HIV Matters

Join me as I talk to Garry Jones about the HIV memorial in Birmingham. Learn the thinking and development around the memorial. 

Episode Guest

Garry Jones is a HIV activist and successful artist 

Additional Information and Links 

HIV Matters Bookstore 

https://uk.bookshop.org/shop/HIVMatters

How to contact the show 

Dr Michelle Croston@ [email protected]

https://hiv-matters.captivate.fm

Within the podcast we explore Silvia’s activism over the 4 decade of HIV and how her strong female leadership has influenced the sector. We explore the importance of peer support and how to support people living with HIV.   

Episode Guest

Silvia Petretti was born in Rome, Italy. She moved to London in 1987 and graduated in African Arts and Languages at SOAS. Silvia spent her younger years travelling around West Africa and promoting dance and music from Africa and the diaspora in Italy, also working as a writer for documentaries. Since 2019 Silvia has been Positively UK’s CEO, a national charity lead and run by people with HIV. She firstly joined Positively UK in 1999, when Positively UK was still known as Positively Women, as a volunteer in the organisation Community Development Team providing treatment information to women attending HIV clinics. Soon she became a staff member leading on support for women with drug and alcohol issues and providing outreach in Holloway prison. Silvia is the co-author of the SHE+ toolkit (Strong HIV Positive and Empowered), which aimed at supporting women with HIV in Europe to deliver women centred peer support. Silvia is a member of the WHO advisory board on Women and HIV and has worked as part of a team to develop a global toolkit for women with HIV to access their Sexual and Reproductive Health and Rights. Silvia believes that a key tool in defeating HIV stigma is for people with HIV to be heard, visible and involved in decisions that affect them.  Silvia has been living with HIV 26 years

Additional Information and Links 

HIV Matters Bookstore 

https://uk.bookshop.org/shop/HIVMatters

How to contact the show 

Dr Michelle Croston@ [email protected]

https://hiv-matters.captivate.fm

The focus of the podcast will explore sexual pleasure and what this means within the context of care. The role of television programmes in relation to promoting sex education and how we raise issues within our clinical conversation. 

Episode Guest

Naomi Sutton has been working as a Consultant within the Rotherham Sexual Health Services since 2016 after completing training in Sheffield. Throughout her career she has developed a passion for education and raising awareness of sexual health, enjoying her role as the FSRH training programme director, as well as regular commitments to teaching other health care professionals and lecturing at conferences. Naomi's media career started with the E4's 'The Sex Clinic’ which “helps young people get their sex lives back on track” and, as well as other media roles, she has talked frankly about vulvas, sex in old age, HIV and other sexual health subjects, on C4’s ‘Steph’s Packed Lunch’. Naomi is proud to be a Trustee for the charity Saving Lives UK and an Ambassador for both the Eve Appeal and the Family Planning Association. 

Additional Information and Links 

National HIV Nurse Association (NHIVNA) www.nhivna.org.

HIV Matters Bookstore 

https://uk.bookshop.org/shop/HIVMatters

How to contact the show 

Dr Michelle Croston@ [email protected]

https://hiv-matters.captivate.fm

Episode 10 –  HIV and Stigma with Nathaniel Hall and Jenny Kendrick

This episode is a special one for us, and one we have been planning since HIV Matters began. We have the absolutely wonderful Nathaniel Hall and Jen Kendrick joining us to discuss some of the amazing work they have been doing around HIV and stigma. We even get a bit of an insight into what work that are doing in the future.

Episode Guest - Nathaniel Hall

Nathaniel is a freelance theatre-maker, writer, performer, director, producer and HIV activist from Manchester (yay). He is well known on the subject of stigma, appearing frequently across social media, television and published articles. Nathaniel won us all over as Donald Bassett in the critically acclaimed 'It's a sin'. We are so excited to have him as part of the HIV Matters family.

Episode Guest - Jen Kendrick

Jen is a HIV Clinical Nurse Specialist in HIV, based in the Manchester area. Apart from being a good friend of HIV Matters, Jen is a trustee of NHIVNA forming part of the executive committee. She has loads of noteworthy publications around HIV and we are excited that she is going to talk us through one of these today.

