Hidradenitis SuppuraDIVAS

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YES, you read that right! We know talking about sex & intimacy can feel uncomfortable for those of us living with Hidradenitis Suppurativa. BUT, we are ready to dive in and talk about what it looks like for us.. How we talk to our partners about our scars/ wounds & how to navigate the conversation! 

This will be a good one you don’t want to miss! Not to mention, this is an inclusive conversation so we would love to hear about what works for you too! 

Make sure you like and subscribe so you can continue laugh & cry with us about all things HS! 

@hsconnectorg

@hsfightclub

@socialcydd 

Resources: https://www.hsconnect.org/post/real-talk-about-sex-intimacy-and-hs

This podcast was made possible by our sponsor Moonlake, and past sponsors UCB and Sanofi.

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As HS warriors, we know the physical pain Hidradenitis Suppurativa brings, but for a lot of us the battle doesn’t stop there. 

Mentally, HS can be draining and leave you feeling all alone, which couldn’t be further from the truth. 

As we dive into some topics that have helped us navigate the mental burden we hope you know you’re not alone and at least one thing resonates with you! 

From the pure mental exhaustion, managing your anxiety, and finding something that brings you joy on a daily basis...we covered a lot! 

If you or someone you know is struggling with their mental health please know you are not alone. Reach out to any of us for help, we are always here for you! 

@hsconnectorg
@socialcydd
@hsfightclub

Resources: https://www.hsconnect.org/mental-health

This podcast was made possible by our sponsor Moonlake, and past sponsors UCB and Sanofi.

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Tune into episode 8 with the Hidradenitis SuppuraDIVAS where we talk TRIGGERS! 

Some of us have certain things that we know triggers our HS to flare up, others have no idea what their triggers are, and some are on a journey to find out...and ALL of these are OK!  For some, triggers can be certain clothing, mechanical stress, sweat, friction, what you may or may not be eating...the list goes on so we took some time to talk about it! 

We have said it once & will say it forever, your HS is not your fault. However; taking time to journal or be more aware of your daily actions can help identify if there’s anything you can do to help.

We hope this conversation will help you on your journey to learning about your HS!

If you have any questions or tips on identifying triggers for HS— feel free to share them in the comment section! You can also ask questions at HSConnect.org & we will do our best to answer next season!

If you feel like you may have or know someone with Hidradenitis Suppurativa please know you’re not alone! Go to https://www.hsconnect.org/dermatologists to find a dermatologist near you who is familiar with HS. 

If you need more information on what Hidradenitis Suppurativa go to https://www.hsconnect.org/what-is-hs for better understanding! 

Don’t forget to give us a follow + subscribe to our channels! 
@HSConnect 
@hsfightclubco 
@socialcydd

Thank you UCB for sponsoring this episode of the Hidradenitis SuppuraDIVAS podcast! 

This podcast was made possible by our sponsor Moonlake, and past sponsors UCB and Sanofi.

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Tune into episode 7 with the Hidradenitis SuppuraDIVAS! In this episode we sat down with Dr. Kiera Barr and open up the shame vault! 

It was so impactful to sit down with Dr. Barr and talk about some life's obstacles living with Hidradenitis Suppurativa. Not only did she validate a lot of the struggles we walk through with the medical community, but she gave us tools to overcome this huge burden we lay on ourselves. 

If you take anything from the podcast we want you to know, HS is not your fault. 

Dr. Barr did an incredible job explaining the connection between the brain and the skin in a way that will make you feel empowered & look at your body from a different perspective. 

We hope this conversation will help you on your journey to learning about your HS!

If you have any questions or tips — feel free to share them in the comment section! You can also ask questions at HSConnect.org & we will do our best to answer next season! 

If you feel like you may have or know someone with Hidradenitis Suppurativa please know you’re not alone! Go to https://www.hsconnect.org/dermatologists to find a dermatologist near you who is familiar in HS. 

If you need more information on what Hidradenitis Suppurativa go to https://www.hsconnect.org/what-is-hs for better understanding! 

