goals of Headache on the Hill and where federal policy falls short
[07:40] Advocacy wins: cluster headache oxygen coverage + VA Headache Centers of Excellence
[09:15] Why patients’ voices are essential—and how clinicians and patients work together
[11:11] How to participate (including virtual options) when time/travel are barriers
[12:46] Other ways to get involved: letter writing, webinars, and social media
[14:14] How advocacy can counter burnout and restore a sense of momentum
[15:10] Advocacy as an antidote to despair and why progress is possible
Learn more about the American Headache Society’s First Contact - Headache in Primary Care program.
Learn more about getting involved with advocacy.