Going Blind Sucks

This week we look to keep it lighter and talk about ways that non visually impaired people can make life a little easier for visually impaired people.  Pretty simple.  Almost feels weird writing that short of a description about it, but that’s what it is… So yeah, take a listen.

This week we discuss some good news we received from the eye doctor, talk about the additional stresses of buying a home when you have RP hanging over your head and struggling with enjoying now when you feel like you have to protect yourself for the future.

In this week’s episode we talk about being angry.  It is a natural part of losing anything, but society frowns upon it.   Is it really fair to expect a person to go through hard times and not be angry?

In this week’s episode we talk about how hard it can be to shake off tough vision times.  What is at the heart of being so scared and look at what is the worst that could happen?  And we look at the difference between complaining and letting others know what you are going through.

In this week’s episode Joy tries on the RP goggles again, this time at night.  We talk about how sometimes folks validating how hard it can be can make you feel worse.  We also discuss how hard it can be taking care of someone with a disability and how hard it can be to be taken care of.

On this week’s episode Joy tries a pair of tunnel vision simulating goggles  and gets a better idea of what it’s really like to  have RP and Dustin explains why closets are for suckers.

Here is the link for the glasses.

This week we discuss a potentially dangerous situation that Dustin got himself into and how it gave him a glimpse into what a possible future could be like.  We also discuss a sense of losing independence when traveling gets too hard and how you sometimes have to take care of yourself and maybe spend the extra money on a taxi or Uber

In this week’s episode we talk about dealing with jokes about your vision loss.  We share a real story of the blind literally leading the blind.  We are baffled by some folks in the UK being mean to a visually impaired little girl.  Finally we talk about if sometimes it is okay to give in to the fear a little bit and take care of yourself.  (hopefully the answer is yes)

In this week’s episode we discuss how sometimes things like the remote control move all on their own, or at least that’s the story I am going with.  We talk about why using the wheelchair symbol for people with disabilities can make people uncomfortable asking for help.  Finally we talk about how the volume on holidays can make it more stressful.

This week we talk about hitting the next level of vision loss and how sometimes you need to mourn even when you don’t want to.  We also talk about how to navigate talking to and dealing with all this at work.