Going Blind Sucks

Eye Doctors love to shoot strobe lights into your eyes to test for things.  At least mine do.  This week we talk about the joys of the ERG test (and there are many).  Plus we discuss the difference between going to a regular doctor and a research doctor.  There are definitely some trade-offs.

In this week’s episode we talk about how about you can get tricked by traveling along familiar paths.  As soon as you go to the unfamiliar you discover just how little you could actually see before.  Plus I freak out a little bit about my upcoming ERG.

On this week’s episode we talk about the good and bad reasons they had to push off my surgery, vision induced panic attacks, a place to speak with other visually impaired/blind people and fear of being singled out by bad guys when walking alone with a cane

This week we discuss why my eyes totally hate me and are making it so I need surgery in the next few weeks.  Plus, proper bed side manner (or in this case improper), why sometimes it’s better to not know the answers to your questions and maybe, just maybe, a little bit of hope.

So it turns out that the loss of middle vision was a bigger deal than we thought.  This week we talk about our visit to the retina specialist to discover my right eye has taken a turn for the worse, the crazy surgery I might need to have and why my doctor is crazy excited to send around pictures of eyeballs.

This week we talk about a recent problem I have been having where I will sometimes lose my middle vision and we’ll tell you all about the new improv comedy team I joined and how I am using it to test the limits of what I can and can’t do now.

In this week’s episode we talk about VisionWalk NYC and why sometimes when people tries to show sympathy it can actually make a person feel way worse.  That and Joy gives me a hard time about not vacuuming enough.

A surprising number of people are facing all the difficulties of going blind without the support of family and friends.  That sucks!  In this week’s episode we talk about why that might be, what they might not understand and we try to figure out if there is anything that can be done about it.

In this week’s episode we talk about my most recent trip to the doctor for genetic testing regarding my RP.  We look at what the experience was like, is genetic testing worth it and eventually how it affects those around you.  Let us know what you think. This one gets pretty emotional.

In this week’s episode we try to explain what a person with RP actually sees, we try to decide if I’m getting spoiled by people getting out-of-the-way in the subway and how sometimes the diagnoses can be too much to handle.