Fidelia Cascini is Digital Healh expert engaged by the Italian Ministry of Health on European and national initiative. She recently wrote a book on secondary use of data in healthcare, read it here:

www.facesofdigitalhealth.com

Newsletter: https://fodh.substack.com/

Youtube: https://www.youtube.com/watch?v=tbSCXUhIDZ8

Show notes:

01:08 Diving into Different Categories of Health Data

01:35 Discussion on Secondary Use of Data in Europe

02:16 Call for Listener Feedback

03:07 Starting the Interview with Felia Kini

03:36 Importance of Distinguishing Data Types

04:38 Challenges in Using Different Data Sources

06:38 Real-World vs. Clinical Trial Data

07:19 Patient Preferences and Medication Adherence

09:31 Most Suitable Data for Secondary Purposes

10:32 Patient Generated Health Data

11:53 Discussions Among Health Ministries

13:09 Trustworthiness and Integration of Digital Tools

17:45 Patient Reported Outcomes in EHRs

19:35 European Health Data Space (EHDS)

29:55 Patient Control Over Data

33:47 Barriers to EHDS Success

37:13 Public Health Perspectives and Global Changes

40:14 Conclusion and Future Perspectives

42:20 Closing Remarks and Upcoming Events