Confessions of a Rare Disease Mama

How to find and manage the right care team for your medically complex child


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Welcome back (and happy Valentine's Day)! This week I dive deep into the importance of surrounding yourself (and your child) with the right team of medical professionals. I truly believe that parents and doctors are a collaborative team (especially when it comes to caring for our rare disease/medically complex kiddos) which is why it is VITAL that you are able to work well together. Our children's lives (quite literally) depend on it. Let's get into it! 




Resources & Links for this episode:

  • Buy Soaring Together: Amazon, Barnes & Noble, or locally at Bike Trail Books in Loveland and the Cincinnati Zoo Gift Shop
  • Learn more about our brave warriors: saveromanandstella.com
  • Support our family: GoFundMe
  • Follow us!
    • Instagram: @confessionsofararediseasemama
    • TikTok: @rare_mama
    • Facebook: Jillian Arnold & Confessions of a Rare Disease Mama
  • Get your FREE Positive Affirmations for the Medical Parent PDF here!
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Confessions of a Rare Disease MamaBy Jillian Arnold

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