Healing for Hoes

Aly & Emily discuss their breastfeeding journeys, which varied greatly among the four kids. We discuss tandem nursing, pumping, nursing aversion, and the phrase "fed is best". One thing we forgot to bring up when recording this episode was breastfeeding & Lyme: Lyme CAN be transferred through breastmilk! This is something to be aware of if you're in the family planning stage of life. However, Aly's LLMD has discussed this extensively with her and said he believes the benefits of breastfeeding far outweigh the risks, so nursing should be continued as long as possible regardless of potential Lyme transfer. Aly believes her Lyme disease was likely passed through the placentas during the kids' pregnancies. The transfer rate through the placenta is much higher than through breastmilk. Happy nursing, friends! Check out our Instagram for sweet photos of our nursing journeys <3

Please submit questions, comments or suggestions to [email protected]
Follow us on Instagram @HealingForHoes
https://www.instagram.com/healingforhoes/
Facebook: https://www.facebook.com/healingforhoes

LINKS:
• FREE Healing from Lyme Disease Summit: https://drtalks.com/lyme-summit/
• "Area Codes": https://www.youtube.com/watch?v=g3pLoVClX9M
• Standing Up To OCD: https://a.co/d/11V7rR6
• Anxiety Workbook: https://a.co/d/je6Rurh
• Little Free Library: https://littlefreelibrary.org
• The BEST Breastfeeding Resource! https://kellymom.com


Music by Slip.stream - Overu "Chill With You" - https://slip.stream/tracks/1df7d9e4-dc67-43fb-9f84-f48a8a0ca8d2

Aly & Emily are imperfect vegans, homeschooling moms, and sisters, who are raising four littles side-by-side. We are experts in nothing but we've been around the block a few times with several specific subjects, and we love to share our experiences with you! Healing for Hoes is all about creating a community of women through challenging times of life. Our aim is to share our experiences and help you feel validated, supported and less alone <3

Every week on this podcast we discuss what we're grateful for, how we're healing from Lyme, PANS, PCOS & PTSD, what media we've been consuming, what vegan food we're eating, motherhood, and more! Other topics frequently discussed in this podcast series include 
Chronic lyme disease, PANS/PANDAS, Homeschooling, Kids, Books, Stay-at-Home Mothering, Healing & Detox, Vegan food, Cooking, Holistic Lifestyle and more!

DISCLAIMER: Healing for Hoes content is for informational purposes only, and not a substitute for professional medical advice. If ideas different than your own may cause your emotional collapse, please consider that this may not be the show for you. Healing for Hoes is all about learning new things, trying new methods of treatment, and finding our way to healing through any means necessary. We understand this is not for everyone.

Aly & Emily have a conversation with Gracie Ditch, now 24, who was the first female diagnosed with PANDAS in Iowa (or at least one of the first... no way to verify)! We have been so excited to have this conversation with Gracie and hear what the experience was like for her as a child as well as now. Hear how her family sought out the correct diagnosis & care for her in a time before social media supports and smart phones!

Please submit questions, comments or suggestions to [email protected]
Follow us on Instagram @HealingForHoes
https://www.instagram.com/healingforhoes/
Facebook: https://www.facebook.com/healingforhoes

LINKS:
• Jolly Lllama ♥: https://jollyllama.com/where-to-buy/
• Audiochuck: https://audiochuck.com/shows/
• I'm a Girl, Special Me: https://a.co/d/6hgMJ1Y
• I'm a Boy, Special Me: https://a.co/d/57QLdhi
• Banana Nice Cream Recipe: https://detoxinista.com/banana-ice-cream/
• Gracie Ditch: https://www.instagram.com/gracie_ditch/
• Dr. Miroslav Kovacevic: https://neuroimmune.org/miroslav-kovacevic-pandas-interview/
& https://youtu.be/RCobb6IonmI


Music by Slip.stream - Overu "Chill With You" - https://slip.stream/tracks/1df7d9e4-dc67-43fb-9f84-f48a8a0ca8d2

Aly & Emily are two fair-weather vegans, homeschooling moms, and sisters, who are raising four littles side-by-side. We are experts in nothing but we've been around the block a few times with several specific subjects, and we love to share our experiences with you. Every week on this podcast we discuss what we're grateful for, how we're healing from Lyme, PANS, PCOS & PTSD, what media we've been consuming, what vegan food we're eating, motherhood, and more! Other topics frequently discussed in this podcast series include 
Chronic lyme disease, PANS/PANDAS, Homeschooling, Kids, Books, Stay-at-Home Mothering, Healing & Detox, Vegan food, Cooking, Holistic Lifestyle and more!