Don’t forget to give us a follow + subscribe to our channels! 
@HSConnect 
@hsfightclubco 
@socialcydd 
@drkeirabarr

Thank you UCB for sponsoring this episode of the Hidradenitis SuppuraDIVAS podcast!

This podcast was made possible by our sponsor Moonlake, and past sponsors UCB and Sanofi.

Send us Fan Mail

Tune into episode 6 with the Hidradenitis SuppuraDIVAS! In this episode you will gain insight from men & HS influencers Joey Torre & Parish Armstead.

Dive in with us as we ask them what it’s like being a man living with Hidradenitis Suppurativa. They talk about the mental heaviness it may cause & how they deal, toxic masculinity, and more! You don't want to miss their special insight on life with as a male.

We hope this episode resonates with you & if you know a male struggling with HS please share with them! 

If you have any questions, tips or concerns please— feel free to share them in the comment section! You can also ask questions at HSConnect.org & we will do our best to answer next season!

If you feel like you may have or know someone with Hidradenitis Suppurativa please know you’re not alone! Go to https://www.hsconnect.org/dermatologists to find a dermatologist near you who is familiar with HS. 

If you need more information on what Hidradenitis Suppurativa go to https://www.hsconnect.org/what-is-hs for better understanding! 

Don’t forget to give us a follow + subscribe to our channels! 
@HSConnect 
@hsfightclubco 
@socialcydd 

Joey Torre's social media 
TikTok: @bklynjoeytorre718
IG: joeytorre718

Parish Armstead's social media 
IG: @Hsopenwounds on Instagram

This podcast was made possible by our sponsor Moonlake, and past sponsors UCB and Sanofi.

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Tune into episode 5 with the Hidradenitis SuppuraDIVAS! In this episode you will gain insight from each co host on ways to feel supported on your HS journey! 

We know battling HS can feel isolating & that’s why we came together to share tips on how to get the support you need from those around you. 

From your partner, to your friends & family, we talked about different ways you can help give them insight on your HS journey and we even dropped a few tips they can use too! It’s important we start having conversations like these with those who love and support us. 

Give them the chance to be there for you when you need it, you deserve that!

If you have any additional ways to feel supported while living with HS— feel free to share them in the comment section! You can also ask questions at HSConnect.org & we will do our best to answer next season! 

If you feel like you may have or know someone with Hidradenitis Suppurativa please know you’re not alone! Go to https://www.hsconnect.org/dermatologists to find a dermatologist near you who is familiar in HS. 

If you need more information on what Hidradenitis Suppurativa go to https://www.hsconnect.org/what-is-hs for better understanding!

Don’t forget to give us a follow + subscribe to our channels! 
@HSConnect 
@hsfightclubco 
@socialcydd

Thank you UCB for sponsoring this episode of the Hidradenitis SuppuraDIVAS podcast! 

This podcast was made possible by our sponsor Moonlake, and past sponsors UCB and Sanofi.

Send us Fan Mail

Welcome to episode 4 with the Hidradenitis SuppuraDIVAS! In this episode you will gain insight from each co-host and their real life experiences living with HS. 

As moms and wives there can be an overwhelming feeling of guilt when our household doesn’t match the societal norm. We have to nurture our relationships differently, and most importantly, learn to prioritize ourselves. 

Dive in with us and talk about real life with HS! If you have any special tips or tricks working for you— feel free to share them in the comment section! You can also ask questions at HSConnect.org & we will do our best to answer next season!

If you feel like you may have or know someone with Hidradenitis Suppurativa please know you’re not alone! Go to https://www.hsconnect.org/dermatologists to find a dermatologist near you who is familiar in HS. 

If you need more information on what Hidradenitis Suppurativa go to https://www.hsconnect.org/what-is-hs for better understanding! 

Don’t forget to give us a follow + subscribe to our channels! 
@HSConnect 
@hsfightclubco 
@socialcydd

Thank you UCB for sponsoring this episode of the Hidradenitis SuppuraDIVAS podcast! 

