Summary

In this conversation, Sarah Burton shares her journey with chronic illness, discussing her diagnosis, the challenges of parenting while managing health issues, and her transition from a corporate career to entrepreneurship. She emphasizes the importance of community support for individuals with chronic illnesses and the need for greater awareness and understanding in the workplace. This conversation delves into the challenges faced by entrepreneurs with chronic illnesses, emphasizing the importance of taking intentional time off, building supportive communities, and implementing effective business strategies. The speakers discuss tools for managing health while running a business, the necessity of setting boundaries, and the cultural changes needed in workplaces to accommodate diverse needs. They also highlight the significance of hiring disabled individuals and the Lilac project aimed at improving government support for disabled entrepreneurs.

Keywords

chronic illness, disability, parenting, ambition, entrepreneurship, support, community, diagnosis, mental health, workplace inclusion, chronic illness, entrepreneurship, mental health, community support, business strategies, work-life balance, disability inclusion, government support, automation tools, boundaries

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Summary

In this conversation, the speakers discuss various aspects of puppy training, particularly focusing on the challenges of training service dogs. They delve into the teenage phase of puppies, the fear periods that can arise during development, and how to manage trauma in service dogs after negative encounters with other dogs. The conversation emphasizes the importance of proper training techniques, socialization, and the need for vigilance in public spaces to ensure the safety and well-being of service dogs. This conversation delves into the essential aspects of training service dogs, focusing on foundational skills, assessment programs, handling emergencies, and navigating the challenges of training during a dog's teenage phase. The speakers discuss the importance of confidence in dogs, the differences between CGC and PDA programs, and practical advice for trainers, especially those with disabilities. They also touch on the timing of neutering and its impact on behavior, emphasizing a tailored approach to each dog's training journey.

Keywords

puppy training, service dogs, fear periods, dog behavior, trauma recovery, dog interactions, training tips, service dog management, puppy adolescence, dog anxiety, service dog training, dog behavior, training techniques, mobility aids, dog assessment programs, emergency handling, teenage dog training, neutering debate

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Summary

In this conversation, the speakers discuss the complexities of choosing and training service dogs versus puppies, emphasizing the importance of temperament, the challenges of finding suitable dogs, and the training process. They share personal experiences and insights on navigating the world of service animals, including the significance of socialization and public perception. In this conversation, the speakers discuss various aspects of puppy training, focusing on capturing natural behaviors, creating a conducive learning environment, and the importance of crate training. They also touch on navigating dog parks, the need for services for disabled dog owners, establishing routines, and essential commands for service dogs. The conversation emphasizes the significance of understanding puppy development and the challenges that come with training during different growth stages.

Keywords

service dogs, puppies, training, temperament, challenges, public perception, potty training, socialization, choosing a dog, service dog training, puppy training, dog behavior, crate training, service dogs, dog parks, routines, commands, dog owner services, puppy development, positive reinforcement

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Chapters

00:00 Understanding ME-CFS: A Complex Illness

05:09 The Journey to Diagnosis: Misunderstandings and Challenges

10:03 The Role of Caregivers: Support and Understanding

14:53 Creating Community and Advocacy from Bed

19:53 The Emotional Landscape: Grief, Rage, and Resilience

35:41 Creating a Resource for ME-CFS Awareness

40:19 The Role of Technology and Social Media

43:34 Coping with Severe Illness and Loneliness

47:30 Finding Joy in Small Moments

55:54 Advocacy and the Fight for Recognition

01:00:02 Closing Thoughts and Future Aspirations

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From coping with severe illness to finding joy in small victories, this episode is a raw, honest, and ultimately hopeful look at resilience, advocacy, and the urgent need for change. If you’ve ever felt unseen in your health journey—or want to better understand those who are—this is a conversation you don’t want to miss.