DISCLAIMER: Healing for Hoes content is for informational purposes only, and not a substitute for professional medical advice. If ideas different than your own may cause your emotional collapse, please consider that this may not be the show for you. Healing for Hoes is all about learning new things, trying new methods of treatment, and finding our way to healing through any means necessary. We understand this is not for everyone.

Aly explains why they gave their dog up in the midst of the PANS/PANDAS crisis. Emily helps to explain how Ernie had "the greatest rise and fall of any dog in history." Giving up Ernie was not an easy decision to make, but we felt we had no choice. Thankfully he is with a good home now and we still see him regularly.

Please submit questions, comments or suggestions to [email protected]
Follow us on Instagram @HealingForHoes
https://www.instagram.com/healingforhoes/
Facebook: https://www.facebook.com/healingforhoes

LINKS:
• Jolly Lllama ♥: https://jollyllama.com/where-to-buy/
• American Girl Dolls: https://www.americangirl.com/collections/all-dolls
• Natasha Daniels, LCSW: https://www.anxioustoddlers.com
• Crime Junkie Podcast: https://crimejunkiepodcast.com
• Audiochuck: https://audiochuck.com/shows/
• Dr. Emoto rice experiment: https://www.mindthesolution.be/the-rice-experiment/ & https://thewellnessenterprise.com/emoto/
• Basic Green Smoothie Recipe
-ripe spotty banana
-BIG handful spinach, a large leaf of kale, or some frozen okra
-cup or so of frozen fruit (any kind)
-Tbs of flax, hemp or chia seeds
-water to thin
-fresh peeled orange if you want to get fancy!
-BLEND until smooth!

Music by Slip.stream - Overu "Chill With You" - https://slip.stream/tracks/1df7d9e4-dc67-43fb-9f84-f48a8a0ca8d2

Aly & Emily are two fair-weather vegans, homeschooling moms, and sisters, who are raising four littles side-by-side. We are experts in nothing but we've been around the block a few times with several specific subjects, and we love to share our experiences with you. Every week on this podcast we discuss what we're grateful for, how we're healing from Lyme, PANS, PCOS & PTSD, what media we've been consuming, what vegan food we're eating, motherhood, and more! Other topics frequently discussed in this podcast series include 
Chronic lyme disease, PANS/PANDAS, Homeschooling, Kids, Books, Stay-at-Home Mothering, Healing & Detox, Vegan food, Cooking, Holistic Lifestyle and more!

DISCLAIMER: Healing for Hoes content is for informational purposes only, and not a substitute for professional medical advice. If ideas different than your own may cause your emotional collapse, please consider that this may not be the show for you. Healing for Hoes is all about learning new things, trying new methods of treatment, and finding our way to healing through any means necessary. We understand this is not for everyone.

Emily & Aly discuss their experiences as stay-at-home-moms, working moms, and work-from-home moms. Pros? Cons? What's next for us? We also talk a bit about kid sleep and creating boundaries in the otherwise boundary-free-zone that is parenthood. We are SO grateful to have the opportunity to stay home with our children and not miss out on any milestones or precious moments. That said, it's not the cake walk we thought it would be.

Please submit questions, comments or suggestions to [email protected]
Follow us on Instagram @HealingForHoes
https://www.instagram.com/healingforhoes/
Facebook: https://www.facebook.com/healingforhoes

LINKS:
• Nourished Gluten Free Bakery: https://nourishedcr.org
• Hatch Rest: We both have the 1st Generation one, which I can't find a link to online anymore! The second generation one doesn't seem to let you manipulate the schedule as easily. There are probably other similar products out there somewhere!
• Maggie Rogers' song, "Burning" <3 <3 <3 https://www.youtube.com/watch?v=umex4KhogOM


Every week on this podcast we discuss what we're grateful for, how we're healing from Lyme, PANS, PCOS & PTSD, what media we've been consuming, what vegan food we're eating, motherhood, and more! Other topics discussed in this podcast series include chronic Lyme disease, PANS/PANDAS, Homeschooling, Kids, Books, Stay-at-Home Mothering, Healing & Detox, Vegan food, Cooking, Holistic Lifestyle and more!

DISCLAIMER: Healing for Hoes content is for informational purposes only, and not a substitute for professional medical advice. If ideas different than your own may cause your emotional collapse, please consider that this may not be the show for you. Healing for Hoes is all about learning new things, trying new methods of treatment, and finding our way to healing through any means necessary. We understand this is not for everyone.