This podcast was made possible by our sponsor Moonlake, and past sponsors UCB and Sanofi.

Send us Fan Mail

Welcome to episode 3 with the Hidradenitis SuppuraDIVAS & Dr. Steven Daveluy!

Dr. Daveluy is a board certified dermatologist who specializes in HS at Wayne State University in Detroit and also serves on the HS Foundation board.  

Imagine having an hour to sit down and ask a dermatologist ALLLLLL the things you’ve been dying to know; from learning when you should head to the dermatologist if you think you may have HS, to what treatment options may be the best fit for you.

Dr. Daveluy talks about the effect nutrition has on inflammation in the body that contributes to HS.  We seriously covered it all… what HS IS and IS NOT, the connection with our hormones & even being diagnosed with HS later in life. I’m positive we could have gone on for days with all the tea he was spilling about Hidradenitis Suppurativa! So be sure to like & subscribe so you don’t miss any future episodes!! 

If you have any questions or topics you would love to see us talk about, please be sure to use the link below to submit for next season! We love your feedback!! 

If you feel like you may have or know someone with Hidradenitis Suppurativa please know you’re not alone! Go to https://www.hsconnect.org/dermatologists to find a dermatologist near you who is familiar in HS. 

If you need more information on Hidradenitis Suppurativa go to https://www.hsconnect.org/what-is-hs for better understanding! 

Don’t forget to give us a follow + subscribe to our channels! 

@HSConnect 

@hsfightclubco 

@socialcydd 

@doctor_beard_md

Thank you to UCB for sponsoring this episode of the Hidradenitis SuppuraDIVAS podcast!

This podcast was made possible by our sponsor Moonlake, and past sponsors UCB and Sanofi.

Send us Fan Mail

Thanks for joining us for episode 2...What is HS? Dive into the basics of what Hidradenitis Suppurativa IS and IS NOT.  We know that misinformation is a big issue within the HS community, so we feel a huge responsibility as patients and advocates to make sure you are getting the correct info at all times 

We hope you find value in this episode and remember how important it is to advocate for yourself & the power of telling your story! 

If you think you may have HS or know someone with Hidradenitis Suppurativa please know you’re not alone! 

For more information on all things HS, please visit www.HSConnect.org

Here are more resources about what HS is and ISN'T:

What is HS article

Separating Fact from Fiction with HS 

Abscesses, Boils and Lesions...oh my!  The HS Language

What is HS: A Follicular Occlusion

HS Patient Handbook

HS is not a gland illness; Here's why it's important

Common External HS Symptoms

Don’t forget to subscribe & follow us on socials! 
@hsfightclubco 
@hsconnectorg 
@socialcydd 

Thank you to UCB for sponsoring this episode!! 

Edited by: Kaden Rushton 

Recorded by: Third Wheel Studios

This podcast was made possible by our sponsor Moonlake, and past sponsors UCB and Sanofi.

Send us Fan Mail

Welcome!! We're glad you found us!  If you have Hidradenitis Suppurativa (HS), or know someone who does, this is the podcast for you! 

Join Brindley, Cyd and Mahala, who each have unique perspectives on what living with HS looks like, as we talk about life with HS.  We'll cover common misconceptions, motherhood, talk with experts, mental health, sex and intimacy with HS, getting diagnosed, and everything in between!

If you have any questions or topics you would like to see covered please tell us here so we can be sure to cover what's important to you! We love your feedback!!

If you feel like you may have HS or know someone with Hidradenitis Suppurativa please know you’re not alone! Visit our Dermatology List here to find a dermatologist near you who is familiar with HS.

For more information on all things HS, please visit www.hsconnect.org. 

Don’t forget to give us a follow + subscribe to our channels! 

@HSConnectorg

@hsfightclubco

@socialcydd

This podcast was made possible by our sponsor Moonlake, and past sponsors UCB and Sanofi.