🎧 Watch now to hear stories of strength, hope, and the fight for recognition in a world that too often looks the other way.

keywordsME-CFS, chronic illness, advocacy, caregivers, community, diagnosis, emotional health, activism, disability awareness, health care system, ME-CFS, chronic illness, advocacy, social media, technology, awareness, mental health, resilience, community, hopeFounder of #NotJustFatigue: Activism from Bed Elizabeth Ansell

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Summary

In this conversation, Jess shares their journey of writing the book 'Being Sick Enough', which explores themes of invisible illness, childhood trauma, and the complexities of living with chronic conditions. The discussion delves into the challenges faced as a sick child, the misunderstandings surrounding invisible illnesses, and the process of writing personal stories while navigating relationships and self-acceptance. In this conversation, the speakers delve into the complexities of navigating trauma, the importance of meditation, and the intersection of medication and wellness. They discuss the significance of honest conversations about medication, the balance between solitude and community, and the role of spirituality in personal healing. The dialogue also touches on societal challenges and the need for empathy, as well as practical travel tips for those with chronic illness.

Keywords

invisible illness, chronic illness, trauma, writing, personal stories, mental health, self-acceptance, authenticity, healing, Jess, trauma, meditation, wellness, medication, spirituality, empathy, chronic illness, travel tips, community, solitude

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Summary

In this conversation, Maggie Bushway shares her experiences as a child with brain cancer and the impact it had on her life, family, and friendships. She discusses the importance of autonomy in medical decisions, the role of writing in processing emotions, and the challenges of managing chronic illness while pursuing her passion for writing. The conversation also touches on the dynamics of friendship during illness, the journey of writing a memoir, and the balance between social life and work amidst health challenges.

Takeaways

Maggie felt included in her medical decisions, which empowered her.

Autonomy is crucial for children facing health challenges.

Friendship can provide both support and normalcy during illness.

Writing serves as a powerful tool for emotional expression.

Reading her father's blog helped Maggie process her past.

Maggie's early writing experiences laid the foundation for her memoir.

Journaling can be a helpful starting point for aspiring writers.

Managing chronic illness requires careful scheduling and prioritization.

Finding humor in difficult situations can aid in coping.

Creative expression can take many forms, including fiction. 

Keywords

Maggie Bushway, childhood illness, memoir, writing, chronic illness, friendship, family dynamics, emotional processing, creative expression, support

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Summary

In this conversation, Tara Moriarty discusses her journey into the world of service dogs, the challenges of finding and training them, and the importance of understanding their role in supporting individuals with disabilities. The discussion covers the costs associated with obtaining a service dog, the various training methods, and the misconceptions that the public holds about service dogs and their handlers. This conversation delves into the distinctions between service dogs and emotional support animals, emphasizing the legal definitions and roles of each. It explores the challenges faced by service dog owners, including the need for proper training and support systems. The discussion highlights the importance of planning for the future care of service dogs, especially for individuals with degenerative conditions. Additionally, it covers the process of finding the right dog and trainer, advocating for positive reinforcement training methods, and the significance of using food as a motivational tool in dog training.

Chapters

00:00 Introduction to Service Dogs and Their Importance

03:13 The Cost and Accessibility of Service Dogs

06:07 The Journey into Dog Training

08:52 Understanding Dog Behavior and Training Methods

12:06 The Need for Service Dogs: When is it Time?

14:59 Choosing the Right Breed for Service Dogs

17:45 Public Misconceptions About Service Dogs

25:50 Understanding Service Dogs vs. Emotional Support Animals

29:08 Navigating the Challenges of Service Dog Ownership

31:55 Preparing for a Service Dog: Key Considerations

34:22 Finding the Right Dog and Trainer

38:53 The Importance of Positive Reinforcement in Training

44:57 Innovative Training Techniques and Resources

Takeaways

Service dogs can be very expensive, ranging from $20,000 to $40,000.

Nonprofits may offer lower-cost options, but availability is limited.

Training a service dog can be a complex and costly process.

Understanding dog behavior is crucial for effective training.

Positive reinforcement is a more effective training method than punishment.

Many people consider getting a service dog too late in their journey.

The right breed for a service dog is less important than temperament.

Labradors, Goldens, and Poodles are commonly recommended breeds.

Public misconceptions about service dogs can lead to challenges for handlers.

Emotional support is not a task that qualifies a dog as a service dog. Service dogs are task-trained to mitigate specific disabilities.

Emotional support animals provide comfort but lack legal recognition as service animals.

It's crucial to have a plan for the care of a service dog as health conditions change.

Choosing the right breed is essential for first-time service dog owners.

Positive reinforcement is key to effective dog training.

Finding a qualified dog trainer can significantly impact training success.

Service dog tasks are tailored to individual needs and circumstances.