Additional Information and Links 

Access to Nathaniel's Website www.nathanieljhall.co.uk

National HIV Nurse Association (NHIVNA) www.nhivna.org.

HIV Matters Bookstore

https://uk.bookshop.org/shop/HIVMatters

How to contact the show 

[email protected]

https://hiv-matters.captivate.fm

Episode 9 –  The Nuance of International HIV Gender and Health

This episode takes us on a journey on an international stage. Alice lets us know the current Global research she working on to help change policy, using 7 different languages and involving 90 countries. This amazing work with inform the WHO guidelines on reproductive health for women living with HIV.

Episode Guest - Alice Welbourn

At HIV Matters we have been closely following the career of Alice over the last few years. For over 30 years, Alice has worked on international level for gender and health issues. She is also a trainer, writer and researcher in this subject area as well as many other things. We can't wait for your to learn more with us from the wonderful Alice.

WHO Guideline on SRHR of women living with HIV

Building a safe house on firm ground survey report

WHO SRHR Guideline

Implementation checklist

Case study annex

And some articles:

WHO article about the survey

Journal of Ethics article about the survey

Salamander website page about it all

Collaborative research

AIDS Conference posters

Imperial College film on collaborative research

And some articles:

On the WHAVE podcast paper on participatory research

On the WHAVE podcasts – eg no. 12 about peer research

UNAIDS ALIV[H]E Framework

ALIV[H]E in Action: Case studies

Importance of Women’s involvement in clinical research trials, Namiba A et al 2022 - article

Intimate Partner Violence and violence in healthcare settings

JIAS VAW article

JIAS MH article

ICW videos about pregnancy and violence in healthcare settings

Article about coerced sterilisation in Namibia etc.

Women’s rights to perinatal care

eSRHR – 4M policy brief

Alice openDemocracy article: “When Things Fall Apart” 2009

4M site: https://4mmm.org/

Community-based gender-transformative programmes: violence against women is preventable

Stepping Stones & Stepping Stones Plus

Stepping Stones with Children 

Stepping Stones website and CFAR website (our colleagues in Uganda who are in the process of taking over the global knowledge hub for Stepping Stones)

Stepping Stones FAQs and Adaptation Guidelines

And some articles:

Holden, S., Gordon-Dseagu, V. L., Gordon, G., Chiziza, N., Kiwia, P., Magesa, D., Manyama, W., & Welbourn, A. (2019). Building resilience to adverse childhood experiences: An assessment of the effects of the Stepping Stones with Children training programme on Tanzanian children affected by HIV and their caregivers. Health Education Journal, 78(2), 124–137. https://doi.org/10.1177/0017896918787217

Stepping Stones with Children films: a collection of films about the Stepping Stones with Children programme, including several made by adult and child participants themselves, one year on: https://vimeo.com/showcase/3822203

Ellen Bajenja: International Women’s Day, March 2021 webinar: Stepping Stones To Girls’ Rights

Jewkes R, Flood M,  and James Lang J.  From work with men and boys to changes of social norms and reduction of inequities in gender relations: a conceptual shift

in prevention of violence against women and girls Lancet 2015; 385: 1580–89 http://dx.doi.org/10.1016/S0140-6736(14)61683-4

 CUSP Collective and feminist scaling of gender transformative programmes

Thought piece:

Community for Understanding Scale Up (2021). “Enhancing Social Norms Programs: An Invitation to Rethink ‘Scaling Up’ from a Feminist Perspective.” Community for Understanding Scale Up.

Webinar: March 2022 on this thought piece.

Blog: Enhancing Social Norms Programs: An Invitation to Rethink "Scaling Up" from a Feminist Perspective Rebecka Lundgren, CUSP. SVRI website. 2022.

Infographic: Feminist Scale Supports Movements. CUSP 2022.

