Hope Charities

Living with Hemophilia is no easy road and the unsung heroes of anyone living with a rare or chronic condition are the family that surrounds them. Hannah James joins her Dad Jonathan James in an unplugged interview to talk about growing up as a daughter of someone living with hemophilia. In this episode, we cover important issues like a Child's perspective of watching their Dad struggle at times with the limitations of hemophilia and other topics like what it’s like growing up being involved in the bleeding disorders community. 

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There is no better way to connect with family or friends than to spend time enjoying food with one another. In this episode, Jonathan James and Brad Creel talk with Food Network host and world-renowned author and food expert Simon Majumdar to discuss the important ways that food brings happiness, community, and health to our lives. 

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In Episode 3 Jonathan James and Lori Bienvenu, LPC sit down with suicide survivor Emma Benoit to have an important conversation about #MentalHealth and suicide prevention. Emma shares her story of surviving a suicide attempt and her undiagnosed depression and anxiety and the lessons she learned on her journey. Emma shares her story in the documentary “My Ascension” and speaks to students and adults about the important role of mental health and how to be aware of the warning signs. You can learn more about the movie at www.myascension.us. 

Hope Charities is a national nonprofit focused on helping people living with rare and chronic illnesses thrive. Our programs specialize in helping people with genetic bleeding disorders and #hemophilia navigate the challenges of invisible disease by providing emotional, educational, and tangible support. To learn more about our programs visit our website www.hope-charities.org. 

Audio versions of this podcast are available on Spotify, Apple, and anywhere you listen to podcasts. Subscribe to our podcast to listen to

more inspiring interviews like this today. 

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In episode two of the Hope Charities Podcast, Jonathan and Stephen sit down and talk about many of the aspects of living with a bleeding disorder from the perspective of the patient. In addition they talk about what that looks like on preventative treatment. 

You really don't want to miss out on this episode of our podcast so we hope you tune in, take notes and remember, as they say, " You are not alone."

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In episode one of the Hope Charities podcast, Jonathan James (CEO) invites Lesley Lamarie to discuss some aspects of prophylaxis and life for the hemophilia and bleeding disorder community.  

Make sure to tune in and don't forget to register for Prophy Conference March 10-12, 2022. Registration is still open so don't miss out!

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