Charles Bonnet Syndrome, visual hallucinations that can accompany vision loss, is often overlooked or worse, misdiagnosed. We chat with the founder of Mary Carmel’s Light, an organization dedicated to supporting those facing Charles Bonnet Syndrome (sometimes called CBS).

Previous episode on this topic:

Vision Loss and Charles Bonnet Syndrome

Website:

Mary Carmel’s Light

For many, losing vision can make everyday kitchen tasks more challenging and even scary. Debra Erickson, founder of The Blind Kitchen, was no different. Then she decidedly faced her fears and learned some tips. Listen in to hear how Debra grew to love cooking now more than when she was fully sighted.

It's quite common to feel like you're all alone when facing vision loss. And feeling lonely can make the vision loss journey all the rougher. That's why Hadley created a community forum to share stories, insights and bits of inspiration to remind us that we aren't alone on this journey.

Ricky Enger and Marc Arneson spend time reintroducing us to Insights & Sound Bites, a community-generated show where others facing vision loss share what has helped them cope and adjust. Find out why fans tell us they listen to this show over and over again when feeling down.

With the Aira app, people with vision loss connect to vetted, live, expertly trained assistants. Using the camera on your smartphone, they walk you through whatever task you're struggling to see your way through.

Join us as Judy Davis shares her personal experience of facing a hurricane and its aftermath with vision loss. She shares how she managed to stay safe, informed, and connected throughout the ordeal.

Listen to our previous podcast: Disaster Preparedness with Vision Loss

The Foundation Fighting Blindness funds research to find treatments and cures for eye diseases. They also host local chapter events where you can meet others going through similar challenges. Join us for a conversation with Ben Shaberman, Vice President of Science Communications.

From navigating airports to making the most of airline assistance services, we talk about ways to make air travel with vision loss a little easier. We're joined by James Ashworth, vice president of customer care at Southwest Airlines, who is also living with macular degeneration.

Medical appointments can be stressful for anyone. When you add in vision loss, these appointments can feel overwhelming. From navigating buildings and rooms to filling out forms and signing your name, there can be lots of stumbling blocks. Listen in as we share tips and advice to help make managing medical appointments a bit easier.

February is Glaucoma Awareness Month, and we are revisiting our informative 2021 conversation with Dr. Jullia Rosdahl, a glaucoma specialist from the Duke Eye Center. Listen in as we ask Dr. Rosdahl common questions we hear about glaucoma, its risk factors, and treatment options. PLUS: at the end of the interview with Dr. Rosdahl, we've added on an episode from our sister podcast, Insights & Sound Bites, featuring Angela Delgado sharing her story about living with glaucoma. 

Reading the newspaper is a daily ritual for many, but vision loss can make it challenging or even impossible. Did you know there's a free service that converts newspaper and magazine content into audio you can listen to on your phone or computer? It's called NFB-NEWSLINE. Join Ricky Enger and Steve Kelley to learn how you can access this yourself.