Proper training and socialization are vital for service dogs to function in public.

Planning ahead for a service dog's future is necessary for responsible ownership.

Using food as a reward can enhance training and strengthen the bond with your dog.

Keywords

service dogs, dog training, psychiatric service dogs, emotional support, dog behavior, training methods, cost of service dogs, choosing a service dog, public misconceptions, service dogs, emotional support animals, training, positive reinforcement, disability, dog ownership, service dog tasks, finding a trainer, dog breeds, service dog laws

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Summary

In this conversation, Tisha shares her journey of living with chronic illness, emphasizing the importance of gratitude, community support, and the struggles of public perception. She discusses her experiences with autoimmune disorders, the challenges of diagnosis, and how she has reframed her relationship with her illness, focusing on empowerment rather than battle. In this conversation, the speaker shares their experiences of parenting with a disability, discussing the challenges of communicating their condition to their children and the emotional toll it takes on family dynamics. They explore the journey of finding purpose while being bedbound and the therapeutic process of writing a book about their experiences. The discussion emphasizes the importance of support systems, the need for understanding in educational settings, and the resilience required to navigate life with a disability.

Takeaways

Gratitude can be a powerful tool for coping with chronic illness.

Public perception often overlooks the struggles of those with invisible illnesses.

Community support plays a crucial role in mental health and resilience.

The journey to diagnosis can be long and fraught with challenges.

Reframing the narrative around illness can lead to empowerment.

It's important to check in on loved ones, even those who seem happy.

Sharing personal stories can help others feel less alone.

Wearing heels can be a form of self-expression and empowerment.

Language matters when discussing illness and identity.

Writing can be a therapeutic way to share one's journey. Talking to children about disabilities requires different approaches based on their age.

The emotional impact of a parent's illness can lead to complex family dynamics.

Creating a game out of challenges can help children cope with difficult situations.

Parents often feel guilt for not being able to participate in typical activities with their children.

Support from family and friends is crucial when dealing with chronic illness.

Living with a disability can lead to feelings of isolation and despair.

Finding purpose and joy in life, even from bed, is possible.

Writing about personal experiences can be a healing process.

It's important to advocate for accessibility in schools and public spaces.

Resilience and community support are key to thriving despite adversity.

Keywords

gratitude, chronic illness, public perception, diagnosis journey, living with illness, mental health, autoimmune disorders, personal stories, resilience, community support, disability, parenting, mental health, communication, writing, resilience, family dynamics, bedbound life, emotional support, personal journey

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Summary

In this conversation, Monica Michelle and Ann-Britt discuss their shared experiences with chronic illness, particularly Ehlers-Danlos syndrome. They explore the challenges of living with a chronic condition, the importance of community support, and the therapeutic role of music in coping with illness. Ann-Britt shares her journey from being an active musician to adapting her life around her health challenges, including the use of a wheelchair. They also touch on the differences in healthcare systems between Denmark and the USA, emphasizing the need for better understanding and support for those with chronic illnesses. In this conversation, Monica Michelle and Ann-Britt discuss the challenges of traveling with a disability, the emotional journey of adapting to life changes due to chronic illness, and the importance of setting boundaries. They explore generational differences in self-care, the concept of diminished normalcy, and the emotional ties to home. Ann-Britt shares her musical inspirations and the themes of her upcoming album, highlighting the beauty in small moments and the power of creativity in the face of adversity.

Keywords

chronic illness, Ehlers-Danlos syndrome, mental health, creativity, music therapy, wheelchair use, healthcare systems, Denmark, USA, community support, chronic illness, accessibility, self-care, personal growth, music, life changes, boundaries, emotional health, travel experiences, generational differences

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Monica Michelle is joined by author Sue Jackson.

Sue lives with Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Lyme disease.

In this episode, Monica and Sue discuss: 

• Sue’s pathway to diagnosis 
• Parenting with chronic illness and parenting a child with chronic illness
• Managing ME/CFS from diagnosis to creating routines
• Using books to cope emotionally
• Writing a book while having chronic fatigue

00:46 Sue’s diagnosis and how she manages her symptoms  

13:03 Parenting with a chronic illness

25:02 COVID-19’s impact on chronic illness 

30:35 Books as a form of escapism and connection

42:00 The challenges of writing and the importance of routines with chronic illness 

The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com

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