HTUN, M., & WELDON, S. (2012). The Civic Origins of Progressive Policy Change: Combating Violence against Women in Global Perspective, 1975–2005. American Political Science Review, 106(3), 548-569. doi:10.1017/S0003055412000226

Funding women’s rights’ networks

Making waves funding blog

WHAVE podcast paper on funding

SVRI report on funding

Trauma-aware care

Article about the importance of the 1st clinic visit: 

Peyre, M.E. et al. (2016) Influence of the First Consultation on Adherence to Antiretroviral Therapy for HIV-infected Patients, PubMed Central (PMC). Available at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5037933/ (Accessed: 2016). 

Training of healthcare providers

Marijo Vazquez: WHAVE podcast on training medical students in Barcelona, Spain

Greater involvement of people living with HIV in healthcare article:

Morolake, O., Stephens, D. and Welbourn, A. (2009), Greater involvement of people living with HIV in health care. Journal of the International AIDS Society, 12: 4-4. https://doi.org/10.1186/1758-2652-12-4

Other references

Forest bathing

Conversations with Annalisa Barbieri

Braiding Sweetgrass by Robin Wall Kimmerer

Doughnut Economics Kate Raworth (website and youtube)

Report about HIV and women and COVID:

ITPC, GALZ, JSF, PYWV, YP, Making Waves and Salamander Trust (2022) 

Are the Sexual and Reproductive Health and Rights of Women living

with HIV still confined by Covid-19?: An analysis of then and now.

Dunaway K, Brion S, Hale F, et al. What will it take to achieve the sexual and reproductive health and rights of women living with HIV? Women’s Health. 2022;18. doi:10.1177/17455057221080361

Additional Information and Links 

National HIV Nurse Association (NHIVNA) www.nhivna.org.

HIV Matters Bookstore

https://uk.bookshop.org/shop/HIVMatters

How to contact the show 

[email protected]

https://hiv-matters.captivate.fm

Episode 8 –  "Hart Talks" with HIV Matters

Today's show includes wonderful conversation with the YouTube Star Stephen Hart. Having created and performed in his own one man show, Hart Talks began 6 years ago (much to Stephen's dismay). Join us while we discuss Stephen's journey and what his hopes are for the future.

Episode Guest - Stephen Hart

Stephen Hart is well known for the critically acclaimed off-broadway show "Shadow Dreamer", discussing life after becoming a man living with HIV. When finishing this show, Stephen knew there was something more he could do, so decided to start uploading videos to YouTube under the title "Hart Talks". We are excited for you to learn more about Stephen with us.

Additional Information and Links 

Hart Talks Youtube Page https://www.youtube.com/c/StephenHartHartTalks/videos

National HIV Nurse Association (NHIVNA) www.nhivna.org.

HIV Matters Bookstore

https://uk.bookshop.org/shop/HIVMatters

How to contact the show 

[email protected]

https://hiv-matters.captivate.fm

Episode 7 –  Getting Older with HIV

On this week's episode, Michelle talks to Winnie Sseruma to discuss a phenomena that no one predicted when the epidemic was at it's highest, getting older with HIV. Medicine has dramatically improved due to research, but has been driven mainly by activists like Winnie. As a person living with HIV, Winnie explores how her life has changed since her diagnosis, and how she has had to adjust her mindset and life whilst getting older.

Episode Guest Winnie Sseruma

Winnie is a freelance international development consultant and a huge advocate for people living with HIV. She has worked on treatment and advocacy boards and with black communities in the UK and Sub Saharan African. With over 20 years worth of experience in HIV activism we cannot wait for you to hear what she has to say.

Additional Information and Links 

Winnie's Ted Talk

https://www.youtube.com/watch?v=ReXPssaBdc4

National HIV Nurse Association (NHIVNA)

www.nhivna.org.

HIV Matters Bookstore

https://uk.bookshop.org/shop/HIVMatters

How to contact the show 

[email protected]

https://hiv-matters.captivate.fm

Episode 6 – Sex, drugs and psychiatry 

The podcast focuses on the use of psychotropic drugs on sexual function, we explore the common side effects associated with a number of commonly prescribed medication. We explore safe and effective prescribing with regards to this aspect of care. During the podcast we explore ways to raise this sensitive subject within our clinical consultations. 

