Chapters

00:00 Understanding ME-CFS: A Complex Illness

05:09 The Journey to Diagnosis: Misunderstandings and Challenges

10:03 The Role of Caregivers: Support and Understanding

14:53 Creating Community and Advocacy from Bed

19:53 The Emotional Landscape: Grief, Rage, and Resilience

35:41 Creating a Resource for ME-CFS Awareness

40:19 The Role of Technology and Social Media

43:34 Coping with Severe Illness and Loneliness

47:30 Finding Joy in Small Moments

55:54 Advocacy and the Fight for Recognition

01:00:02 Closing Thoughts and Future Aspirations

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From coping with severe illness to finding joy in small victories, this episode is a raw, honest, and ultimately hopeful look at resilience, advocacy, and the urgent need for change. If you’ve ever felt unseen in your health journey—or want to better understand those who are—this is a conversation you don’t want to miss.

🎧 Watch now to hear stories of strength, hope, and the fight for recognition in a world that too often looks the other way.

keywordsME-CFS, chronic illness, advocacy, caregivers, community, diagnosis, emotional health, activism, disability awareness, health care system, ME-CFS, chronic illness, advocacy, social media, technology, awareness, mental health, resilience, community, hopeFounder of #NotJustFatigue: Activism from Bed Elizabeth Ansell

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