Go Shout Love Podcast

This is part 2 of the conversation with Aaron and Jen, the parents to Jesus our feature kiddo for the month of August 2021
We ended the last episode talking about the unique combination and relationship that exists with Jesus and his parents.
If you haven’t listened to that episode, I would stop this now and go back to part 1 first. It provides a lot of context for what you will hear today.
We cover so much with this episode, from the impact Jesus has on this family, the daily life and challenges from his diagnosis and of course his back story, which is very unique to anyone, much less a child on a rare medical journey. This family is summed up as I mentioned before, love, advocacy, inclusion and…to add in… faith, not just for Jesus, but for all of their kids.

Connect with Aaron and Jen
https://www.facebook.com/jennifer.mathews.357
https://www.instagram.com/themathewslife/

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

“He 110% loves to be held all day long. It’s the sweetest thing. We will lay him down, and his eyes pop open and he starts to look around. Once we pick him up, he’ll start laughing, because he knows. He continues to change the longer he’s been in our home, and I can only pray that as he gets older, he continues to show his preferences about stuff because that was something that was never expected of him. His opinion matters, it matters to all of us. I make sure that it matters to anyone we come into contact with because he needs to be respected like all people should. Whether he can voice it or not, he has preferences.”

This month’s “Joy is where You Are” design is inspired by Jesus, a cheerful, loving, and sweet two-year-old from Houston, Texas who brings joy to everyone he meets.

Every purchase in August will go towards making modifications to the family’s van to make travel easier and more comfortable for Jesus.

Visit our website at goshout.love to support Jesus through the purchase of a t-shirt, tank-top, hat, tumbler, or other items.

Connect with Aaron and Jen
https://www.facebook.com/jennifer.mathews.357
https://www.instagram.com/themathewslife/

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

This is part 2 of the conversation with Kati and Derek, the parents to Haylee who is our feature kiddo for the month of July. If you haven’t listened to part 1 I recommend pausing this and going back one, it provides a lot of context to what we will talk in this episode. That last one was about their medical journey and Haylee’s personality. Today we are going to go further into the daily challenges surrounding her diagnosis which includes sleeping at night. Every purchase in July on our website will go towards helping this family purchase a sleep safe bed.

Connect with Derek and Kati
http://www.facebook.com/kkennedy915
https://www.instagram.com/kennedy_mama3/

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

It is a new month and that means a new feature family.
Today we are talking with Kati and Derek, the parents to Haylee, a sassy, smart and determined 3 year old girl from Overland Park, KS
Haylee has been diagnosed with RYR-1 or also known as Central Core disease.

Derek and Kati tell you more about Haylee’s medical journey, her diagnosis and what this means for her daily life. There is a lot there to unpack and some details that are unique to Haylee. This is part 1 of two episodes of the conversation with Derek and Kati, it begins with talking about Haylee, her personality, her relationship with her brother and then into her diagnosis. But a large part of this episode centers around being and advocate for Haylee and then ultimately for other kids like Haylee. These parents are great examples of advocacy in the hospital, their son is a great example of being an advocate as a child and a sibling, and then they take it a step further by joining a parent board to speak up for additional kiddos on medical journeys.

Connect with Derek and Kati
http://www.facebook.com/kkennedy915
https://www.instagram.com/kennedy_mama3/

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

This episode is Part 2 of the conversation with Aaron and Andrea, the parents to Jaelyn and Reagan who are sisters from Iowa living joyfully with undiagnosed conditions. Jaelyn is a patriotic, silly, and strong eleven-year-old who enjoys music, school, and the color purple. This episode touches on key topics that exist with many families we feature like finding the joy in the small moments and how those can come through the uniquely and constantly present challenges with daily activities and spontaneous moments. There is difficulty working around physical limitation and anxiousness surrounding the unexpected. This is especially hard for people like Andrea who are planners and have had to adapt to a life where planning ahead isn’t possible.



Connect with Aaron and Andrea
IG: www.instagram.com/its.a.butiful.life/
FB: https://www.facebook.com/jaelynsjourney

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

Jaelyn and Reagan are sisters from Iowa living joyfully with undiagnosed conditions. Jaelyn is a patriotic, silly, and strong eleven-year-old who enjoys music, school, and the color purple. Reagan is a determined, silly, and shy three-year-old who likes playing outside, books, and baby dolls. Jaelyn and Reagan’s journey encourages us to not worry about yesterday or tomorrow, but to stay present in today. They both love playing with their sister five-year-old sister, Shelby. Today's episode centers around Jaelyn's medical journey and how the family has grown and adjusted.

Connect with Aaron and Andrea
IG: www.instagram.com/its.a.butiful.life/
FB: https://www.facebook.com/jaelynsjourney

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

This is part 2 of the conversation with Kelly who is the mother to Avery. Avery is our feature kiddo for the month of May 2021. I would recommend listening to part 1 if you haven’t yet. That episode gives a lot of context for Avery’s medical journey and the background for Kelly and her husband Mark.

We ended the last episode talking about conversations, interactions and phrases that cause some separation between families with kinds on rare medical journeys and people who haven’t walked that path. To be clear this is not a place of judgement on people who make comments or say things that are hard to take in for these families. Kelly affirms that in this episode, but this is one major reason we have these conversations, so that we can all learn how to bridge that gap and be more inclusive and together rather than separate.

Connect with Mark and Kelly:
IG: https://www.instagram.com/twinadventurez/
FB: https://www.facebook.com/profile.php?id=100009318677558

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

New month and a new kiddo. This month we are featuring a young boy named Avery. We are talking with his mother Kelly about the medical journey for Avery and what that has meant for their family including Avery's twin sister Emma. This is part one of the conversation with Kelly and one that centers around a very rare diagnosis along with how we can learn from other's reactions and words. Both Mark and Kelly have military background in the Navy. We recorded this at a time when Mark couldn't participate, but we would like to thank both of them for their service and sacrifice as we shout love this month for them.

Connect with Mark and Kelly:
IG: https://www.instagram.com/twinadventurez/
FB: https://www.facebook.com/profile.php?id=100009318677558

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

This part 2 episode is all about Mayah’s impact on her school friends, on her family and all who get to meet her. It is a shorter episode, but it does not ease up on quality conversation about an incredible girl and the lessons she is teaching those around her.


Connect with Ryan and Angie
https://www.facebook.com/MiracleMayah

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

Mayah is a happy, captivating and inspiring five year old from Maria Stein, Ohio. She loves her family, school and watching her favorite TV shows. Her beautiful smile and positive attitude bring joy wherever she goes!

This episode focuses on Angie and Ryan's medical journey with Mayah and touches on her personality and some insight into how Mayah is impacting the world one person at a time.

Connect with Ryan and Angie
https://www.facebook.com/MiracleMayah

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/