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Texas Heart Mom, Staci Geiger, has experienced the trauma of handing her son over to surgeons far too many times. This experience left her grateful for the amazing care her son received and feeling blessed for his resilience and fortitude but it also left her wondering how people without the support she had could possibly go through the same journey she went through with her son's medical problems.

A mother, teacher and friend in the heart community, Staci decided to start a nonprofit organization to assist Christians facing the same trauma she experienced. Armed with compassion and a strong faith in God, she is working to provide support and comfort to others in the congenital heart defect community.

Tune in to this new podcast to hear Staci share her story about her son's medical journey, why and how she started a nonprofit organization and what her vision for the future is.

To visit Daniel's Lion Heart Foundation, go to: www.danielslionheart.com

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In this episode of Heart to Heart with Anna, returning Guest, Mary Kay Klein talks with Anna about an upcoming conference for the congenital heart defect community. Care, Hope, Discover 2019: A Congenital Heart Defect Conference will occur on October 26, 2019, in Waltham, Massachusetts at the Hilton Garden Inn in Waltham (near Boston).

This one-day educational conference is for CHD patients, family, friends, and caregivers. There will be an amazing group of speakers, medical providers and an inspiring panel of adults who are either living with CHD or a parent of a CHD patient. The conference begins at 9:00 a.m. (registration opens at 8 a.m.) and runs until 4:30 p.m. A Saturday Post-Conference Networking event is included with registration and begins at 5:00 p.m.

Featured speakers include Drs. Ram Emani, Mike Landzberg, Doug Mah, Fred Wu, Boston Children's Hospital; Ami Bhatt, Mass General; Mark Zilberman, Tufts Medical Center; and Paul Thayer, Boston University.

Use this link for more information and registration.

ACHA is a co-sponsor of this event along with It's My Heart New England, Adults Living with CHD of MA and The Children's Heart Foundation - New England Chapter.


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If you've ever wondered what Ivemark Syndrome is, you need to listen to this program! Ivemark Syndrome is a very rare constellation of birth defects which typically include malformations of the heart. 

Julia Mayfield is and adult born with a rare genetic condition called Ivemark Syndrome. According to the National Organization for Rare Disorders, Ivemark Syndrome is comprised of: 1) an absent or underdeveloped spleen, 2) cardiovascular anomalies and 3) abnormal placement of the organs in the chest and or abdomen.  Julia’s heart is on the right side of her chest and she is missing her spleen. By the time she was nine, she had been through four open-heart surgeries, the final of which caused a massive stroke post-op. She also developed severe scoliosis and required surgery. She is joining us today to raise awareness of Ivemark Syndrome and share her experiences of growing up and adulthood with this condition.

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Aubyn Baker-Riley is an adult born in 1963 with a bicuspid aortic valve and coarctation of the aorta. She had open-heart surgery at 7 years of age to widen the coarctation and ablations in 2005, 2016 and 2018. She is currently in heart failure.

Although Aubyn is only in her 50s, it's unusual for someone like her to have made it to adulthood. Many people born in the 1960s, and even in the next decade, succumbed to their heart defects before reaching adulthood. What has Aubyn's path been like for her? What symptoms and warning signs has she had?

More importantly, what is it like to live in heart failure? What are some coping techniques that can be used if you are in heart failure? Aubyn answers these questions and more in today's episode of "Heart to Heart with Anna."

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Dr. C. Huie Lin is the Director of the Adult Congenital Heart Program at Houston Methodist Hospital. Dr. Lin earned his Ph.D. and M.D. from the University of Virginia. His residency was done at Beth Israel Deaconess Medical Center in Boston and he completed his fellowship work in Adult Congenital - Adult Interventional Cardiology at Washington University-Barnes-Jewish Hospital.  

Dr. C. Huie Lin specializes in the care of adults with congenital heart defects. He is certified in the care of adults with congenital heart defects -- which is a fairly new specialization. Dr. Lins’s research work is focused on surgical intervention in congenital heart disease and adult congenital heart disease programs. Along with medicine, Dr. Lin also helped to establish the Adult Congenital Heart Symposium, a regional Houston conference which is held every year. 

