Jessica Fein welcomes Effie Parks to the I Don't Know How You Do It podcast to discuss Effie’'s journey as a rare-disease mom. Listen in as Jessica and Effie talk about how Effie went from being a hairdresser to becoming a leader within the rare-disease community. Find out what her oxygen tanks are that get her through every single day, how she describes what real self-care looks like, and how she found the connections that changed her trajectory. Effie's mission is to lift voices of the community, connect people to resources, and to leave this world better than she found it.

Follow her at www.effieparks.com and www.onceuponagenepodcast. 

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Music credit: Limitless by Bells