Go Shout Love Podcast

This is part two of the conversation with bob and Lauren the parents to Leo who is our feature kiddo for the month of march. A lot of good content here that is applicable for anyone listening.

Bob and Lauren are incredibly easy to listen to and have a lot of poignant things to say about their son and life in general. this episode talks a lot about inclusivity and society. we talk about how to support others during tough times. This is a shorter episode, but there is so much packed in.

Connect with Bob and Lauren
https://www.instagram.com/lauren_nia_lowery/
https://www.facebook.com/This-Little-Life-with-Leo-112059770189599
Blog: Thislittlelifewithleo.wordpress.com

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

Today we are talking with Bob and Lauren, the parents to Leo. Leo is a loving, sweet, and ornery five year old who lives on a ranch in Oklahoma with his family. He enjoys swimming, being outside and riding horses. Leo encourages us to look for the positive in each day and to enjoy the ride.

Leo has been diagnosed with Aicardi-Goutieres Syndrome. This episode dives into his diagnosis and the journey of discovering what it means for this family.

Connect with Bob and Lauren
https://www.instagram.com/lauren_nia_lowery/
https://www.facebook.com/This-Little-Life-with-Leo-112059770189599
Blog: Thislittlelifewithleo.wordpress.com

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

Welcome back shouters today we are continuing our talk with Byron and Kari the parents to little feisty ivy, our feature kiddo for February 2021. She has diastrophic dysplasia and that comes with its set of challenges that are unique, especially when the best doctors to help are cross the country.

This is part 2 of this conversation, if you have not listened to part 1, press pause and go back and do that. Part 1 has a lot of context about ivy, her family and her diagnosis that will help set the stage for this episode which has a lot of good pieces to take away.

Connect with Kari and Byron
https://www.instagram.com/little_ivy_sunshine/

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

This is part 1 of two conversations with Kari and Byron, the parents to two-year old feisty and determined Ivy who has Diastrophic Dysplasia.
This episode centers around the little Ivy’s medical journey as well as her journey of being adopted into her wonderful family.

Join us in shouting love for Ivy for the month of February.

Please follow us on Facebook and on instagram, just search Go Shout Love…you will find us and you will also find more connection to these families as well as previous families. Basically you will find and be welcomed into our community.

Stay tuned as more families will be featured and more opportunities for all of us to go shout love.


Connect with Kari and Byron
https://www.instagram.com/little_ivy_sunshine/

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

This episode is part 2 of a conversation with Daidra and Eric who are the parents to this month’s feature kiddos…wonderful boys Eli and Zeke. They also have another son Isaac and you can hear all about these boys in part 1. I would recommend listening to that first if you haven’t just for a little context coming into this episode. In part one we heard about Eli and Zeke’s diagnosis and some of the challenges that surround that. This episode takes a step back and looks at the broader picture of perspective and labels and dives into being a resource for families who are on similar journeys our at least for families who feel alone.


Connect with Daidra and Eric
https://www.instagram.com/daidrahamlin/
https://www.facebook.com/daidra.hamlin.5

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

Today we have with us Daidra and Eric who have three boys, two of which are 11 year old twins and one is a not even a year old yet. Two of these three boys are our feature kiddos for January. One incredible feature about their story is the relationship between each of the boys with one another. Eli has Cerebral palsy and is also one of the twin brothers. Isaac is the other twin and doesn’t carry a diagnosis. Fast forward a number of years and along comes baby zeke who has been diagnosed with Pontocerebellar Hypoplasia along with other complications.

This is part one of two conversations about Eli and Zeke and this wonderful family. We touch on many topics including each boys diagnosis, challenges they face especially through COVID and some life lessons as well.

Connect with Daidra and Eric
https://www.instagram.com/daidrahamlin/
https://www.facebook.com/daidra.hamlin.5

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

It is the end of 2020. Josh and Seth talk about how Go Shout Love weathered the pandemic and how we were still able to impact families. There is also some exciting news about the future of Go Shout Love and a new program as well.

Today we are with Andrew and Sam, the parents to Maddox and Paisley, the kiddos we are featuring for the month of November. This is part 2 of this conversation and if you have not listened to part 1, I would recommend pausing this and listening to that for context and to get to know the family as well.

This episode expands on the two very different diagnoses for these siblings along with other topics including…how as parents, as couples and as families they attempt to handle the “unknowns” that come with a rare diagnosis and everything involved with it….much less during a pandemic. We talk about public perception and how to navigate comments, looks and stares, and overall inclusion that comes with humanity.

Connect with Andrew and Sam
https://www.instagram.com/sduran626/
https://www.facebook.com/samantha.danielle.752

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

Today’s conversation is with Andrew and Sam, the parents to Maddox who is 2 years old and Paisley who is 7, are our feature kiddos for November. They also have 4 year old Juliet, which means they have a lot on their hands with some amazing kids and their personalities. Maddox is diagnosed with Spina Bifida, hydrocephalus along with a few other conditions. Paisley is diagnosed with Cerebral AVM (arteriovenous malformation) in the basal ganglia region of her brain. This family has an incredible journey to share.
This is Part 1 of 2.

Connect with Andrew and Sam
https://www.instagram.com/sduran626/
https://www.facebook.com/samantha.danielle.752

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

This is the second of two episodes with Robyn and Glen, the parents to Luna who is our featured kiddo for the month of October. If you haven’t listened to the first one I would recommend it before jumping into this one.

To provide context, Robyn and Glen have been fighting and advocating for their daughter since shortly after she was born. There have been many hectic moments and many stressful and frustrating conversations that have left them feeling stranded with very few answers on how to help Luna with her pain, much less her diagnosis and her future.

Connect with Robyn and Glenn
https://www.instagram.com/the_empathic_nutritionist/
https://www.facebook.com/robyn.grogitsky

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/