Emily & Aly discuss the topic of medical gaslighting and Aly's experience being gaslit by Luke's (now former) pediatrician. Aly also discusses feeing gaslit by close family and even herself. Don't gaslight yourself about PANS & PANDAS! This sh*t is all too real! Learn more here: https://aspire.care/what-is-pans/definition/

Please submit questions, comments or suggestions to [email protected]
Follow us on Instagram @HealingForHoes
https://www.instagram.com/healingforhoes/
Facebook: https://www.facebook.com/healingforhoes

LINKS:
• Cajun Pasta: https://detoxinista.com/creamy-cajun-pasta/


Every week on this podcast we discuss what we're grateful for, how we're healing from Lyme, PANS, PCOS & PTSD, what media we've been consuming, what vegan food we're eating, motherhood, and more! Other topics discussed in this podcast series include chronic Lyme disease, PANS/PANDAS, Homeschooling, Kids, Books, Stay-at-Home Mothering, Healing & Detox, Vegan food, Cooking, Holistic Lifestyle and more!

DISCLAIMER: Healing for Hoes content is for informational purposes only, and not a substitute for professional medical advice. AKA - Don't come for us if what worked for us doesn't work for you ; )  

Emily & Aly's musings on Easter, spring, and getting outside more! As well as the various ways we're healing, Luke's DNA test, daylight savings, media and more.

Please submit questions, comments or suggestions to [email protected]
Follow us on Instagram @HealingForHoes
https://www.instagram.com/healingforhoes/
Facebook: https://www.facebook.com/healingforhoes

LINKS:
• Great Meditation YouTube Channel: https://www.youtube.com/c/greatmeditation
• Sourdough Crackers: https://littlespoonfarm.com/sourdough-discard-crackers/
• Quinoa Black Bean Salad: https://detoxinista.com/the-best-quinoa-black-bean-salad/
• IntellxxDNA: https://www.intellxxdna.com


Every week on this podcast we discuss what we're grateful for, how we're healing from Lyme, PANS, PCOS & PTSD, what media we've been consuming, what vegan food we're eating, motherhood, and more! 

Other topics discussed in this podcast series: Chronic Lyme disease, PANS/PANDAS, Homeschooling, Kids, Books, Stay-at-Home Mothering, Healing & Detox, Vegan food, Cooking, Holistic Lifestyle and more!

DISCLAIMER: Healing for Hoes content is for informational purposes only, and not a substitute for professional medical advice. AKA - Don't come for us if what worked for us doesn't work for you ; )  

In this episode Aly & Emily discuss Aly's various phases of self-medicating through the trauma of PANS/PANDAS, as well as better methods of coping and even thriving through this challenging season of parenthood. This one goes out to all the PANS and PANDAS parents out there... we see you, we love you, your happiness matters! We also touch on the topic of "Radical Acceptance", manifestation, and a life-changing & perspective-changing journey!

Please submit questions, comments or suggestions to [email protected]
Follow us on Instagram @HealingForHoes
https://www.instagram.com/healingforhoes/

LINKS:
• Cedar Bend Labradoodles: https://www.cedarbendlabradoodles.com/upcoming-litters
• Curried Lentils with Coconut Milk: https://alexandracooks.com/2016/09/29/curried-lentils-coconut-milk/
• Radical Acceptance: https://hopeway.org/blog/radical-acceptance
• "Best Salad Ever": romaine, roasted broccoli & diced sweet potatoes, air-fried Hilary's World's Best Veggie Burgers, Follow Your Heart vegan feta + homemade vegan ranch (see below)

Best Vegan Ranch Recipe:
1 cup vegan mayo
1/2 cup plant milk
1/2 tsp garlic powder
1/2 tsp onion powder
1/4 tsp pepper
1/4-1/2 tsp salt
2 tsp dried parsley
1 tsp dried dill
Juice of 1/4 lemon OR 1 Tbs apple cider vinegar
Optional:  + Trader Joes Onion Salt
--> Whisk together, taste and adjust to your liking
--> Saves in the fridge for a month


Every week on this podcast we discuss what we're grateful for, how we're healing from Lyme, PANS, PCOS & PTSD, what media we've been consuming, what vegan food we're eating, motherhood, and more! 

Other topics discussed in this podcast series: Chronic Lyme disease, PANS/PANDAS, Homeschooling, Kids, Books, Stay-at-Home Mothering, Healing & Detox, Vegan food, Cooking, Holistic Lifestyle and more!

DISCLAIMER: Healing for Hoes content is for informational purposes only, and not a substitute for professional medical advice. AKA - Don't come for us if what worked for us doesn't work for you ; )  

In this episode Aly & Emily interview their kids and ask them the "weekly questions"! Thanks for helping us make it all the way to 15 episodes... we love you!

