030.  Tammie talks to Jennifer Sills, founder of the CSNK2A1 foundation, about what it's like to have a child with a rare disease and how she has built a community to search for cure and treatment of OCNDS, a rare genetic syndrome.  

Jennifer's dogged determination and values of hope, community, collaboration are driving the foundation towards care, treatment and a cure.  

For more information on the links mentioned in the show, please see show notes at :
https://showupsociety.com/30

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