Forget the clichés, this is where autism, neurodiversity, and inchstones collide to challenge every assumption about what parenting a profoundly autistic, nonspeaking child actually means. Sarah Kernion and The OG Autism Dad, Rob Gorski go far beyond surface-level conversations, exposing the unseen emotional labor, systemic failures, and community blind spots families face every day. This discussion reframes profound autism as not just a diagnosis but a catalyst for resilience, courage, and radical community-building. Together, they explore how embracing nonspeaking autism as part of a broader neurodiversity movement transforms stigma into solidarity while underscoring the urgent need for inclusive policies, authentic dialogue, and parent-led support networks that actually work.

Takeaways:

Raw Truth Drives Change: Rob Gorski underscores that unfiltered storytelling is the engine of real autism advocacy.

Hidden Emotional Labor: Parents of profoundly autistic, nonspeaking children shoulder unique emotional and logistical challenges rarely acknowledged by society.

Neurodiversity ≠ One Size Fits All: The autism community spans from low to high support needs, demanding nuanced understanding and tailored support.

Systemic Barriers Require Disruption: Families face institutional red tape and fragmented systems, calling for parent-led reform and policy influence.

Self-Care as Strategic Survival: Caring for yourself is not indulgence—it’s the foundation of sustainable advocacy and family stability.

Normalize Asking for Help: Courage in seeking support should be celebrated, not stigmatized, to reduce isolation and burnout.

Bridge the Divide: Open dialogue between families, professionals, and policymakers can dismantle harmful stereotypes and improve outcomes.

Respect the Inchstones: Progress in profound or nonspeaking autism isn’t always linear—inchstones matter more than milestones.

Compassion as a Competitive Advantage: Building a culture of empathy within the autism community strengthens resilience and collective impact.

Families raising children with profound autism often face overwhelming challenges in navigating healthcare, education, and daily life. On the Inchstones podcast, Sarah Kernion and Brandy Burch Thompson, CEO & Founder of benefitbay® unpack these realities with honesty and clarity, highlighting why individualized care plans matter and how employers can better support neurodiverse families. Their conversation underscores the power of advocacy, the necessity of informed choice in healthcare, and the resilience it takes for parents of autistic children to be heard. This dialogue shines a light on both the systemic barriers and the inchstones of progress that define the autism journey, offering guidance and hope to families walking a similar path.  In exploring the importance of individualized care plans, the role of employers in providing healthcare options, and the need for families to advocate for their specific needs, Brandy helps Sarah and other parents in similar situation understand the terrain of the healthcare system. The conversation emphasizes the significance of choice in healthcare and the empowerment of families to make informed decisions about their care.

Kyle Shepard, writer of The Resilient Mental State Substack, joins the Inchstones podcast for a powerful conversation about resilience, caregiving, and communication in the world of autism and neurodiversity. Together, we explore how parenting children with profound autism reshaped my understanding of growth, emotional regulation, and adaptability. Kyle shares deeply personal insights from his own life, highlighting the challenges and breakthroughs of work and parenting, while emphasizing the importance of celebrating inchstones —those small but meaningful steps forward that foster resiliency in all of us, regardless of our journey. This dialogue underscores the strength found in community, the role of curiosity in navigating uncertainty, and the everyday resilience that defines families living with autism.

On the Inchstones Podcast, host Sarah Kernion sits down with Kate Lynch to unpack the realities of neurodiversity and the often-overlooked struggles of parents raising profoundly autistic children. Their conversation sheds light on the systemic gaps in caregiving, the urgent need for inclusive education, and the power of community in navigating the challenges of autism. Through honest reflection and lived experience, they highlight how every child’s journey --- measured in inchstones, not milestones --- deserves recognition and respect. Together, Sarah and Kate call for a cultural shift toward acceptance, advocacy, and the celebration of differences, offering hope for a future where neurodivergent voices and families are truly supported.

You can find and follow Kate's work on her Substack: Atypical Kids, Mindful Parents.