In this episode of Heart to Heart with Anna, Dr. Lin shares with Anna what to expect at the 5th Annual Adult Congenital Heart Symposium. He talks about why the symposium was created by him and Dr. Ari Cedars. He explained their goals with providing the community with an opportunity for doctors, parents, Heart Warriors and anyone else in their lives to all come together to learn about topics of interest to those living with congenital heart defects.

For the Houston Methodist  YouTube channel go here: https://www.youtube.com/channel/UCb8PGmJ6SILfyOvOWJvHZIg

Use this link for the playlist of last year’s Adult Congenital Heart symposium: https://www.youtube.com/playlist?list=PLZpDzANLjPtWXE2mv8oWSEMuEtteQhElH

To register for this year's Adult Congenital Heart Symposium, use this link: http://events.houstonmethodist.org/events/5th-annual-adult-congenital-heart-symposium/event-summary-da59d4fc2cf04f4cbb6d2828b55fb2d2.aspx

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How is life different for a couple when the wife has a congenital heart defect? This week's episode features Megan and Matthew Tones. Megan was born with multiple, complex congenital heart defects which have required treatment since infancy. Tune in to hear how she and Matthew met, when he found out that Megan had a heart defect, and their philosophy of life and living with a chronic illness.

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Most people today (2019) with a single ventricle heart typically have one of two courses of treatment for their heart condition: 1) a series of surgeries culminating with the Fontan Procedure or 2) a heart transplant. That is not the case with our Guest in this episode. Born in 1970, returning Guest Laura Ryan, talks about what her life has been like growing up with a single ventricle heart palliated in a rather unusual way -- with a Potts shunt, a Waterston shunt and a Bi-Directional Glenn shunt. 

In this episode she shares what it was like for her as a child and what her endurance was like. She talks about how she interacted with her siblings and friends. She then moves on to share what it was like for her once she decided she wanted to start her family. In this very candid interview, Laura shares some of the travails she endured and what helped to her make it through the difficult times.

Finally, Laura shares how she feels pregnancy affected her body and her heart. She also shares her doctor's prognosis for her future, especially given her sequence of medical events thus far. Laura's story is one of inspiration and hope.

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Anna Jaworski, the Host of "Heart to Heart with Anna" attended Podcast Movement 2019 -- a conference, especially for podcasters. While at the conference, Anna met a number of people who had been touched by congenital heart defects, a fact she became aware of after she met new people and talked about the different podcasts each person made. This spawned an idea in Anna's mind -- to actually record people's stories about how congenital heart defects has impacted their lives thanks to the friends and relatives who have been touched by congenital heart defects. Unlike most of Anna's episodes, this one was completely spontaneous and impromptu. Take a look at how people in the podcasting community have been affected by congenital heart defects in this interesting and informative interview.

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This is a special episode of Heart to Heart with Anna that was recorded at Podcast Movement 2019 in Orlando, Florida. Buzzsprout set up a studio and invited its members to record a show at the conference. Three Hearts Unite the Globe (HUG) Board Members were attending the conference -- Guests: Laura Redfern and Frank Jaworski and Host: Anna Jaworski.

Listen as the three Board Members talk about what HUG means to them, where HUG has been and where the Board Members believe it's headed, why HUG now has a Patreon account and how others can be Patrons, supporters of Heart to Heart with Anna, Heart to Heart with Michael and future podcasts in the HUG Podcast Network.

Special thanks to Buzzsprout for setting up the studio and doing the recording of this program.

For more information about HUG, check out our website.
Visit our Patreon account to join our team!  

Sheri Turner is our newest Defender Patron and she also serves as a HUG Volunteer. Thank you so much for your generosity and all you do, Sheri!

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Brandon Lane Phillips, M.D. is a very special doctor -- he's a pediatric cardiologist who was also born with a severe congenital heart defect -- tetralogy of Fallot. In this episode of "Heart to Heart with Anna," Brandon talks to Anna about the people who have come in and out of his life and who have helped to shape him into the person he is today. He shares his medical journey with Anna, as well as his educational struggles and how he was able to overcome his learning disability to achieve his dream of becoming a pediatric cardiologist.

To purchase Dr. Phillip's book, use this link: https://tinyurl.com/y5grtz7v

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