Episode Guest Stephen Marks 

Stephen is a senior lecture at Manchester Metropolitan University and has a clinical background working in mental health services. 

Additional Information and Links 

The Maudsley Practice guidelines for physical health conditions in psychiatry 

https://www.wiley.com/engb/The+Maudsley+Practice+Guidelines+for+Physical+Health+Conditions+in+Psychiatry-p-9781119554202 

HIV and mental health 

https://www.tht.org.uk/hiv-and-sexual-health/living-well-hiv/mental-health/depression 

HIV and emotional wellbeing 

https://www.aidsmap.com/about-hiv/hiv-mental-health-emotional-wellbeing 

National HIV Nurse Association (NHIVNA) www.nhivna.org.

HIV Matters Bookstore

https://uk.bookshop.org/shop/HIVMatters

How to contact the show 

[email protected]

https://hiv-matters.captivate.fm

Episode 5 – HIV, COVID-19 and Monkeypox 

This episode of the podcast focuses on the current narrative of COVID -19, Monkey pox and HIV. Within the interview we explore the current themes that are being portrayed in the media with regards to how pandemics are being reported and the lessons we can learn from this as a society. 

Episode Guest- Dr Maurice Nagington and Dr Jaime García-Iglesias

Maurice Nagington is an academic and researcher at the University of Manchester, his research interest includes LGBT health, HIV, ageing, and 'chemsex' (the use of drugs by gay men in sexualised settings). Jamie is a Midred Baxter Postdoctoral Research Fellow at the Centre for Biomedicine, Self and Society at The University of Edinburgh. Jamie is working on exploring how sexual fantasies and desires can be harnessed for HIV prevention by engaging with a range of stakeholders.

Additional Information and Links 

From AIDS to Coronavirus: Who has the Right to Care?” for The European Sociologist (link)

Viral times, viral memories, viral futures which is the editorial introduction (alongside Peter Aggleton) the special issue of Culture, Health and Sexuality (link) 

National HIV Nurse Association (NHIVNA) www.nhivna.org.

HIV Matters Bookstore

https://uk.bookshop.org/shop/HIVMatters

How to contact the show 

[email protected]

https://hiv-matters.captivate.fm

Episode 4 – Empowering Women Living With HIV 

The focus of the podcast is to explore how we empower women living with HIV In the consultation room and beyond. Jo shares with us some of the challenges women experience when accessing care and what we can do in our roles to help that. The importance of sharing of knowledge is addressed and finding ways to support people to access the care they need. 

Disclaimer

During the episode, Juno Roche is referred to as she/her. However, Juno goes by the pronouns they/them. We would like to apologise for misgendering of Juno.

Please find a link to Juno's book below:

https://uk.bookshop.org/books/a-working-class-family-ages-badly-remarkable-the-observer/9780349702346?aid=10157

We would also like to correct that Jo is no longer the co-chair of the Sophia Forum, and at present is no longer affiliated with them.

Episode Guest: Jo Josh 

Jo is a communications consultant with background in journalism, broadcasting, public relations, crisis communications and media training. Jo has been living with HIV for a number of years and has a wealth of experience in this area of care. Jo is the communication officer for the British HIV Association and has held a number of role in the HIV sector. 

Additional Information and Links 

National HIV Nurse Association (NHIVNA) www.nhivna.org.

HIV Matters Bookstore

https://uk.bookshop.org/shop/HIVMatters

Sophia forum https://sophiaforum.net/ 

Invisible no longer https://www.tht.org.uk/our-work/our-campaigns/women-and-hiv-invisible-no-longer 

The grows project https://www.youtube.com/watch?v=-ULKgejZU_0  

HIV and aging https://www.youtube.com/watch?v=aBIIKszusuc 

NAM aidsmap  https://www.aidsmap.com/videos/dr-tristan-barber-and-jo-josh-talk-about-hiv-and-ageing

How to contact the show 

[email protected]

https://hiv-matters.captivate.fm