Go Shout Love Podcast

Everybody say hello to Thatcher!

Thatcher is a vibrant, joyful, and resilient six-year-old from Redmond, Oregon where he lives with his parents, Nicole and Nicholas, and two siblings, Weston and Chloe. Thatcher loves going to kindergarten, fast cars, and playing with balls.

We’re so excited to share more about Thatcher this month and to raise awareness about his rare medical journey with Rhizomelic Chondrodysplasia Punctata (Nonclassic form).

Visit www.goshout.love to watch his video, read his story, and subscribe to our podcast to listen to an interview with his mom and dad.

#goshoutlove #shoutloveforThatcher

As part of the hospital’s protocol, CPS was called while the ER continued to take care of Isla. A full body x-ray was done and showed that along with a broken leg, all of Isla’s ribs were revealed to be healed fractures. Under the impression that more tests needed to be done, Nick and Mandy waited to be admitted to the hospital, but behind-the-scenes, the local police department were being contacted.

And this was just the beginning as we feature courageous Isla this month.

Isla is a courageous, spirited and intelligent five-year-old from San Jose, California where she lives with her parents, Mandy and Nick, and two siblings, Noah and Charlotte. Isla loves dancing, going to church and snuggling with babies!

Today we are talking with Lacey and Mitch as they break down for us, life with Karder, beginning with receiving his diagnosis of Trisomy 18 and how that diagnosis labeled his early life and propelled him to the boy he is now. If you listened last week we featured another kiddo, Charolette who also has trisomy 18. There are a lot of similarities to these stories as well as some uniqueness for each one.
Lacey and Mitch will help guide us along their medical journey and then the impact Karder has had on them, their boys and their community.

It is a bright, sunny and warm day here in Ohio and we are in the living room with Nick and Hailey who are the parents to Charlotte, a sassy and happy 4 year old girl with trisomy 18. During this conversation she is playing on the floor in front of us. She is one of two feature kiddos for this month who are both diagnosed with trisomy 18 and the common theme between them is they were both labeled as incompatible with life. You will soon find out in this episode and the next that these kids are quite the opposite and in fact built for life.

When Wyatt was two-and-a-half years old, he was diagnosed with Kleefstra syndrome.
Kleefstra syndrome is a rare genetic condition that affects 1:120,000 individuals and is characterized by intellectual and cognitive delays. Other symptoms include heart conditions, vision issues, and hearing loss.
Our podcast interview with Wyatt’s parents, Jolene and Braxton, launches tomorrow on the Go Shout Love podcast. Subscribe today to learn more about Wyatt’s rare medical journey.

Roslyn is a cheerful, cheeky, and bright eight-year-old who loves candy, her family, and powerwheel soccer. Her little brother, Maddox, is a smiley and joyful one-year-old. Together, they are navigating an undiagnosed rare medical journey.

Throughout the month of July, we’ll be shouting love for Roslyn and Maddox. Visit www.goshout.love to learn more about their story.

All items in the shop during the month of July, including this “Climb & Shine” tee, will go toward the purchase of a wheelchair van to help Roslyn & Maddox get around safely.

#goshoutlove #shoutloveforRosynandMaddox

“I believe with all my heart that Emmi is exactly who she is supposed to be. She’s here for a purpose; her having special needs doesn’t make her purpose in life any less meaningful than ours. I feel like she is here to teach a lot of different lessons. Since having Emmi, she’s opened up our world to special needs kids and it changed us. She’s changed us for the better.”

Abby Wilkey, Emmi’s mom

Throughout the month of June we’ll be shouting love for this sweet girl and raising awareness about her rare medical journey. Visit www.goshout.love to learn more about Emmi and how you can shout love with us this month.

#goshoutlove #shoutloveforEmmi

Say hello to our friend Elijah!

Elijah is a brave, intelligent and loving almost six-year-old from Santa Fe, New Mexico where he lives with his parents, Marissa and Stevan. Elijah loves learning, the ocean, and nature documentaries.

Throughout the month of May we’ll be shouting love for Elijah and raising awareness about his journey with Lennox Gastaut Syndrome, Cortical Vision Impairment, and a genetic mutation on the CACNA1E gene.

Today we are talking Lindsey and Jordan who are the parents to little Jack. They graciously invite us into not only their home but their medical journey with jacks diagnosis which comes with a collection of complications that you will hear about along with what life is like with Jack who will be turning 3 years old this month as we shout love for him and his family. He is a calm, sweet and persistent kid who is crushing it!

Visit our website at goshout.love to support Jack through the purchase of a t-shirt, hat, sweater, hoodie, tumbler, or other items. Every purchase in April will be used to help cover the costs of Intensive physical therapy programs not covered by insurance.