Navy SEAL veteran Sam Alaimo joins Inchstones host Sarah Kernion for a conversation that bridges two worlds: combat and caregiving. Together, they explore how the endurance, intuition, and community forged in military life parallel the realities of raising children with profound autism. Their dialogue dives into the power of choice in the face of adversity, the way grief reshapes identity, and the resilience required in motherhood. With honesty and depth, Sam shares how lessons from the battlefield illuminate the daily challenges of profound nonspeaking autism and neurodiversity, offering a perspective that redefines what strength and meaning look like when measured in inchstones.

Autism Mom Sarah Kernion sits down with mother-son duo Valerie Buccino and her son Philip for a conversation within the broader neurodiversity spectrum (while also addressing autism, apraxia, and the journey of profound autism.)  Together, they explore the power of self-advocacy for individuals with learning differences, the importance of building true collaboration with educators, and the everyday strategies that have helped Philip thrive. Valerie, both an attorney and a mother, shares her perspective on why respect and understanding are essential in educational settings. Their story underscores the role of self-perception, the cultural barriers around asking for help, and the resilience required to pursue goals despite challenges—reminding us that every child’s progress deserves to be celebrated, one inchstone at a time.

What if your child’s first dental visit was about more than teeth?

In this episode of Inchstones, Sarah Kernion sits down with Special Needs Dentist, Dr. Sydnee Chavis, for a raw and real conversation about raising children with profound autism and apraxia. Together, they explore how personal experience with neurodiversity has shaped their work—one through dentistry, the other through financial strategy—and how every inchstone, from brushing teeth to building a care team, is a major milestone.

They unpack what it means to advocate for children who are non-speaking, the emotional labor of showing up daily for kids with complex needs, and why accessible care—especially dental care—is often out of reach for families like ours. This episode also dives into the power of choice for disabled patients, the overlooked value of trauma-informed dentistry, and how to approach long-term financial planning without getting overwhelmed.

Whether you're deep in the world of profound autism or just beginning to understand what apraxia looks like day-to-day, this conversation holds space for the mess, the magic, and the meaning behind the inchstones that define our families.

When parenting meets profound autism, support needs to evolve—fast. On this episode of Inchstones, Sarah Kernion sits down with Jordan Arogeti, founder of Support Now, for a raw and honest conversation about what modern families actually need. From the realities of raising neurodivergent children—including those with apraxia or profound autism—to the deep loneliness many parents face, this discussion breaks through surface-level solutions and gets into the truth of caregiving in today’s world.

They talk about how asking for help isn’t weakness—it’s survival. And how platforms like Support Now are reshaping how we view community support, especially in the autism and neurodiversity spaces. Whether you're raising a child with complex needs or trying to show up for someone who is, this episode offers a new framework for what real, meaningful support can look like—inch by inch.

When your child is autistic—especially when they have profound autism or neurodiversity, routine medical visits can feel anything but routine. On this episode of Inchstones, Dr. Chelsea Willie, a pediatric anesthesiologist and mom to a neurodivergent child, joins Sarah to break down how hospitals and clinics can better serve kids with autism.

From sensory overwhelm to communication challenges, Dr. Willie shares what truly helps when it comes to medical care for neurodivergent kids—and how parents can advocate for what their child needs without burning out.

Together, they talk about the small wins (INCHSTONES) that make a huge difference, the importance of trust between families and providers, and why it’s time to shift how medicine shows up for the autism community.

Whether you're parenting a child with profound autism, navigating apraxia, or just starting your neurodiversity journey, this episode is packed with wisdom, validation, and practical strategies you can use today.

Dr. Chelsea Willie is a Pediatric Anesthesiologist and Pediatric Intensivist at the Medical College of Wisconsin.

A reminder that even in our hardest seasons, we still have the power to choose how we show up, Sarah Kernion sits down with Traci Kovacic for a conversation about what happens when life throws you into the unimaginable—and how you keep going anyway.

Traci opens up about the back-to-back tragedies that changed everything for her: losing her husband and nearly losing her daughter.

She talks honestly about the messy, painful, and ultimately transformative process of grief, and how those experiences pushed her toward becoming not just a financial advisor, but an advocate for families navigating life after loss. Together, Sarah and Traci explore the intersection of motherhood, mental health, and the way we rebuild ourselves when the life we imagined disappears.

This isn’t just a story of loss—it’s a story about finding love, purpose, and strength in the wreckage. And it’s a reminder that even in our hardest seasons, we still have the power to choose how we show up.