HC

By Ben and Lindsey Massengale

HCandU is a podcast dedicated to the metabolic disorder, homocystinuria. This podcast is meant to be a resource for anyone who has HCU or has been affected by HCU. Topics to be discussed on the show i... more

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FAQs about HC:

How many episodes does HC have?

The podcast currently has 52 episodes available.

HC episodes:

October 30, 2025 Episode 44 with Zara Bono
In the forty fourth episode of HC&U, we interview Zara Bono.

Zara is the mother of Severe MTHFR patients, Zoraiz and Areeba. Hear Zara's story about her family's journey to diagnoses and the challenges and successes of living with Severe MTHFR.

During Lindsey's Low Pro Bitesss, we talk about pancake tacos.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Zoraiz's and Areeba's Story

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
30min
September 25, 2025 Newborn Screening Bonus Episode 2025
In this bonus episode of HC&U, we present Ben's conversation with Erica Wright, a clinical genetic counselor at The Children's Hospital Colorado and Assistant Professor at the University of Colorado Anschutz Medical Campus for Pediatric Clinical Genetics and Metabolism and Greg Bonn, Program Manager for the Colorado Newborn Screening Program.

During Lindsey's Low Pro Snacksss, we talk about maple spice chips.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
48min
September 25, 2025 Episode 43 with Liz Gonzalez
In the forty third episode of HC&U, we interview Liz Gonzalez.

Liz is the mother of classical HCU patients, Everett and Clementine. Liz and I discuss her family's journey to diagnosis and the challenges and successes of living with HCU.

During Lindsey's Low Pro Bitesss, we talk about pancake tacos.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Everett's and Clementine's Story

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
43min
September 18, 2025 Adulting 101 Bonus Episode
In this bonus episode of HC&U, we present our Adulting 101 panel from September 11, 2025. This was a joint effort between HCU Network America and the MSUD Family Support Group. Gabbi Lewis and Ben represent the HCU community.

During Lindsey's Low Pro Snacksss, we talk about pickle salsa.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
1h 6min
August 28, 2025 Episode 42 with Brittany Parke
In the forty second episode of HC&U, we interview Brittany Parke.

Brittany is the mother of cblG patients, Drew and Grayson. Brittany and I discuss her family's journey to diagnosis and the challenges and successes of living with cblG.

During Lindsey's Low Pro Bitesss, we talk about taco stuffed sweet potatoes.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Grayson's Story

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
47min
July 31, 2025 Episode 41 with Hannah Llewellyn-Jones
In the forty first episode of HC&U, we interview Hannah Llewellyn-Jones.

Hannah is the mother of Olive, a cblG patient living in the UK. Hannah and I discuss Olive's journey to diagnosis and the challenges and successes of living with cblG.

During Lindsey's Low Pro Bitesss, we talk about vegetarian hamburger helper.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Olive's Story

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
48min
June 26, 2025 Episode 40 with Rene van Oorschot
In the fortieth episode of HC&U, we interview Rene van Oorschot.

Rene is the father of Nico, a classical HCU patient living in Scotland. Rene and I discuss Nico's journey to diagnosis and the challenges and successes of living with HCU.

During Lindsey's Low Pro Bitesss, we talk about jackfruit sloppy Joe sandwiches.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Nico's Story

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
46min
June 19, 2025 Newborn Screening Bonus Episode
We hope you enjoy Ben's interview with Allison Herrity, senior policy analyst at NORD, about Newborn Screening in America and what the path forward for NBS looks like!

In Lindsey's Low Pro Snackssss, we talk about Simply Nature fruit strips.

P.S. Thanks to everyone who voted in our poll for HC&U's new podcast art!

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

NORD's Paper

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
40min
May 29, 2025 Episode 39 with Michael Stevenson
In the thirty ninth episode of HC&U, we interview Michael Stevenson.

Michael is a classical HCU patient living in Australia. Michael and I discuss his journey to diagnosis and his brother, Phillip's, instrumental role in the overall understanding of HCU.

During Lindsey's Low Pro Bitesss, we talk about jackfruit salad sandwiches.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Michael's Story

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
42min
May 23, 2025 Bonus Episode 2025 WHAD Panel
We hope you enjoy the 2025 WHAD panel featuring Erica Arnaud, Brandon Tornes, and Brittany Hunter hosted by Ben. Thank you to our panel sponsor, Syntis Bio!

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

Check out Syntis Bio!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
1h 8min

FAQs about HC:

How many episodes does HC have?

The podcast currently has 52 episodes available.