Our shameful (non) treatment of early onset dementia is tackled head on by Kate Swaffer who, at 49, was diagnosed and told to get her end of life affairs in order. She didn't want to do that. 
Twelve years later she is a founding member and CEO of an international organisation charged with changing attitudes and treatment for early onset dementia. As a direct result, Kate was invited to address the Word Health Organisation. And she gave them both barrels.

https://www.dementiaallianceinternational.org/

Kate Swaffer books available on Apple Books:
What The Hell Happened to My Brain
Love Life Loss- A Rollercoaster of Poetry

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