Please submit questions, comments or suggestions to [email protected]
Follow us on Instagram @HealingForHoes
https://www.instagram.com/healingforhoes/

Every week on this podcast we discuss what we're grateful for, how we're healing from Lyme, PANS & PCOS, what media we've been consuming, what vegan food we're eating, motherhood, and more! Other topics discussed in this podcast series: Chronic lyme disease, PANS/PANDAS, Homeschooling, Kids, Books, Stay at Home Mothering, Healing & Detox, Vegan food, Cooking, Holistic Lifestyle and more!

DISCLAIMER: Healing for Hoes content is for informational purposes only, and not a substitute for professional medical advice. AKA - Don't come for us if what worked for us doesn't work for you ; )  

In this episode Aly & Emily discuss managing anxiety before and after becoming parents. We also address anxiety in our children, PANS/PANDAS, PTSD, panic attacks, helpful tips and tricks... and some not so helpful tips and tricks :P

Please submit questions, comments or suggestions to [email protected]
Follow us on Instagram @HealingForHoes
https://www.instagram.com/healingforhoes/

LINKS:
• Veggie Reaper: https://www.veggiereaper.com
• Storybook App
• Breath Ball App
• DeMystifying PANS/PANDAS


Every week on this podcast we discuss what we're grateful for, how we're healing from Lyme, PANS & PCOS, what media we've been consuming, what vegan food we're eating, motherhood, and more! Other topics discussed in this podcast series: Chronic lyme disease, PANS/PANDAS, Homeschooling, Kids, Books, Stay at Home Mothering, Healing & Detox, Vegan food, Cooking, Holistic Lifestyle and more!


DISCLAIMER: Healing for Hoes content is for informational purposes only, and not a substitute for professional medical advice. AKA - Don't come for us if what worked for us doesn't work for you ; )  

In this episode Aly & Emily discuss getting Luke back to baseline after having PANS for three years as well as lyme disease, which he was born with. We did this with the help of his amazing clinician, Karn Johansen, PA-C. Find her here: https://www.iowaspecialtyhospital.com/doctors/karn-johansen-pa-c-johansen & https://www.medmaps.org/clinician-directory/ia/clarion/karn-johansen/
Or find a local MAPS provider here: https://www.medmaps.org/clinician-directory/
(To become a patient, Karn requires one in-person appointment before moving to telehealth visits. We drove several hours to see her and it was definitely worth it!)

--
Please submit questions, comments or suggestions to [email protected]
Follow us on Instagram @HealingForHoes
https://www.instagram.com/healingforhoes/
--
LINKS: omitted this episode due to character limit, sorry!
--

OUTLINE: How We Got Luke Back To Baseline in  Less Than 6 Months
(This was the path that worked for us. Every case is different.)

A) At the time we first met with Karn we had already:
• Read 2 books on P/P
• Tested positive for Lyme through an iGenex test
• Started daily journaling about a month beforehand, tracking:
• Made a list of infections to be sure to test for at initial appt

B) At our initial appointment we:
• Had a list of questions prepared (& at every future visit!)
• Scheduled weekly telehealth appointments for several weeks out
• Karn started Luke on the necessary medications, vitamins, supplements, and melatonin!

C) We saw our LLMD, Dr. Charles Crist in Ashland, MO
• In addition to antibiotics, etc, we started Luke on every optional treatment we could afford, such as LDA + allergy drops

D) We continued tracking daily in a planner which meds/supplements were making a visible difference in Luke's symptoms
• Continued meeting with Karn weekly until she suggested otherwise
• At this point we realized we would meet our deductible and OOP max so we did all the tests and procedures that could possibly be helpful:
- Allergy testing with a local allergist
- Electrodermal Screening with Dr. Shannon White at Chiro in Motion (Des Moines, IA)
- MRI
- EEG
- Met with a local ENT (Dr. Ryan Dempewolf) and gold Luke's tonsils and adenoids removed. This was a simple surgery but took about a week of recovery.
• Every week with Karn we would go over which symptoms were still an issue and address what we could add in to help, and see what we could remove from Luke's routine that wasn't helpful

E) Once he was somewhat healed and more stable we could address: mold + parasites
• Mold
- ERMI tested our house with Envirobiomics (many think these tests are oversensitive)
-Mycotox Panel on Luke through Great Plains Laboratory, ordered by Karn
(neither of these were covered by insurance)
• Parasites
- Over the counter pinworm treatment
- Para1 from CellCore
- Ivermectin through our LLMD

F) Decided to switch schools for the following school year & move to a different house, for a fresh start environmentally and emotionally. Most doctors would not recommend this but we knew it was the right move for us :)

G) Added in the anitpsychotic, Risperdal (Risperidone) after first testing out other SSRIs such as Zoloft. This was necessary to calm a dangerous level of impulsivity, and the last step to getting Luke back to his baseline!