Because of the amazing efforts of my friend and the GoFundMe she set up to have my apartment deep cleaned We started today! So I thought I would document that for the donators to that particular gfm. But I also thought regular listeners and donators to my GoFundMe for the treatments that keep me alive would like to hear about it. Especially how it is such a critical support. And also some of the internalized ableism and disability bias I have going on around housekeeping. some part of me still thinks that I can do it which isn't true. And empirical evidence shows it isn't true. And outrageous pain and exhaustion shows that it isn't true. But still some part of me believes that.

anyway the child like delight I feel at having just this beginning part of getting my apartment clean made the Also delighted. They said it made them feel really appreciated Especially that I made up the clean floor song lol

in which I grind away trying to get things done and the system grinds on me slowly destroying me In spite of my best efforts to wrangle them to logic.

I'm sorry I don't have the brain power to include the links I talk about. I'll try to add those later

Update where you get a case in point of why it is bad bad baddy bad bad to work outside your energy envelope and when you have a long viral ME

Things I mention

Gfm

https://gofund.me/6d981312

Petition

https://bit.ly/Marcia_petition

Email campaign CTV Template https://docs.google.com/document/d/1VD2zqOKxcQp7SUP06mY8slZlH1sXkKHKVPV0IfLo-uI/edit?usp=sharing

mini episode where I give you a few little snippets of some good things among all of the ongoing Herculean rough and tough things

photo is of 12 little bouquets waiting to be given out for plant distribution

documenting yet another instance of when I go out of my way to double check on the some sort of medical provider and get told incorrect information which ultimately causes me to hemorrhage energy

where I'm thinking I'm going to have to do different strategy in really start getting a public officials to understand that if they are thinking that stonewalling me and waiting for me to die will make the problem go away. that it isn't just horrifying it isn't true. absolutely things will go terribly for them if I die. at some point somebody's going to cudgel them with my story. And truthfully if they allow that, it's as well they should.

But it's a million times better to work with me, to use my experience and my ability to see all of the different sides and communicate them to course correct a huge loss of talent and tax base to unnecessary disability via long covid and all kinds of other long viral ME just being diagnosed in a timely way with correct instructions to stay inside one's energy envelope can be dramatic. And that's just aiming at the financial impact politically not the human rights atrocity of the kind of abdication I'm experiencing

anyway, I'm hanging in. Just barely. by my fingernails

Sick times republish of op-ed March 20th 2025

https://l.gourl.es/l/56898fa8ccf060b8bf79b817ad9fabd986f4a62f?u=11010884

gfm

https://gofund.me/6d981312

My email if you think that you're somebody who could do the kind of textual help I need [email protected]

The CTV email campaignEmail campaign Template https://docs.google.com/document/d/1VD2zqOKxcQp7SUP06mY8slZlH1sXkKHKVPV0IfLo-uI/edit?usp=sharing

where I talk about the push me pull you of my mitochondria requiring rest and any hope of survival by getting governmental change or enough GoFundMe to stay alive being about me doing advocacy and on top of all of that the day-to-day living things of housekeeping and going to treatments. It's all more energy I have and yet it all needs to be done. And trying to navigate the competing needs of these things is like a terrible tightrope

Links I talked about in the episode

Sick times republish of op-ed March 20th 2025

https://l.gourl.es/l/56898fa8ccf060b8bf79b817ad9fabd986f4a62f?u=11010884

GoFundMe

https://gofund.me/6d981312

Email campaign CTV Template https://docs.google.com/document/d/1VD2zqOKxcQp7SUP06mY8slZlH1sXkKHKVPV0IfLo-uI/edit?usp=sharing

Full info in gfm update https://gofund.me/6d981312

Housekeeping GoFundMe

https://gofund.me/73aeb36e5

Petition Open for a second round of signatures

https://bit.ly/Marcia_petition

TheAtlantic article just came out that includes me(It was a gift link and now that seems to have expired but hopefully you can find a way to see it) https://www.theatlantic.com/magazine/archive/2025/09/canada-euthanasia-demand-maid-policy/683562/?gift=yKNFI6bZtyj8clr3yQtLYCSwFBjNIwPzg10Axz0GrTA&utm_source=copy-link&utm_medium=social&utm_campaign=share by @elainaplott I'm so grateful that they linked to my podcast. For Atlantic readers As it doesn't talk very much about the specifics of my situation or my disease I made a little primer for them https://open.spotify.com/show/0oNLwzI1qZvvZ51bau1aNi

it's Easter morning, and I talk about some of the good things that have happened but also as per usual document the obstacles that are ever present

I talk about this housekeeping GoFundMe a friend set up https://gofund.me/73aeb36e5

and the CTV campaign https://docs.google.com/document/d/1VD2zqOKxcQp7SUP06mY8slZlH1sXkKHKVPV0IfLo-uI/edit?usp=sharing

I was trying to figure out what to call this and I think that David Bowie Queen song under pressure pretty much describes it I think. So I'm continuing to try to document the insanity of the measure of difficulty I'm attempting to navigate

I took a picture of the microwave rust of the inside. I figured you might want to see how insane it was

A quick update as the sick times have republished my op-ed. I'm a bit addle brained so you're not getting a lot much in the way of intelligence but it does document some of the brain fog issues

Sick times republish of op-ed March 20th 2025

https://l.gourl.es/l/56898fa8ccf060b8bf79b817ad9fabd986f4a62f?u=11010884

Linked by Twitter post https://x.com/i/status/2035058600604004423

And once again Email campaign CTV Template https://docs.google.com/document/d/1VD2zqOKxcQp7SUP06mY8slZlH1sXkKHKVPV0IfLo-uI/edit?usp=sharing

Full info in gfm update https://gofund.me/6d981312