Go Shout Love Podcast

Josh talks with Cassie, the mother to Jack who was one of four feature kiddos in October of 2019. Jack has a rare medical diagnosis called Lissencephaly Miller-Dieker's Syndrome. Cassie opens up and shares about the extreme ups and downs of life with Jack’s diagnosis, especially during a time when the world is dealing with COVID.


Connect with Cassie
https://www.instagram.com/jcgrass/
https://www.facebook.com/TheJackOfOurHearts/

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

Josh interviews Tameka, the amazing mother of Evely who was our feature kiddo in September of 2019. Evely has a rare medical journey includes being born without eyes. Tameka gives us an update on her family and Evely’s medical journey.
She also talks about dealing with COVID and surviving with a child on a rare medical journey and gives us great insight on what really matters in life.


Connect with Tameka
http://instagram.com/housegypsy
https://www.facebook.com/ThroughEvelysEyes/

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

The conversation with Kevin and Jess continues in the second episode of this two part interview. They are the parents of Molly, our featured kiddo for May from Celina, Ohio. Molly is a beautiful and joyful two-year-old who is lovingly referred to as ornery. In part two of the conversation, Kevin and Jess open up and talk about their marriage, their relationships, and their community as they continue to raise and care for their beautiful daughter.

Molly is a fighter who constantly pushes herself and her family onward. Every purchase from the Go Shout Love shop in May will help cover the cost of installing a wheelchair ramp in Molly’s home and the home of family members who help care for Molly. Support Molly now with a purchase at www.goshout.love.

Connect with Jess & Kevin:
http://instagram.com/jesskramer
http://instagram.com/kozmok

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

Josh chats with Kevin and Jess, the parents of Molly, our featured kiddo for May from Celina, Ohio. Molly is a beautiful and joyful two-year-old who is lovingly referred to as ornery. In part one of the conversation, Kevin and Jess introduce us to Molly's personality, share openly about the difficulties of the unexpected complications at Molly's birth, and the rollercoaster months that would follow as they looked for answers.

Molly is a fighter who constantly pushes herself and her family onward. Every purchase from the Go Shout Love shop in May will help cover the cost of installing a wheelchair ramp in Molly’s home and the home of family members who help care for Molly. Support Molly now with a purchase at www.goshout.love.

Connect with Jess & Kevin:
http://instagram.com/jesskramer
http://instagram.com/kozmok

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

At 20 years-old, Marcela survived a fatal car accident. New to the United States and knowing very little English, her life took a tragic turn that night as she lost her boyfriend in the car accident as well as her ability to function physically as she always had.

Today she leverages the power of social media to document what traveling looks like for people with disabilities and highlights opportunities for communities to become more accessible.

Connect with Marcela:
https://www.instagram.com/thejourneyofabravewoman/
https://www.facebook.com/MarceTurnage/

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

In this week's episode, Josh interviews Dr. Gerald Nebeker, a social enterprise entrepreneur with an incredible resume of meaningful work. But at the top of his list of accomplishments he put his family, his wife Laurel and their eight terrific kids, the youngest of whom has Down Syndrome.

In his professional experience and the personal experience of having a child with a disability, Dr. Nebeker recognized a gap that comes for parents when a diagnosis is received - a gap between the life they thought they would have, and the life they were blessed with. Out of this reality, Dr. Nebeker launched Orange Socks, a community uniquely created to resource and support parents with kids on rare medical journeys.

He is an expert in nonprofit governance and is an advocate, researcher, and national presenter in the field of developmental disabilities. In 1987 he started RISE, Inc., a nonprofit organization which provides services for people with disabilities including residential settings, day programs, employment assistance, managed care, and home and community based services.

Connect with Orange Socks:
https://orangesocks.org/
https://www.instagram.com/orangesocks__/
https://www.facebook.com/orangesocks.org/

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

Mindy Scheier was in the middle of a successful career in the fashion industry when the realities of her son’s rare medical journey exposed a challenge in clothing for people with different abilities.

This moment launched Mindy in a completely different direction that would advocate for all people to have the confidence that comes with adaptive clothing.

In 2014 she launched Runway of Dreams which is reshaping the fashion industry, including working with Tommy Hilfiger, Zappos Adaptive, Kohls, Nike, and Target.

Shop new designs in the GSL shop that are benefitting people with disabilities in response to COVID-19 at https://goshout.love.

Connect with Mindy:
https://www.facebook.com/runwayofdreams
https://www.instagram.com/runwayofdreams/
https://www.facebook.com/gamutmanagement
https://www.instagram.com/gamutmanagement/


Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

Josh chats with Shane Burcaw and Hannah Aylward of the popular YouTube Channel, Squirmy and Grubs. Shane and Hannah use their platform to shift the narrative and dispel myths around interabled relationships by sharing openly and honestly about their life together.

This conversation covers real feelings on the topic of receiving and giving care. They also discuss the work being done by Laughing at My Nightmare, a nonprofit organization started by Shane... A nonprofit organization that we are grateful to be partnering with in April to help provide Covid-19 relief resources for people on rare medical journeys. Half of all gross profit during April will sales will help provide $100 gift cards for those who need it most.

Shop new designs now at https://goshout.love.

Connect with Shane & Hannah
https://www.instagram.com/shaneburcaw/
https://www.instagram.com/hannahayl/
https://www.instagram.com/laughingatmynightmareinc/
https://www.laughingatmynightmare.com/
https://www.youtube.com/channel/UCdomP1JqhnyBQGaBmfDl4KQ


Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

Quickly leaving the pool to get to the restroom only to have to wrestle a wet swimsuit for several minutes... If you're a parent with a child on a rare medical journey, you likely understand this scenario.

In this episode, Josh chats with a mom who believed there had to be a better way. Nikki Green is the founder of Victory Adaptive Collection, a company offering fashionable and functional adaptive swimsuits. Listen in to learn more about the products and how the company got started.

Connect with Victory Adaptive Collection:
https://victoryadaptivecollection.com
https://www.facebook.com/victoryadaptivecollection

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/

An organization that means a lot to Maddy (this month's featured kiddo) is a nonprofit called Team IMPACT which has given her the opportunity to be part of the Syracuse University Women's Lacrosse team. In this episode, Josh chats with Ali Peters and Shanna Gershman, two staff members of Team IMPACT, who give us an overview of the organization and insight into the amazing work they are doing.


Connect with Team IMPACT:
https://www.teamimpact.org/
https://www.instagram.com/goteamimpact/
https://www.facebook.com/GoTeamIMPACT/

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/